Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,635 members • 38,785 posts

All posts for January 2022

GCA Eye Pain

Hi I was told I have GCA on Christmas eve and was put on 50mg of Steroids, but I still get times when my eyes hurt to move. Is this normal??

Hi I was told I have GCA on Christmas eve and was put on 50mg of Steroids, but I...

Auditor1234

•2 years ago

9 Replies

Not that serious in the scheme of things!

I wonder if the inflamed looking rash at the corners of my mouth and at the side of my nose are PMR or pred related by any chance? I have had it for about the...

I wonder if the inflamed looking rash at the corners of my mouth and at the side...

AnniesRyder5

•2 years ago

13 Replies

Covid.

I turned up positive for Covid Wednesday after taking an LFT despite living like Howard Hughes (minus the bank balance) for two years. I am on Methotrexate,...

I turned up positive for Covid Wednesday after taking an LFT despite living like...

AncientMariner

•2 years ago

40 Replies

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Reducing pred

When reducing do you stay on a number ie 18.5 even if I still have pain?

Artwatercolour

•2 years ago

16 Replies

Colonoscopy

I am having a colonoscopy next week at 2 o’clock so won’t be able to eat that day. Should I take my 13.5 Prednisolone without food or wait till I get home? I...

I am having a colonoscopy next week at 2 o’clock so won’t be able to eat that da...

Jayveedee

•2 years ago

7 Replies

Diet Supplements

Once again unable to sleep. Thinking about my diet. I’m having some stomach and digestive investigations. My stomach is now so distended and solid with it. It...

Once again unable to sleep. Thinking about my diet. I’m having some stomach and ...

Singr

•2 years ago

25 Replies

F2f with GP

I was diagnosed with PMR in June 2021 by a trainee GP. She was supervised by a more senior GP in the practice. The trainee left and I've now had 2 phone chats...

I was diagnosed with PMR in June 2021 by a trainee GP. She was supervised by a m...

Scotmack

•2 years ago

8 Replies

Constant headache

Constant headache For the past week I have had a pretty bad headache. I have seen a doctor who examined me for GCA . He didn’t think it was so prescribed...

Constant headache For the past week I have had a pretty bad headache. I have...

Flrchrs

•2 years ago

22 Replies

Flaring again because of sickness, loss of husband, and stress etc

My rheumatologist said at last appt " its been two and a half years you shouldn't need to be on prednisone." I was down to 3mg in September. Got covid, Husband...

My rheumatologist said at last appt " its been two and a half years you shouldn'...

Paperroses

•2 years ago

12 Replies

Rheumatologist doesn't want me to stay on pred

My Dr has me taking plaquenil 6 days a week and only use prednisone when I have much pain. I also gave inflammatory arthritis. There us a distinct difference...

My Dr has me taking plaquenil 6 days a week and only use prednisone when I have ...

Goldengirlz2

•2 years ago

26 Replies

I’m being ahead of my game but....

I’m currently on a slow taper (DL’s regime] and have stayed on 4 mg for about 4 weeks now (having reduced very slowly by 0.5mg each time]. I’m definitely not...

I’m currently on a slow taper (DL’s regime] and have stayed on 4 mg for about 4 ...

Doraflora

•2 years ago

13 Replies

Urticaria

Hello everyone. I could do with some of your thoughts and ideas regarding a new and unexpected setback I've encountered. -Seven days ago (Fri) I got out of...

Hello everyone. I could do with some of your thoughts and ideas regarding a new...

Kendrew

•2 years ago

104 Replies

Anyone else suffered or suffering with cotton wool ears. Asked my rheumatology nurse and she says it is not steroids or GCA. Driving me mad.

Ears feel blocked

Crommie

•2 years ago

23 Replies

Cataract posts

I would just like to thank everyone who gave me advice and views on Cataracts when I was worried. Thanks! It reassured me.

I would just like to thank everyone who gave me advice and views on Cataracts wh...

Predderman2020

•2 years ago

10 Replies

Overshot I think!

I was doing well with the DSNS taper from 4 to 3.5mg at the end of the year (Nov/Dec), even stopping at one point then re-starting when I was not sure of a few...

I was doing well with the DSNS taper from 4 to 3.5mg at the end of the year (Nov...

Queenie1901

•2 years ago

12 Replies

Early morning inflammation - explanation please?

I have read on this site several times that our bodies release inflammatory substances in the early hours which is why some people take their pred at 2am. I am...

I have read on this site several times that our bodies release inflammatory subs...

Broseley

•2 years ago

17 Replies

Remaining on a low dose of pred indefinitely

A lot of posts discuss tapering off steroids as a priority, but I'm wondering if there are some members who are happy to remain on a low dose of pred (say,...

A lot of posts discuss tapering off steroids as a priority, but I'm wondering if...

Pr0jection

•2 years ago

43 Replies

How long before Pred to work

I have been on pred 20mg for a week now And I am still very stiff and painful in the morning if I don’t take ibuprofen it takes me until lunchtime to move...

I have been on pred 20mg for a week now And I am still very stiff and painful in...

DJmusic

•2 years ago

9 Replies

DEXA Scan Results

Wonder if it would have been worse if I hadn’t taken Ca+D3+K2? This sucks and yes, same machine. DEXA Scan T-scores 10/21/19 / 01/05/22 Lumbar Spine -0.4...

Wonder if it would have been worse if I hadn’t taken Ca+D3+K2? This sucks and ye...

Boss302Fan

•2 years ago

12 Replies

Self isolation before cataract op

Hi all Just wondered whether anyone else has come across this? I have a cataract op booked for 24/1, at a private hospital contracted to the NHS. They insist...

Hi all Just wondered whether anyone else has come across this? I have a cataract...

Nextoneplease

•2 years ago

39 Replies

Osteopenia

Hi am josie-Anne I’m 56 next month and I had a dexa scan in October which showed I have osteopenia so my doctor put me on Eva cal D3 1500/400 iu calcium...

Hi am josie-Anne I’m 56 next month and I had a dexa scan in October which showed...

Josie-Anne

•2 years ago

7 Replies

FLARE. ugh.

My SED rate was the lowest EVER 3!~! so I thought I should to taper again since I have been on prednisone for 4 years. I was at 2 so dropped slowly... not DNSN...

My SED rate was the lowest EVER 3!~! so I thought I should to taper again since ...

yogabonnie

•2 years ago

38 Replies

Sickness and prednisilone/amitriptyline

I am currently on 10mg pred daily which I take around 2am with some yoghurt. Haven't had any problems with my stomach since starting them nine months ago and...

I am currently on 10mg pred daily which I take around 2am with some yoghurt. Ha...

Sufferinginsilence

•2 years ago

14 Replies

going back on Prednisolone

I am going to try going back on Prednisolone again after stopping around May 2020. I stopped because of the pandemic but am getting very stiff and walking is...

I am going to try going back on Prednisolone again after stopping around May 202...

aptiana

•2 years ago

4 Replies

GCA?

GCA? Have had a headache for the last ten days. I am currently taking 4mg of prednisone and injecting Actemra every four weeks. I upped my prednisone by 5mg of...

GCA? Have had a headache for the last ten days. I am currently taking 4mg of pre...

Blackcatlover

•2 years ago

15 Replies

Plasma Viscosity

Does anyone know much about PV? Since being diagnosed with PMR 4.5 years ago, mine has always been high, hovering around the 2.0 mark, irrespective of pred...

Does anyone know much about PV? Since being diagnosed with PMR 4.5 years ago, mi...

Jontie

•2 years ago

9 Replies

Misdiagnosis

Hi Just to let you all know what has happened to me, in case it resonates with anyone. I was diagnosed with PMR about 6 years ago, and have been unable to get...

Hi Just to let you all know what has happened to me, in case it resonates with a...

Amanda_iona

•2 years ago

11 Replies

Predisolone and Methotrexate

Has anyone with GCA been prescribed 60mg Pred daily and 15mg MTX weekly from the start? Was wondering as posts here don't mention MTX until tapering and then...

Has anyone with GCA been prescribed 60mg Pred daily and 15mg MTX weekly from the...

Chipola

•2 years ago

2 Replies

I know very little about this PMR

I know very little about this PMR At the end of September I had a double knee replacement all going very well, On the 2nd of December I had my booster Covid...

I know very little about this PMR At the end of September I had a double knee re...

DJmusic

•2 years ago

8 Replies

Cataracts

Thanks to everyone who gave my advice and shared experiences on cataracts - immensely cheered up as a result! Yours. T

Thanks to everyone who gave my advice and shared experiences on cataracts - imme...

Predderman2020

•2 years ago

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2022

GCA Eye Pain

Not that serious in the scheme of things!

Covid.

Reducing pred

Colonoscopy

Diet Supplements

F2f with GP

Constant headache

Flaring again because of sickness, loss of husband, and stress etc

Rheumatologist doesn't want me to stay on pred

I’m being ahead of my game but....

Urticaria

Anyone else suffered or suffering with cotton wool ears. Asked my rheumatology nurse and she says it is not steroids or GCA. Driving me mad.

Cataract posts

Overshot I think!

Early morning inflammation - explanation please?

Remaining on a low dose of pred indefinitely

How long before Pred to work

DEXA Scan Results

Self isolation before cataract op

Osteopenia

FLARE. ugh.

Sickness and prednisilone/amitriptyline

going back on Prednisolone

GCA?

Plasma Viscosity

Misdiagnosis

Predisolone and Methotrexate

I know very little about this PMR

Cataracts

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