Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,481 members • 38,444 posts

All posts for February 2024

trying to taper prednisone

hi, I’m feeling depressed today . I was diagnosed with PMR in July 2023 ,Been on prednisone since then . When I started to taper and I feel really terrible....

hi, I’m feeling depressed today . I was diagnosed with PMR in July 2023 ,Been o...

Elvied

•3 months ago

44 Replies

exercise tips

Morning folks , was on 15g pred initially with PMR diagnosis, after a couple of weeks and around 60/70 % pain relief , had a weekend of weird symptoms in my...

Morning folks , was on 15g pred initially with PMR diagnosis, after a couple o...

Pastamama

•3 months ago

13 Replies

When we get down to 12.5 pred but doc issues 5mg tablets

How does anyone cut them? It says you shouldn't on the label and they have to be intact. I'm not there yet, but neighbour was talking and said doc told her to...

How does anyone cut them? It says you shouldn't on the label and they have to be...

pastamaid

•3 months ago

39 Replies

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Kevzara

Has anyone tried this Biologic called Kevzara? My Rheumi says its a new treatment for PMR

Has anyone tried this Biologic called Kevzara? My Rheumi says its a new treatmen...

salparadise127

•3 months ago

7 Replies

2 nd time I hit send accidentally

I told you I had fuzzy brain…. my question is does anyone think these 2 things are in anyway related to PMR? hopefully my Rheumy will bump me way up so I can...

I told you I had fuzzy brain…. my question is does anyone think these 2 things ...

Hidden

•3 months ago

6 Replies

oops … Major flare …pushed send by accident

story continues😳 The 10 mg is not doing the trick at all . I have 2 strange things that are happening . My wrist is the most painful part of the Flare.. I...

story continues😳 The 10 mg is not doing the trick at all . I have 2 strange t...

Hidden

•3 months ago

2 Replies

major flare when I hit 3 mg

I have been on the PMR journey for 5 years with GFA thrown in for good measure. My GCA appears to be under control but PMR is in full on flare This is the...

I have been on the PMR journey for 5 years with GFA thrown in for good measure. ...

Hidden

•3 months ago

3 Replies

Returning to work full time

After being off work for 6 months with PMR, I returned on a part-time basis in Jan. It’s been a mental and physical struggle to adapt to working. I’m only @...

After being off work for 6 months with PMR, I returned on a part-time basis in J...

SpaghettiWestern99

•3 months ago

9 Replies

Is this naughty?

I can't / won't go below 5 mg at the moment because last time I did, I had a flare. But . . . as I was also starting to get stiff at 5 mg, PMRPro wondered...

I can't / won't go below 5 mg at the moment because last time I did, I had a fla...

LMali

•3 months ago

8 Replies

stress related relapse?

Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise and then hubby had double bypass operation just over two weeks ago. Am now...

Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise an...

CathyMeg

•3 months ago

17 Replies

steroids and knee replacement

my brother has pmr and is currently on 5 mg Prednisolone. He needs 2 knee replacements but doc says he can’t have the op because he is on steroids. Has anyone...

my brother has pmr and is currently on 5 mg Prednisolone. He needs 2 knee replac...

Sheilamac

•3 months ago

12 Replies

increasing my prednisone

Diagnosed in 2014 and put on 30mg. Tapered it slowly and got rid of prednisone in March 2020. My hand ,knee and ankle swelled up so the GP put me back on 20mg....

Diagnosed in 2014 and put on 30mg. Tapered it slowly and got rid of prednisone i...

zealand

•3 months ago

22 Replies

Update to anyone interested

Hello, still in pain and still struggling to get a correct diagnosis. My long awaited referral with a specialist Rheumatologist in Oxford lead to yet more...

Hello, still in pain and still struggling to get a correct diagnosis. My long a...

Creas

•3 months ago

35 Replies

Has anyone heard of alternative tapering for Pred?

Hi Ive been looking at different tapering for Pred for PMR. There is one study that has been done where you take: 15mg for 3 days 10mg for 7 days 5mg for...

Hi Ive been looking at different tapering for Pred for PMR. There is one study...

worrier62

•3 months ago

27 Replies

Too low or adrenals struggling?

My partner has been on steroids for 3 years, reducing slowly from 20mg with no flares (he's 72 and before pmr was able to join me on 5 to 6 mile walks in the...

My partner has been on steroids for 3 years, reducing slowly from 20mg with no f...

Fudgethecat

•3 months ago

11 Replies

GCA confirmed after Ear pain

Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after...

Just to let you know that the result of my temporal artery biopsy has been confi...

kalgoorlie

•3 months ago

7 Replies

Strange Question

With this last flare, my doctor has only allowed me to go from 8 to 10mg of Pred (I was tapering, but at 8 I had a terrible flare and just cannot get below...

With this last flare, my doctor has only allowed me to go from 8 to 10mg of Pred...

lovemylife23

•3 months ago

15 Replies

Potential new treatment for osteoarthritis

https://www.news-medical.net/news/20240221/Nose-cartilage-based-knee-joint-treatment-project-receives-e282ac23-million-funding.aspx?utm_source=news_medical_news

https://www.news-medical.net/news/20240221/Nose-cartilage-based-knee-joint-treat...

PMRpro

Ambassador•3 months ago

40 Replies

Taper

I take 8mg Prednisone now .. I work night shift so I take 4mg at 4pm with evening meal and 4mg at 4am before going to sleep … I’m going to cut down to...

I take 8mg Prednisone now .. I work night shift so I take 4mg at 4pm with ev...

Januzzi

•3 months ago

6 Replies

Pericardial effusion

I had taken Prednisone for about three and a half years for PMR and stopped about four months ago. In December a follow up CT scan for something else showed...

I had taken Prednisone for about three and a half years for PMR and stopped abou...

Tiredofpmr555

•3 months ago

13 Replies

flare

from May 2017 I have had PMR (now 72 yr )and I have “ managed” this condition OK. Isch with the help of this forum. No major flares on the way, if I remember...

from May 2017 I have had PMR (now 72 yr )and I have “ managed” this condition O...

Kaaswinkel

•3 months ago

24 Replies

A tragic but inspiring and heartwarming story about someone running to raise money for PMRGCAuk after a friend lost her sight from GCA

I just picked this story up from the charity's Facebook page and it's worth sharing. A big thank you to James Robinson who's running the Leeds Marathon...

I just picked this story up from the charity's Facebook page and it's worth shar...

tangocharlie

•3 months ago

19 Replies

is a return of arm shoulder pain on one side unusual.

The initial euphoria after three days of 15mgm prednisolone when the pain in both upper arms and thighs was relieved, I have found over the last week or so...

The initial euphoria after three days of 15mgm prednisolone when the pain in bot...

Rosebud17

•3 months ago

18 Replies

Alendronic Acid and Methotrexate

I've had PMR for about two years. All symptoms vanished completely as soon as I was put on Prednisolone (15mg per day), but I had a bad experience with trying...

I've had PMR for about two years. All symptoms vanished completely as soon as I ...

PressBarVet

•3 months ago

23 Replies

'Astounding amount' of vasculitis trials opens mixed bag of 'exciting', 'frustrating' data

https://www.healio.com/news/rheumatology/20240218/astounding-amount-of-vasculitis-trials-opens-mixed-bag-of-exciting-frustrating-data

https://www.healio.com/news/rheumatology/20240218/astounding-amount-of-vasculiti...

perceptual63

•3 months ago

3 Replies

Never give up if you know something is wrong with you - especially if you're a woman

Far too many of us have problems getting diagnosis and treatment for PMR and GCA (and everything between) and it seems that, as many have been saying for...

Far too many of us have problems getting diagnosis and treatment for PMR and GCA...

tangocharlie

•3 months ago

14 Replies

PMR Tapering objective

My Rheumy wants me to be at 2-3 mg by October of this year or he will suggest other scripts to get me there. I need a plan from the experts---please. I am...

My Rheumy wants me to be at 2-3 mg by October of this year or he will suggest ot...

RaisinBran

•3 months ago

23 Replies

Cholesterol, pred and PMR?

Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of 5 million people in UK , in order to get a detailed picture.of the nation's...

Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of ...

MamaBeagle

•3 months ago

35 Replies

Daily Mail Tuesday 19th

I've just read Martin Scurr in the Health Section of Tuesday's Daily Mail. It's the second article after the Tinitus question. Surely the answer should be NO,...

I've just read Martin Scurr in the Health Section of Tuesday's Daily Mail. It's ...

Estellemac

•3 months ago

78 Replies

Help with timing of split Prednisolone dose

Hi, I have found this site amazingly helpful, thank you. I have a specific enquiry regarding the best time to take my split dose. When my rheumy advised...

Hi, I have found this site amazingly helpful, thank you. I have a specific enqui...

Tribie

•3 months ago

25 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2024

trying to taper prednisone

exercise tips

When we get down to 12.5 pred but doc issues 5mg tablets

Kevzara

2 nd time I hit send accidentally

oops … Major flare …pushed send by accident

major flare when I hit 3 mg

Returning to work full time

Is this naughty?

stress related relapse?

steroids and knee replacement

increasing my prednisone

Update to anyone interested

Has anyone heard of alternative tapering for Pred?

Too low or adrenals struggling?

GCA confirmed after Ear pain

Strange Question

Potential new treatment for osteoarthritis

Taper

Pericardial effusion

flare

A tragic but inspiring and heartwarming story about someone running to raise money for PMRGCAuk after a friend lost her sight from GCA

is a return of arm shoulder pain on one side unusual.

Alendronic Acid and Methotrexate

'Astounding amount' of vasculitis trials opens mixed bag of 'exciting', 'frustrating' data

Never give up if you know something is wrong with you - especially if you're a woman

PMR Tapering objective

Cholesterol, pred and PMR?

Daily Mail Tuesday 19th

Help with timing of split Prednisolone dose

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