Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2021

Hi.

I just wanted to say hi and tell you a brief bit about myself. Just over 3 years ago I had an accident at home at broke my ankle in 3 places and also badly...

I just wanted to say hi and tell you a brief bit about myself. Just over 3 years...

Helipad

•3 years ago

43 Replies

Rash.

Hi.i am just wondering if anyone on here has had a rash on their busy,on both more on left side,it doesnt hurt,it just itching,I put cream on it.hope you dont...

Hi.i am just wondering if anyone on here has had a rash on their busy,on both mo...

Flosy

•3 years ago

10 Replies

Light headed. Could it be a flare up?

I saw a post earlier from someone who was experiencing some light-headedness. Last Wednesday night I experienced a headache with some temple tenderness and...

I saw a post earlier from someone who was experiencing some light-headedness. L...

luv2read

•3 years ago

8 Replies

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Total hip replacement soon, ?pred dose

Hi all, just wondering about my current pred dose with surgery coming up. I’ve tapered to 5mgm, it’s 13 months since dx, when I began on 15mgm. I’ve been on...

Hi all, just wondering about my current pred dose with surgery coming up. I’ve ...

123mossie

•3 years ago

20 Replies

Positivity and I must Admit Fingers Crossed

My first day of 10mg of Pred. Last time I got this stage I failed miserably and had to go back up to 15mg, but I have cut my walking and exercise back so as...

My first day of 10mg of Pred. Last time I got this stage I failed miserably and ...

Bcol

•3 years ago

54 Replies

Fast steroid drop in PMR

I have a friend diagnosed with pmr and who started on 15mg of pred in June 2020. She lives alone and could hardly get out of bed and felt very ill....

I have a friend diagnosed with pmr and who started on 15mg of pred in June 202...

diana1998

•3 years ago

12 Replies

New sufferer of PMR - What are the best foods to eat, and what should I afford to help keep well?

Can anyone please advise what foods are the best to eat as I love white bread and white rice and have been told these are No No's when it comes to PMR and...

Can anyone please advise what foods are the best to eat as I love white bread an...

Littlejan22

•3 years ago

35 Replies

Exercise - how much can I do and what types are best?

Exercise?? I am a 56 year old lady pending official diagnosis (tomorrow at Little Aston Spires Hospital) of PMR or GCA (or both) and since developing the...

Exercise?? I am a 56 year old lady pending official diagnosis (tomorrow at Littl...

Littlejan22

•3 years ago

32 Replies

Several variables and unknowns~

Almost 4 weeks ago, my rheumatologist started me back on Actemra weekly. I felt better without it, but he feels I need it as we will start tapering down from...

Almost 4 weeks ago, my rheumatologist started me back on Actemra weekly. I felt...

Grammy80

•3 years ago

54 Replies

Wonderful pictures

Just sending out a thank you to the powers that be for the lovely photography that graces the header to our daily newsletters. First thing I look at in the...

Just sending out a thank you to the powers that be for the lovely photography th...

Evercurious

•3 years ago

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MYSTERIOUS SYMPTOMS

Happy new year to you all. Preparing myself for a couple of up and coming medical appointments with Rheumy and an MRI scan for my gommy knee. I wanted to ask...

Happy new year to you all. Preparing myself for a couple of up and coming medic...

Singr

•3 years ago

7 Replies

Knee Joints

Hi , I'M NEW ON HERE , JUST WANTED TO KNOW DOES PMR AFFECT YOUR KNEE JOINTS AS AM HAVING PROBLEMS WITH THEM . THANKS .

Hi , I'M NEW ON HERE , JUST WANTED TO KNOW DOES PMR AFFECT YOUR KNEE JOINTS AS A...

Ormesby13

•3 years ago

8 Replies

How long for me on Prednisolone?

Hello - I am new to this group. Have just been diagnosed with Polyneuralgia rheumatica. V painful upper body and so stiff! However these little wonders, 15mg...

Hello - I am new to this group. Have just been diagnosed with Polyneuralgia rhe...

Silver-Babe

•3 years ago

28 Replies

Where do I go from here?

After the problem with delay in receiving meds, this am I find I should take 2.5mgs Pred 3 daily and1tab Adcal -d3 twice daily. No phone call from surgery...

After the problem with delay in receiving meds, this am I find I should take 2.5...

merril

•3 years ago

11 Replies

Vulnerability

I work in a supermarket, on checkouts so behind a Perspex screen, wear a face mask and use sanitising gel and wash my hands whenever I can. I am provided with...

I work in a supermarket, on checkouts so behind a Perspex screen, wear a face ma...

Koalajane

•3 years ago

16 Replies

Problem with being extremely cold

Hi I have touched on this before but just wondering if anyone has experienced it.I’ve had episodes of being really cold even though the house is very...

Hi I have touched on this before but just wondering if anyone has experienced it...

Devoid

•3 years ago

20 Replies

Meds before blood test?

Hello daft question I’m sure .... but I have a full blood test on Tuesday at 9.30 am prior to a telephone rheumatology appointment towards the end of the...

Hello daft question I’m sure .... but I have a full blood test on Tuesday at 9.3...

Fishponds50

•3 years ago

11 Replies

Covid vaccine get it or not?

Covid vaccine, we have lost our Rheumy on island over a year ago, and the Internal Medicine doc has not let us know yet or not if my husband, who has GCA,...

Covid vaccine, we have lost our Rheumy on island over a year ago, and the Intern...

weatherman69

•3 years ago

15 Replies

Advise re GCA blurry vision

Please can anyone give advise. I have GCA/PMR, I am currently reducing pred, 8mg per day plus TCZ once a week. For the last few weeks my eyesight has become...

Please can anyone give advise. I have GCA/PMR, I am currently reducing pred, 8mg...

2013mayo

•3 years ago

21 Replies

Feeling sorry for myself day

Hi all, how is everyone? I'm having a bad day only been diagnosed few wks and already feeling sorry for myself, woke up this morning took nearly 2 hrs just to...

Hi all, how is everyone? I'm having a bad day only been diagnosed few wks and al...

Hidden

•3 years ago

48 Replies

Metallic bracelet

Hi, had anyone tried one of those metallic bracelets? If so what yr thoughts ? Do they work?

Hi, had anyone tried one of those metallic bracelets? If so what yr thoughts ? D...

Hidden

•3 years ago

7 Replies

Hello, I'm back!

Hello everyone, I lost contact for a while as my tablet went funny and had to get a new one. It has taken an age to set up, not the most computer savvy person,...

Hello everyone, I lost contact for a while as my tablet went funny and had to ge...

Gettingonby

•3 years ago

6 Replies

What do I do next?

Diagnosed 19 months ago with PMR. Prescribed 15 mgs of prednisalone and told to gradually reduce it. Recently got down to 3mgs and two weeks ago experienced...

Diagnosed 19 months ago with PMR. Prescribed 15 mgs of prednisalone and told t...

Pistachios

•3 years ago

7 Replies

Save me from ignorance

No question. I want to learn about PMR.

Kneeknit

•3 years ago

17 Replies

Zoledronic Acid ~Infusion

Just attended my yearly rheumatology appointment and saw an SHO rather than consultant (it sounds as if they are busy closing down face to face appointments...

Just attended my yearly rheumatology appointment and saw an SHO rather than cons...

Pollyanna16

•3 years ago

21 Replies

Prednisolone together with Leflunomide

I was diagnosed GCA in April 2018 (confirmed by biopsy) and have been reducing from 60mg. pred. since then. Each time I reach 7 - 5mg I have a flare and have...

I was diagnosed GCA in April 2018 (confirmed by biopsy) and have been reducing f...

membership

•3 years ago

44 Replies

Which vaccine?

Half listening to some professor on the news yesterday I heard him say that people with a compromised immune system should have the Pfizer vaccine rather than...

Half listening to some professor on the news yesterday I heard him say that peop...

Griggser

•3 years ago

11 Replies

Shielding

Morning, has anyone else had an email telling them they need to continue to shield after having the vaccine, both jabs? Had an email last night saying just...

Morning, has anyone else had an email telling them they need to continue to shie...

Bennej30

•3 years ago

12 Replies

Does PMR affect your sleep pattern?

Another restless night - since starting with the symptons of PMR in October I my sleep has been all over the place from falling asleep at 6pm after a day of...

Another restless night - since starting with the symptons of PMR in October I my...

Littlejan22

•3 years ago

25 Replies

Sleep

After boasting about waking up at 4.20 yesterday, I woke at 3.12! Am now wide awake with head pain and numbness. Just thought that I would share this!

After boasting about waking up at 4.20 yesterday, I woke at 3.12! Am now wide aw...

196_

•3 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2021

Hi.

Rash.

Light headed. Could it be a flare up?

Total hip replacement soon, ?pred dose

Positivity and I must Admit Fingers Crossed

Fast steroid drop in PMR

New sufferer of PMR - What are the best foods to eat, and what should I afford to help keep well?

Exercise - how much can I do and what types are best?

Several variables and unknowns~

Wonderful pictures

MYSTERIOUS SYMPTOMS

Knee Joints

How long for me on Prednisolone?

Where do I go from here?

Vulnerability

Problem with being extremely cold

Meds before blood test?

Covid vaccine get it or not?

Advise re GCA blurry vision

Feeling sorry for myself day

Metallic bracelet

Hello, I'm back!

What do I do next?

Save me from ignorance

Zoledronic Acid ~Infusion

Prednisolone together with Leflunomide

Which vaccine?

Shielding

Does PMR affect your sleep pattern?

Sleep

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