Hi, I have been suffering from, firstly polymyalgia, and then GCA for nearly 12 years now. I have recently been told that I have been on prednisolone for more years than was necessary and that I should slowly withdraw from prednisolone which I have been doing. I have reached 6 mgs, from around 13mgs, I now appear to have hit a wall. I get very tired, have neck / shoulder pains , some stomach pains and feel sick etc. this is after 4 weeks of staying at 6mgs. I am now told my adrenal glands might never work again and I might just have to sit at 7 to 8 mgs for the rest of my life.
Does anyone else have experience about adrenal glands and whether they may or may not work again after such a long period of them not energizing.