Feeling a bit of a failure at the moment.
My Rheumy has added to my diagnosis of GCA/PRM , Seronegative Inflammaroty Arthriis and Fibro .....
So although uncomfortable, I was down to 5.5 mgs preds, my ESR was up so I was told I must go up to 7mgs - which I have and this has made no real difference to pain in my body. I did have temple pain following a holiday and virus so went up to 10mgs for a week then back to 7mg. I h ave been told I must stay at 7 and not reduce until I see her again in 3 months.
I am constantly fatiqued.
My problem is that they keep trying me with addiditonal meds, Methotrexate, Leflunomide, Azathioprine and now Sulfasalazine. Each has given me awful side effects, headache, upset stomach and Nausea. I have just stopped the Sulfasalazine have had a headache for two weeks and the last two days like a severe migrane, plus nausea, I stopped the tablets and within 24 hours the headache had subsided.
I was prescribed Amitriptyline (20mgs) but can only manage 5mgs a night without feeling completely depressed (even though it is an antidepressant) and spaced out.
So my question is, has anyone tried all these tablets unsuccessfully and eventually found one that suits them. Each time I go and see the Rheumy I have another course of tablets prescibed, I try to be positive, but the tablets should not make be feel worse.
Would be grateful for any opinions or advice ....