Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2021

CBD oil

Has anyone tried CBD oil, if they have is there any benefit, I would be grateful for a reply.

Has anyone tried CBD oil, if they have is there any benefit, I would be grateful...

Korkycat123

•3 years ago

6 Replies

Would this help sore/tight muscles or is it contraindicated for PMR?

Massage therapy for PMR?

Orchid732

•3 years ago

12 Replies

Taper strategy

Morning all. Sorry i am being lazy again. Currently on 10mg pred (down from a start point of 15mg in August last year). Half at bedtime and half in the...

Morning all. Sorry i am being lazy again. Currently on 10mg pred (down from a st...

NickWarwick

•3 years ago

23 Replies

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Time to Lose Weight?

It was very hot here in Tasmania yesterday - 38 degrees. I had retreated to my hammock under the wisteria and was reading my latest book (According to Yes by...

It was very hot here in Tasmania yesterday - 38 degrees. I had retreated to my ...

Louisa1840

•3 years ago

25 Replies

Help and advice please!

I have had PMR for 6 and a half years, with GCA after two years. Nearly 3 years ago I managed to reduce Pred. to 3.5mgs with a small amount of returning pain....

I have had PMR for 6 and a half years, with GCA after two years. Nearly 3 years ...

k-mac

•3 years ago

35 Replies

Privigen reaction

Has anybody experienced a severe adverse skin reaction after a Privigen plasma infusion . This has happened to my husband , 80% of his body has swelled ,...

Has anybody experienced a severe adverse skin reaction after a Privigen plasma i...

Rubybaby1

•3 years ago

6 Replies

GCA new area of tenderness on touch

I have been on 10mg Pred for 2 weeks after tapering from 60mg originally for GCA only and have felt well. This morning I washed my hair in the shower and felt...

I have been on 10mg Pred for 2 weeks after tapering from 60mg originally for GCA...

HappyDiamonds

•3 years ago

7 Replies

Flare up

Two days ago I started with sciatic pain on one side, but today the pain in both knees is really bad. I tried to get a GP appointment, JOKE! So I’ve decided to...

Two days ago I started with sciatic pain on one side, but today the pain in both...

AnniesRyder5

•3 years ago

47 Replies

Balance and muscle strength issues

Balance issues and loss of strength in legs is progressively a problem to me. I have tapered my pred dose down to 5 mg gradually having been diagnosed withPMR...

Balance issues and loss of strength in legs is progressively a problem to me. I ...

Blues1

•3 years ago

22 Replies

Can Adrenal Glands Work Again After 12 years?

Hi, I have been suffering from, firstly polymyalgia, and then GCA for nearly 12 years now. I have recently been told that I have been on prednisolone for more...

Hi, I have been suffering from, firstly polymyalgia, and then GCA for nearly 12 ...

Stkeyna

•3 years ago

45 Replies

PMR and Covid vaccine experience

Having had my second covid vaccination 5 days ago I am finding my PMR symptoms are heightened. I feel like I did when diagnosed 2 yrs ago.. I am currently...

Having had my second covid vaccination 5 days ago I am finding my PMR symptoms ...

Jumpshot

•3 years ago

39 Replies

O/d'd on Pred.

Took 3 * 5mg of pred, rather than correct dosage 3 * 1mg. What's best way to get back to 3mg. thx Tony

Took 3 * 5mg of pred, rather than correct dosage 3 * 1mg. What's best way to get...

KCRoyals

•3 years ago

14 Replies

Is this normal?

I am new and wondering if it is normal to feel exhausted two months after a two year taper off prednisone for PMR diagnosed in December 2018. That and hot...

I am new and wondering if it is normal to feel exhausted two months after a two ...

Logic

•3 years ago

7 Replies

Hot water bottles

Hi all hope yr all staying g safe and well . Im on day 12 of 12.5 mg well I think I am every day the same as moment. Have spent last few days cwtched up to...

Hi all hope yr all staying g safe and well . Im on day 12 of 12.5 mg well I thi...

Hidden

•3 years ago

61 Replies

Taking 20mg of hydrocortisone daily, getting Pain through back and bottom of ribs and when taking deep breath.Is tis normal?

I was diagnosed with PMR Sept 2017 and started taking Prednisone. When I was at 5mg the consultant changed me over too hydrocortisone. Which I have been on for...

I was diagnosed with PMR Sept 2017 and started taking Prednisone. When I was at ...

Stevekemp

•3 years ago

8 Replies

Please

Have PMR over a year was on 60 then 50 then 40 then 30 and finally 20. Also on I’ve every 4 weeks Everything I do is an effort and have to lay down after 20...

Have PMR over a year was on 60 then 50 then 40 then 30 and finally 20. Also on ...

Doughface

•3 years ago

13 Replies

P M R

Hi, I was diagnosed with pmr about 9 months ago at the age of 61. I started on 15mg steroids and pain went v quickly. I notice no one else has mentioned the...

Hi, I was diagnosed with pmr about 9 months ago at the age of 61. I started on 1...

Lellylam

•3 years ago

9 Replies

Blue Badge Assessment

GCA since 2014. Currently 8.5 pred, wobbly head and dizziness. Blue Badge Assessment next Friday. I know there's plenty on BB in the archive, but rather than...

GCA since 2014. Currently 8.5 pred, wobbly head and dizziness. Blue Badge Assess...

Roy46

•3 years ago

18 Replies

High calcium level s

Hi all I received a letter from my rheumatologist this week I saw him just before Christmas. He suspected that I may have rheumatoid arthritis as well as PMR...

Hi all I received a letter from my rheumatologist this week I saw him just befor...

Hiibilly

•3 years ago

39 Replies

Covid Vacination

Morning all, back from receiving my Covid Vacination. Very efficient, simple medical form checked, jab administered. Didn't have to wait 15 minutes as OH was...

Morning all, back from receiving my Covid Vacination. Very efficient, simple med...

Bcol

•3 years ago

9 Replies

Flare after COVID vaccine

Hi everyone. I had my COVID vaccination yesterday morning (hooray!) but today, apart from a sore arm, I’ve got the old pain back in upper glutes and general...

Hi everyone. I had my COVID vaccination yesterday morning (hooray!) but today, a...

EeneeBee

•3 years ago

32 Replies

Covid jab update

Received #1 injection ...Pfizer, 24 hours ago. No pain at injection site, not even sore shoulder this morning. All seems ok , so far. The clinic was well...

Received #1 injection ...Pfizer, 24 hours ago. No pain at injection site, not ev...

Purplecrow

•3 years ago

6 Replies

Gray dolphin is the gray ghost erroneously posted.

My post was expunged before I finished

thegrayghost

•3 years ago

6 Replies

GCA Vancouver Island BC Canada Introduction

Thank you all for giving me insight into your journeys. I was diagnosed by my ophthalmologist mid December 2020 after a biopsy and a crp of 111 and began 60 mg...

Thank you all for giving me insight into your journeys. I was diagnosed by my op...

Toast4

•3 years ago

17 Replies

Covid: How a £20 gadget could save lives

Not sure if this has already been posted but thought it was very interesting. Link to BBC site below. One of the mysteries of Covid-19 is why oxygen levels in...

Not sure if this has already been posted but thought it was very interesting. Li...

Bcol

•3 years ago

31 Replies

GCA

I have been on Prednisolone since August 2019 for just GCA, I started on 40mg and have gradually got down to 2mg, I have started to notice pains in the groin...

I have been on Prednisolone since August 2019 for just GCA, I started on 40mg an...

Phed

•3 years ago

40 Replies

Flare

I’ve been reducing my Prednisone from 4mg to 3.5 mg using the DSNS method. I’m now down to 3.5 for the last two weeks. I’ve been noticing little signs of neck...

I’ve been reducing my Prednisone from 4mg to 3.5 mg using the DSNS method. I’m n...

Blackcatlover

•3 years ago

9 Replies

Could I have GCA as a 26-year old male?

Hi, Since 9 days, I have been developing bulging temporal arteries on both temples (they're suddenly very visible with also a very visible pulse). This started...

Hi, Since 9 days, I have been developing bulging temporal arteries on both templ...

denote

•3 years ago

11 Replies

First flame

No, this has nothing to do with my first girlfriend. I just recently experienced my first flame. Youch! What a horrible week. Now I appreciate what you all...

No, this has nothing to do with my first girlfriend. I just recently experience...

winfong

•3 years ago

37 Replies

Low sodium levels anyone?

I started to feel headaches and a bit woozy when I reduced from 3mg to 2 of Pred, so my GP has increased me back up to thr original 15mg, reducing soon to 10...

I started to feel headaches and a bit woozy when I reduced from 3mg to 2 of Pred...

Doraflora

•3 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2021

CBD oil

Would this help sore/tight muscles or is it contraindicated for PMR?

Taper strategy

Time to Lose Weight?

Help and advice please!

Privigen reaction

GCA new area of tenderness on touch

Flare up

Balance and muscle strength issues

Can Adrenal Glands Work Again After 12 years?

PMR and Covid vaccine experience

O/d'd on Pred.

Is this normal?

Hot water bottles

Taking 20mg of hydrocortisone daily, getting Pain through back and bottom of ribs and when taking deep breath.Is tis normal?

Please

P M R

Blue Badge Assessment

High calcium level s

Covid Vacination

Flare after COVID vaccine

Covid jab update

Gray dolphin is the gray ghost erroneously posted.

GCA Vancouver Island BC Canada Introduction

Covid: How a £20 gadget could save lives

GCA

Flare

Could I have GCA as a 26-year old male?

First flame

Low sodium levels anyone?

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