Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,223 members • 23,393 posts

All posts for January 2024

Can Anyone Please Advise On B12 Related Tests To Have If Normal B12 Testing is in range.

Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for...

Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is i...

thyreoidea

•5 months ago

6 Replies

Bone profile?

Hi, could anyone tell me what the doctor means by bone profile? Recently had tests for B12 deficiency, got a telephone call a few days later asking me to come...

Hi, could anyone tell me what the doctor means by bone profile? Recently had tes...

Kayls32

•5 months ago

9 Replies

injection type

Not sure if I’m allowed to ask this, apologies if not. Dr has agreed 6 loading doses then 3 monthly B12 injections which will be Hydroxocobalamin this...

Not sure if I’m allowed to ask this, apologies if not. Dr has agreed 6 loading...

Fluffyone

•5 months ago

13 Replies

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good news, I hope this helps others

went to GP yesterday, suffering badly with migraines and peripheral neuropathy plus extreme fatigue and basically feeling the same as I felt before I started...

went to GP yesterday, suffering badly with migraines and peripheral neuropathy p...

Countrylou

•5 months ago

20 Replies

Customs duty on methylcobalamin

Hi. Can anyone tell me if there is now a duty to pay on b12/methyl etc.,? I've just received an order from Germany. I was expecting the 20% vat but not a...

Hi. Can anyone tell me if there is now a duty to pay on b12/methyl etc.,? I...

Missd66

•5 months ago

21 Replies

1 month delay for orders Methylcobalamin with Arnika

Hi, I have been SI for about 5 years. Recently ordering Methylcobalamin ampulles from Arnika has become more difficult. Last time it took 2 weeks after paying...

Hi, I have been SI for about 5 years. Recently ordering Methylcobalamin ampulles...

Munchkinie

•5 months ago

1 Reply

How many loading doses

Hi, I was diagnosed with PA just before Christmas and am struggling to get any help or information from my GP. I have just had my final loading does number 6,...

Hi, I was diagnosed with PA just before Christmas and am struggling to get any h...

JessB94-

•5 months ago

5 Replies

Llais - Feedback on NHS in Wales

Hi All, Just wondered if any forum members in Wales had used Llais. Llais replaced the seven Community Health Councils in Wales. Llais...

Hi All, Just wondered if any forum members in Wales had used Llais. Llais rep...

Sleepybunny

•5 months ago

1 Reply

Anxiety relief

Other than getting the right amount of B12, has anyone found something that helps with the anxiety aspects of deficiency and PA? Medication or therapy. On...

Other than getting the right amount of B12, has anyone found something that help...

Pa234aw

•5 months ago

9 Replies

B12 patches

At present I get B12 injection every 8 weeks, however I feel I need more as I am still suffering all the symptoms of B12 deficency/PA. I have found OmniCo B12...

At present I get B12 injection every 8 weeks, however I feel I need more as I am...

Whiskymack

•5 months ago

8 Replies

Peripheral neuropathy

Just researching vitamin K2 and found this..... Peripheral neuropathy (PN) Diabetic peripheral neuropathy is a frequent and severe complication of...

Just researching vitamin K2 and found this..... Peripheral neuropathy (PN) D...

tomdickharry

•5 months ago

13 Replies

New response on BMJ B12 article

Hi All, There was a new response on recent BMJ article B12 Deficiency by B. Wolffenbuttel by a haematologist. Just wondered what people thought. Link to...

Hi All, There was a new response on recent BMJ article B12 Deficiency by B. Wo...

Sleepybunny

•5 months ago

9 Replies

So what IT will be in the future

Hello, Iam new here. Iam from Slovakia and Been recently diagnosed with PA. That is Okey I have two little children common life as aby other human being. I am...

Hello, Iam new here. Iam from Slovakia and Been recently diagnosed with PA. That...

Hugo17776

•5 months ago

21 Replies

B12 deficiency

I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I...

I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 we...

Michbell45

•5 months ago

3 Replies

Trapped nerve/ shoulder pain

last July I was diagnosed with low b12, I started on a series of 6 injections before starting on a three monthly top up regime. In that time I also received...

last July I was diagnosed with low b12, I started on a series of 6 injections be...

J200george

•5 months ago

7 Replies

PAS blog - Dr Chandy

Hi All, Just posting this in case not posted already. https://pernicious-anaemia-society.org/pernicious-anaemia/dr-joseph-chandy-kayyalackom-a-reflection/

Hi All, Just posting this in case not posted already. https://pernicious-anaem...

Sleepybunny

•5 months ago

4 Replies

Anyone else have severe daily heartburn?

Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe...

Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also P...

ReallyWondering

•5 months ago

8 Replies

Can anyone recommend a good haematologist or Neurologist for pernicious anaemia

Hi can anyone recommend a haematologist or neurologist who has a good understanding of pernicious anaemia anywhere in England? (Needs to be NHS as GP said they...

Hi can anyone recommend a haematologist or neurologist who has a good understand...

Rett713

•5 months ago

15 Replies

Prep of Methylcobalamin Powder For Injection?

Would anyone who does their own preparation of powder Methylcobalamin be able to explain how one goes about it, including doing the dosage measurements...

Would anyone who does their own preparation of powder Methylcobalamin be able to...

B12again

•5 months ago

29 Replies

Peeing away the Meth

Hello all, If I am taking SE on M, W, & F just one injection of 5mg Methylcobalamin at say around 9:00 am on each of those days. To me, this does not seem like...

Hello all, If I am taking SE on M, W, & F just one injection of 5mg Methylcobala...

MrJustatip

•5 months ago

5 Replies

So apparently I'm normal...but I'm definitely perplexed!

Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with...

Having twice weekly injections since my loading dose in mid December as I still ...

Myoldcat

•5 months ago

24 Replies

live blood analysis …migraines

Around 7 years ago following blood tests for TATT and various other ailments, it was found that I had a low B12 (156) and GP agreed to prescribe the usual...

Around 7 years ago following blood tests for TATT and various other ailments, it...

Countrylou

•5 months ago

6 Replies

where to buy in batches

Hi , I’m interested in self injecting my B12 . Can someone please recommend a reliable and secure buyer please ( UK )

Hi , I’m interested in self injecting my B12 . Can someone please recommend a re...

Wineloverx

•5 months ago

9 Replies

Is this classed as low folate?

I'm a little confused about my blood test results. I'm not sure if I am posting in the right group! MCH and MCHC were slightly high which can indicate...

I'm a little confused about my blood test results. I'm not sure if I am posting ...

tnefeh

•5 months ago

10 Replies

Over heating

I have been suffering from overheating since I had covid in 2022, thought it was my HRT tablets but wasn't (doctor has since taken me off them, another story)...

I have been suffering from overheating since I had covid in 2022, thought it was...

pramela

•5 months ago

16 Replies

Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia

I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does...

I assume this is the root cause of my pernicious anemia? I have an appointment t...

ReallyWondering

•5 months ago

25 Replies

I am now able to tolerate antibiotics again after my nerves healed

Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help...

Hello! I just want to give this update about my situation. I hope people on her...

Whoa182

•5 months ago

21 Replies

Freezing Temperatures

Does anyone know if below freezing temperatures negatively affect ampules of B12? My latest order from Canada was left in the mailbox overnight and it was a...

Does anyone know if below freezing temperatures negatively affect ampules of B12...

MoKayD

•5 months ago

2 Replies

Antibiotics and Increasing B12

Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8...

Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) f...

LynetteinUSA

•5 months ago

9 Replies

Every other day injections UK

There have been references on here of the possibility of having B12 injections every other day when neurological symptoms existing (or persist) by can someone...

There have been references on here of the possibility of having B12 injections ...

Pa234aw

•5 months ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2024

Can Anyone Please Advise On B12 Related Tests To Have If Normal B12 Testing is in range.

Bone profile?

injection type

good news, I hope this helps others

Customs duty on methylcobalamin

1 month delay for orders Methylcobalamin with Arnika

How many loading doses

Llais - Feedback on NHS in Wales

Anxiety relief

B12 patches

Peripheral neuropathy

New response on BMJ B12 article

So what IT will be in the future

B12 deficiency

Trapped nerve/ shoulder pain

PAS blog - Dr Chandy

Anyone else have severe daily heartburn?

Can anyone recommend a good haematologist or Neurologist for pernicious anaemia

Prep of Methylcobalamin Powder For Injection?

Peeing away the Meth

So apparently I'm normal...but I'm definitely perplexed!

live blood analysis …migraines

where to buy in batches

Is this classed as low folate?

Over heating

Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia

I am now able to tolerate antibiotics again after my nerves healed

Freezing Temperatures

Antibiotics and Increasing B12

Every other day injections UK

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