Flying

[annmarie72]

does any1 no if u can fly with skeroderma raynards epelepsy and phybrosis on the lungs plz I am going threw he'll with my family because I don't want to fly but there saying I should

[uknlv]

You should check with you doctor, if you have lung involvement you may need oxygen for the trip. I have never had an issue with Raynaud;s and flying , but no idea with epilepsy. But I would definetly check with your doctor 8)

[annbrien]

I fly almost every month since I retired (sometimes long distance e.g. South Africa) and have no problem with Raynaud's.

Make sure that all your conditions are noted on your travel insurance policy before you go away, otherwise if there is a problem and you have to pay for treatment, it will not be covered by the insurer. If you have not taken out travel insurance already, your insurer may want a letter from your doctor to say you are fit to fly. The doctor can charge for this letter. Don't do anything you don't want to do or are not insured to do.

annbrien

[nannysue1950]

Have had Raynauds and Scleroderma (lung involvement) for 12 years now and have flown every year since then - some have been long haul, Singapore etc. Never had any problems with travel insurance but annbrien is right - you have to declare all your conditions otherwise you will not be covered if anything does go wrong. Now this year when I had my lung function test I have been told that I will need in-flight oxygen. I am finding that a bit of a bind because usually I book flights via internet and now I think I will have to get a travel agent's help in order to organise the oxygen. My usual travel insurers weren't very helpful but I have now insured with Asda and an annual travel insurance policy hasn't cost me any more with them than it did last year with my old insurers. Full marks to Asda!! Re epilepsy, I suppose it does depend on the frequency of your attacks but my son (now 36) has had epilepsy since he was 18 and the job he has involves him flying a great deal and he's never had any problems. But again, unless you're really up for flying - then don't do it. Best of luck with whatever you decide

[Hidden]

Hi annmarie72,i just thought i would tell you about some info you can find regarding travelling with a lung condition,having been diagnosed with pulmonary hypertension myself(secondary to scleroderma)i was made aware of the PHA UK charity,and if you look on their website you will find a lot of information about travelling with lung disease,they also publish a number of leaflets about getting insurance as cheap as possible for travelling abroad,as you have lung fibrosis,perhaps you might consider joining the PHA UK as a member,and run the membership alongside your membership of the RSA,there is no charge to become a member.Take a look,and see what you think.

[Pipsmum]

There's not usually a problem with flying if you have epilepsy. Just make sure you have some of your tablets in your hand luggage (in case of delays) and that your travel insurance includes all your pre-existing conditions. Is it a short flight or long haul? Short flights are best, as they are less tiring. Also, the time difference will be less. For long haul/time changes, you may need to review the time you take your routine meds.