Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for February 2018

Weather

Hi to fellow PMR owners, I am wondering if weather effects this disease. Is warm weather with more humidty or cool weather with less have any impact on the...

Hi to fellow PMR owners, I am wondering if weather effects this disease. Is warm...

Jeniep

•6 years ago

10 Replies

Day..

This 13mg isn't hacking it..useless hands every morning...plus more stiffness in other areas than usual...almost at the "really pissed off and cry in the...

This 13mg isn't hacking it..useless hands every morning...plus more stiffness in...

daworm

•6 years ago

25 Replies

Where do I go from here?

Well, I went for my long awaited 6 month review with the rheumatologist last week - but might just as well have saved on the petrol and the parking fees for...

Well, I went for my long awaited 6 month review with the rheumatologist last wee...

Janann25

•6 years ago

59 Replies

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Methotrexate for GCA

Does anyone take methotrexate for GCA? I was on prednisone for 2 1/2 years. My new Dr. wanted me off of it so I took methotrexate along with the prednisone. I...

Does anyone take methotrexate for GCA? I was on prednisone for 2 1/2 years. My n...

bonnielm1

•6 years ago

11 Replies

“Worry often gives a small thing a big shadow.”

Ok, not so much worry, as concern... I tapered down from 70 mg to 65 mg, last Wednesday, with no noticeable changes in the way I felt. However, Friday night...

Ok, not so much worry, as concern... I tapered down from 70 mg to 65 mg, last We...

Hidden

•6 years ago

22 Replies

Is it safe to take oral B12 supplements AND inject every 3 months ?

My mum was diagnosed as having severe B12 deficiency some months ago and now receives B12 injections every quarter but I wondered if extra supplements might...

My mum was diagnosed as having severe B12 deficiency some months ago and now rec...

spiritusuk69

•6 years ago

6 Replies

Looking for a doctor that has treated Pmr in someone in their early 50 or any Pmr age in south Florida.

Will like to deal with someone that’s has clue about pmr

Mjhollywood1

•6 years ago

3 Replies

Another detour

Hi all, I took the plunge and started Actemra in January (PMR in 2011, then GCA in May 2018). As I started tapering the Prednisone my resting heart rate...

Hi all, I took the plunge and started Actemra in January (PMR in 2011, then GCA ...

PMR2011

•6 years ago

9 Replies

A great morning :)

Well this morning I went to the range with a friend. Took a few rifles to play with:) A fer rounds with the Marlin 357, took out a steel plate at 100 meters....

Well this morning I went to the range with a friend. Took a few rifles to play w...

JulianJ

•6 years ago

31 Replies

2mg pred fatigue, running on empty

Hi folks, I’m here looking for thoughts about lack of energy. After 4.5 years of PMR, I am tapered (third time) to 2mg pred. I have very little pain, and...

Hi folks, I’m here looking for thoughts about lack of energy. After 4.5 years o...

1Purplecrow

•6 years ago

40 Replies

A nice summary on reducing Pred

https://www.cssassociation.org/patient-stories-reader/items/reducing-steroids-while-on-a-low-dose-activating-the-adrenal-glands-by-marian-mesker.html

https://www.cssassociation.org/patient-stories-reader/items/reducing-steroids-wh...

Insight329

•6 years ago

13 Replies

Can Prednisolone mask Arthritis?

Hi, looking for any members with similar experience who have advice. Diagnosed with PMR in July 2015 and GP mentioned " a bit of arthritis in my hip". 15mg...

Hi, looking for any members with similar experience who have advice. Diagnosed w...

Valnvaughan

•6 years ago

13 Replies

Newbie

My first post! Diagnosis of pmr 2 weeks ago. 15mg pred worked like magic after 6 months pain. After 6 days asked for a reduction as I wasn't sleeping and...

My first post! Diagnosis of pmr 2 weeks ago. 15mg pred worked like magic after 6...

Q-owl

•6 years ago

11 Replies

Unable To Take My Advice

Hello and thank you to everyone who has given advice about my friend who has recently been provisionally diagnosed with GCA. My recent post was called...

Hello and thank you to everyone who has given advice about my friend who has rec...

ValFF53

•6 years ago

10 Replies

Advice and giant cell concerns

Hi This is my first post new here! I'm 57 and was diagnosed with polymialgia in sept 17. It was particularly bad in the beginning. I've got a stack of...

Hi This is my first post new here! I'm 57 and was diagnosed with polymialgia ...

Debeedee

•6 years ago

8 Replies

SIBO anyone else have this in addition to PMR?

My GI decided with all my surgeries to test me. To say it didn’t go welll was an understatement. I called for results and the woman said my baseline was 30 and...

My GI decided with all my surgeries to test me. To say it didn’t go welll was an...

klairv0yant

•6 years ago

8 Replies

Guess Who's Coming to Dinner, and Breakfast, and Dinner, and Breakfast, and Dinner...

Since Grandma was so utterly gutted by the admission that she would not actually be "capable" of caring for Max for an entire weekend... (Stupid f@!*ing...

Since Grandma was so utterly gutted by the admission that she would not actually...

Hidden

•6 years ago

39 Replies

To taper tonight or not to taper.

I have been doing quite well with my Taper. I went from 8 to 7 on PMRpro's 38 day taper that ended on Feb. 2. I had a pretty smooth ride. On Feb. 3 I took...

I have been doing quite well with my Taper. I went from 8 to 7 on PMRpro's 38 d...

Hindags

•6 years ago

17 Replies

misdiagnosed for 2.5 years

hi, so good to have found you all.... i suddenly developed debilitating pain about 2.5 years ago... after a year of going back and forth to doctors (never the...

hi, so good to have found you all.... i suddenly developed debilitating pain abo...

caterpillar

•6 years ago

20 Replies

Tapering question

Tapering from 4mg to 3mg, going well EXCEPT, feel 'off,' NOT inflammation, just off my game and edgy. Anyone have input? Thanks! PMRJ

Tapering from 4mg to 3mg, going well EXCEPT, feel 'off,' NOT inflammation, just ...

PMRJ

•6 years ago

32 Replies

Can anyone help me with a question about PMR?

Hi there, i was just diagnosed with PMR after 6 months of of pain and fatigue. I have been on meloxicam 7.5g/anti inflammatory pill since Jan. 16th because i...

Hi there, i was just diagnosed with PMR after 6 months of of pain and fatigue. I...

englandgirl

•6 years ago

7 Replies

Dosing Prednisone every other day.

That means you double your dose and skip a day of prednisone every other day. I heard it will raise cortisol level and less moon face. Any input on this?

That means you double your dose and skip a day of prednisone every other day. I...

Leeleep

•6 years ago

7 Replies

Rheumatologist

What’s with the rheumatologist people ? Blooming heck if they had the pain ! Would not wish that on anyone but maybe just for 1 hour . That’s a bit wicked of...

What’s with the rheumatologist people ? Blooming heck if they had the pain ! Wo...

Chrob

•6 years ago

10 Replies

Pain medication

I have never tried any medication for the pain of PMR, except an occasional Tylenol, which dies not have much effect. I thought pain meds were ineffectual for...

I have never tried any medication for the pain of PMR, except an occasional Tyle...

Klah

•6 years ago

7 Replies

No real change with the rheumy!!!

I thought my consultant was one of the wiser ones even though I've only seen her twice in 3 years....but I now realise she is one of the '2 year brigade!!'...

I thought my consultant was one of the wiser ones even though I've only seen her...

altywhite

•6 years ago

16 Replies

Help!

Can I ask a question - beyond frustrated/disappointed with all this - as are most people at some stage I know - but last April/May I was alternating 5mg and...

Can I ask a question - beyond frustrated/disappointed with all this - as are mos...

powerwalk

•6 years ago

46 Replies

8 Months On from Positive GCA Biopsy

40mg pred for 4 weeks. 30mg for 1 week. then down to 20mg. 3 unsuccessful tapers to 15mg dropping 2.50mg/ fortnight. Back to 20mg each time. Now holding at...

40mg pred for 4 weeks. 30mg for 1 week. then down to 20mg. 3 unsuccessful taper...

Hidden

•6 years ago

10 Replies

Pain relief

Hi, what do most folk use as pain relief for PMR?

AmberAliona

•6 years ago

12 Replies

Feel I don't really understand my illness ?

I need to ask this question as I m new to this site and have learnt a lot but still not quiet sure how GCA is going to effect my life ? During the week I've...

I need to ask this question as I m new to this site and have learnt a lot but s...

Lucylooloo

•6 years ago

25 Replies

Sulfasalazine

Hi All Feeling a bit of a failure at the moment. My Rheumy has added to my diagnosis of GCA/PRM , Seronegative Inflammaroty Arthriis and Fibro ..... So...

Hi All Feeling a bit of a failure at the moment. My Rheumy has added to my diagn...

lesley2015

•6 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2018

Weather

Day..

Where do I go from here?

Methotrexate for GCA

“Worry often gives a small thing a big shadow.”

Is it safe to take oral B12 supplements AND inject every 3 months ?

Looking for a doctor that has treated Pmr in someone in their early 50 or any Pmr age in south Florida.

Another detour

A great morning :)

2mg pred fatigue, running on empty

A nice summary on reducing Pred

Can Prednisolone mask Arthritis?

Newbie

Unable To Take My Advice

Advice and giant cell concerns

SIBO anyone else have this in addition to PMR?

Guess Who's Coming to Dinner, and Breakfast, and Dinner, and Breakfast, and Dinner...

To taper tonight or not to taper.

misdiagnosed for 2.5 years

Tapering question

Can anyone help me with a question about PMR?

Dosing Prednisone every other day.

Rheumatologist

Pain medication

No real change with the rheumy!!!

Help!

8 Months On from Positive GCA Biopsy

Pain relief

Feel I don't really understand my illness ?

Sulfasalazine

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