Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,601 members • 38,721 posts

All posts for October 2020

naturopathic medicine & PMR

Has anyone seen a naturopath for PMR? If so, what were the results?

blueisgreen

•4 years ago

1 Reply

Kefir evidence

I have started drinking kefir to help with gastritis. Have others found that this helps? Does anyone know of credible studies which give evidence that it...

I have started drinking kefir to help with gastritis. Have others found that thi...

ConstanceD

•4 years ago

13 Replies

COOLIEF (Cooled Radiofrequency Ablation)

Has anyone had COOLIEF (Cooled Radiofrequency Ablation) for an arthritic hip or knee? A man on another forum had one instead of knee or hip replacement and...

Has anyone had COOLIEF (Cooled Radiofrequency Ablation) for an arthritic hip or...

pegpowell

•4 years ago

1 Reply

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Raised vitamin B12 - has anyone found this as an aspect of PMR

For a good five years I would say I have registered very high Vitamin B12 levels (2000ng/1 when the mean level ranges between 200 and 960) and no doctor or...

For a good five years I would say I have registered very high Vitamin B12 levels...

Alchemy8

•4 years ago

9 Replies

Tinnitus

Hi, has anyone had a problem with tinnitus whilst having PMR/GCA &/or on Prednisolone? I’m a long term sufferer but only very mildly but recently it’s been...

Hi, has anyone had a problem with tinnitus whilst having PMR/GCA &/or on Prednis...

Lyndaki

•4 years ago

34 Replies

It’s the little things - thank you

Just wanted to say thank you to the person on here who suggested a pill cutter that works on the tiny 1mg prednisolone. I’m reducing using the DSNS method and...

Just wanted to say thank you to the person on here who suggested a pill cutter t...

Janet57

•4 years ago

3 Replies

Apologies before I even start!

I’ve just spent almost an hour reading “linked “ posts regarding increasing Pred due to a flare but I can’t find my answer anywhere! I have been on 5mg for...

I’ve just spent almost an hour reading “linked “ posts regarding increasing Pred...

Janann25

•4 years ago

9 Replies

Methotrexate and prednisone

I developed severe osteoporosis and broke multiple bones due in part to the steroid use. So it is for this reason that my rheumatologist and I are trying to...

I developed severe osteoporosis and broke multiple bones due in part to the ster...

Amkoffee

•4 years ago

16 Replies

Coming off prednisolone

What symptoms have people experienced when coming off prednisolone? I started on 60mg in January due to suspected GCA (discounted after biopsy) and PMR. Once...

What symptoms have people experienced when coming off prednisolone? I started on...

fishers63

•4 years ago

6 Replies

Hopefully a quick question

Here I am Friday afternoon and potentially no support/back up until Monday. Today I started10mg/day Pred' reduced from 15mg.( yes,I'm aware of the 10% rule but...

Here I am Friday afternoon and potentially no support/back up until Monday. Toda...

yorkieme

•4 years ago

15 Replies

Blood Donation ?

Is there any reason not to donate blood while on prednisone for PMR?

kimsaunsc

•4 years ago

19 Replies

Update on my neurology appointment- not sure where to turn next?

Went to a neurologist yesterday and it was the worst appointment I’ve ever had! Said it could be an extension of Covid because my arms and legs were tingly and...

Went to a neurologist yesterday and it was the worst appointment I’ve ever had! ...

Bro-

•4 years ago

6 Replies

How does one transition between taking pred once a day to split dose?

I was diagnosed in February with very high CRP and and presented with the typical "one size fits all" medical prescription of 15mg tapering. I felt most...

I was diagnosed in February with very high CRP and and presented with the typica...

Alchemy8

•4 years ago

16 Replies

Has anyone heard of Allopurinol causing gastritis?

Allopurinol

ConstanceD

•4 years ago

12 Replies

Looking for the golden time to take pred

I was interested in responses to Crochety's post yesterday advising to take pred at 1-2 a.m. I don't think I could manage this either by staying up late or by...

I was interested in responses to Crochety's post yesterday advising to take pred...

Marijo1951

•4 years ago

35 Replies

GCA Symptoms

I was diagnosed with PMR in June and have tapered from 20mg to 9mg of prednisone. In the past two weeks I have had a new pain in my right temple on 3 occasions...

I was diagnosed with PMR in June and have tapered from 20mg to 9mg of prednisone...

Trident58

•4 years ago

40 Replies

Pain following tapering

Advice please . Diagnosed with HCA sept 2019 and tapered to zero August 2020. Now have pain in arms, back of neck on one side , thumb joint and a general...

Advice please . Diagnosed with HCA sept 2019 and tapered to zero August 2020. No...

Gurufjm

•4 years ago

5 Replies

Tingling in feet and hands - could it be from 60 mg prednisone or more related to GCA symptoms?

I have been on 60 mg of prednisone for 9 days and I’m experiencing painful tingly feet and hands along with my continued headaches. . I’m thinking it’s maybe...

I have been on 60 mg of prednisone for 9 days and I’m experiencing painful tingl...

Bro-

•4 years ago

4 Replies

Update on my anger about (ex)rheumatologist

I hope I am allowed to make a further moan. After two unsuccessful attempts to obtain a copy of my (ex)rheumatologist’s report, I had to obtain it from my GP....

I hope I am allowed to make a further moan. After two unsuccessful attempts to o...

ChinaWuntoo

•4 years ago

5 Replies

I wish I’d.....

I wish I’d watched my weight from the very beginning : I put on 3/4 stone before I realised and now it’s so hard to lose: what Other “I wish I’d” do members...

I wish I’d watched my weight from the very beginning : I put on 3/4 stone befor...

Maisiek

•4 years ago

29 Replies

Bi Carb of Soda

I just saw this - and know it has been discussed before - anyway thought we could pick up the subject again:...

I just saw this - and know it has been discussed before - anyway thought we coul...

Slosh

•4 years ago

29 Replies

Occasional sore tongue

It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with...

It seems my tongue and sometimes the roof of my mouth feel like I burnt myself w...

Karenjaninaz

•4 years ago

16 Replies

Problem with Patient Access

I have just registered with Patient Access and can't get to my patient record, apart from medications and allergies. Getting through to GP surgery to query...

I have just registered with Patient Access and can't get to my patient record, a...

maria40

•4 years ago

26 Replies

Membership exclusive: Michael Mosley talk on weight loss

We're very excited to announce that doctor and leading health journalist, Michael Mosley (author of the hugely successful 5:2 diet, Fast diet and now Fast 800...

We're very excited to announce that doctor and leading health journalist, Michae...

Fran_Benson

Partner•4 years ago

8 Replies

Nerve pain?

Hello wise ones et al, Another day another problem. First the Osteoporosis diagnoses and now this. I have just started cycling 6mg / 5.5mg for about a...

Hello wise ones et al, Another day another problem. First the Osteoporosis di...

Slosh

•4 years ago

13 Replies

Adrenal Glands functioning test?

Has anyone had a blood test to determine whether or not their adrenal glands are functioning while tapering off prednisolone?

Has anyone had a blood test to determine whether or not their adrenal glands are...

Pr0jection

•4 years ago

11 Replies

Very low dose steroids pain returning

After 11 months and gradually reducing prednisone from 30 mg a day to 2mg as well as now taking methotrexate and symptoms of PMR all but disappeared I am now...

After 11 months and gradually reducing prednisone from 30 mg a day to 2mg as wel...

alysonkerry-

•4 years ago

22 Replies

Tapering Regime

I am at my wit's end! My G.P. won't supply 2.5mg tablets prednisolone so I can reduce to 27.5mg on Thursday because he says I should reduce by 5mg...

I am at my wit's end! My G.P. won't supply 2.5mg tablets prednisolone so I can ...

Crossstitchfanatic

•4 years ago

12 Replies

Splitting Pills

Is there any magic to cutting the pills? I have 1mg but they are too thin for my pill cutter.

Is there any magic to cutting the pills? I have 1mg but they are too thin for m...

Pippah45

•4 years ago

20 Replies

Swimming

I would be interested to know what you think about going swimming in the local swimming pool, firstly because of the Covid and secondly because of being on...

I would be interested to know what you think about going swimming in the local s...

Fitch1

•4 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2020

naturopathic medicine & PMR

Kefir evidence

COOLIEF (Cooled Radiofrequency Ablation)

Raised vitamin B12 - has anyone found this as an aspect of PMR

Tinnitus

It’s the little things - thank you

Apologies before I even start!

Methotrexate and prednisone

Coming off prednisolone

Hopefully a quick question

Blood Donation ?

Update on my neurology appointment- not sure where to turn next?

How does one transition between taking pred once a day to split dose?

Has anyone heard of Allopurinol causing gastritis?

Looking for the golden time to take pred

GCA Symptoms

Pain following tapering

Tingling in feet and hands - could it be from 60 mg prednisone or more related to GCA symptoms?

Update on my anger about (ex)rheumatologist

I wish I’d.....

Bi Carb of Soda

Occasional sore tongue

Problem with Patient Access

Membership exclusive: Michael Mosley talk on weight loss

Nerve pain?

Adrenal Glands functioning test?

Very low dose steroids pain returning

Tapering Regime

Splitting Pills

Swimming

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