Systemic Lupus

[cmj33g]

As many of you know l have had an up and down journey with lots of shingles and classic pmr but my GP always maintained l was too young.

More unusual symptoms involving rashes and my kidneys started appearing and an unusual autoantibody called anticardiolipin antibody has been isolated several times in my blood.

I have Lupus.

Yes a different and more complicated journey but will be monitored closely.

I wish everyone well with their own journeys and may pop onto say hello.

Also if you are under 55 my advice is. Get other tests done just to eliminate lupus.

I also had pregnancy difficulties and a preterm baby who died 2 days later.

Every thing now under one roof!

Stay safe and goodbye lovely people xx

[SheffieldJane]

I am so sorry that you have suffered so much. Losing your little baby must have been devastating, my heart goes out to you.It is a relief to have a correct diagnosis, everything falls into place somehow. 💖

[suzy1959]

I’m sorry to hear your new diagnosis, but wish you well and hope you get some effective treatment!

[cmj33g in reply to suzy1959]

Aw thanks guys x

[Kendrew]

What a journey to get to this point...and such sad news about your beautiful little baby. I can't imagine how you ever get over that but I know many of us reading your post will be both celebrating your conclusive diagnosis and also embracing you with our love for your terrible loss. Stay safe too and wishing you peaceful and happier times ahead. ❤❤❤

[Longtimer]

My hairdresser in her late 30he's has had lupus for the last 10 years... She is on several meds, but leads an active life with 2 children......when the meds are right things are easier for her....same for all of us.. Don't despair.....and yes, she is monitored regularly......so keep positive....I wish you well.....🙏

[Horizon12]

All the best on your journey.