Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,211 members • 23,379 posts

All posts for January 2024

Doubling Dose For Hypothyroidism?

Hi, I know this is not the thyroid thread. I’m here because I’m B12 deficient, SI with hydroxocobalamim. But because it’s an autoimmune problem I sure a number...

Hi, I know this is not the thyroid thread. I’m here because I’m B12 deficient, S...

B12again

•5 months ago

5 Replies

USA Travel

I’m travelling to the US. Anything I should know about bringing in B12 SI supplies. And can I buy them there? Thanks.

I’m travelling to the US. Anything I should know about bringing in B12 SI suppl...

MrsTuft

•5 months ago

8 Replies

Folic acid and B12 deficiency blood test

Hi I wonder if someone could give me some advice please I tried a vitamin B complex supplement for 3 days I was only able to take it for 3 days as it made me...

Hi I wonder if someone could give me some advice please I tried a vitamin B comp...

mully

•5 months ago

5 Replies

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Thought about Intrinsic factor

Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor....

Okay, so I've been thinking a lot about this, but if you no longer have intrinsi...

PaintLadie

•5 months ago

18 Replies

Vestibular Neuritis

Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self...

Hi everyone, I woke up on New Year's Day with the room spinning around me. Very...

Ipsofacto01

•5 months ago

45 Replies

At What Level Is Low B12 Treated?

Hi! I recently had some blood tests and my B12 came back low at 180, normal range 197-771. My folate was 4.7, normal range 3.9-26.8. Full blood count and...

Hi! I recently had some blood tests and my B12 came back low at 180, normal ran...

Hidden

•5 months ago

20 Replies

How quickly would B12 Levels drop post injection?

Hello, I had 6 loading doses of B12 in September following a B12 level of <145 (test doesn’t specify below that cut off) I had some symptoms including muscle...

Hello, I had 6 loading doses of B12 in September following a B12 level of <145 ...

Sparkleros

•5 months ago

6 Replies

Marie

My doctors have just done B12 and folic acid blood tests, I was diagnosed in 2002 with pernicious anaemia. I have just been told that both results are high and...

My doctors have just done B12 and folic acid blood tests, I was diagnosed in 200...

Royalblue1

•5 months ago

12 Replies

Injection

I still have an 8 week injection of Doctor or nurse plus I injection every two weeks myself to see if condition improver more than it was..does any one else...

I still have an 8 week injection of Doctor or nurse plus I injection every two ...

Mozza127

•5 months ago

1 Reply

Is 3 times enough? And inherit.

I've been si M,W & F for couple months now and beginning to think it's not enough. Not sure if this happens to anyone else, but I get very tired, and weak...

I've been si M,W & F for couple months now and beginning to think it's not enoug...

MrJustatip

•5 months ago

31 Replies

Panpharma injections sting

Hi all. I used Rotoxmedica to self inject for around 2 years and never had any problems. I now use the Panpharma version, which is supposed to be the same....

Hi all. I used Rotoxmedica to self inject for around 2 years and never had any ...

KBird01

•5 months ago

37 Replies

Consultant doesn’t feel it’s necessary to find cause of gastritis/gastropathy following endoscopy. Does this sound right?

Hi everyone As per the subject heading I’m aware that (from past experience) I’m probably expecting too much. I do feel though that there MUST be other...

Hi everyone As per the subject heading I’m aware that (from past experience) I...

pj16

•5 months ago

7 Replies

CT scan instead of gastroscopy / colonoscopy with all PA tests normal

My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s...

My Active B12 was just about into the sufficient range. My H Pylorii was negativ...

Applethorpe

•5 months ago

7 Replies

Tablets v Injections

Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets....

Hi, After a few years of monitoring my B12 levels are now low enough for my GP t...

Redmusic

•5 months ago

3 Replies

Low Folate

Hello, I was recently told I have low folic acid. I just wondered if anyone has experienced similar symptoms to mine. I have been given 5mg folate for 4 months...

Hello, I was recently told I have low folic acid. I just wondered if anyone has ...

Atheo82

•5 months ago

33 Replies

Having Private Blood Tests Done. Asking for Peer Review.

I am going to have some private blood tests done. Not worth discussing what is needed with a physician who has no idea what is needed. Note: I did figure out...

I am going to have some private blood tests done. Not worth discussing what is n...

WIZARD6787

•5 months ago

6 Replies

Hello!

Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a...

Hi there! Thanks for allowing me to join. I am new to this group & have not bee...

Hidden

•5 months ago

5 Replies

Spinal stenosis & b12 deficiency

Hi, Have just been diagnosed with severe spinal stenosis. I have reasons to believe it has a congenital aspect with me so that would eliminate b12 deficiency....

Hi, Have just been diagnosed with severe spinal stenosis. I have reasons to beli...

Litatamon

•5 months ago

28 Replies

Kefir for gut problems

Hello lovely people, I have recently had a flare up of gut problems. Does anyone drink kefir milk for gut issues and does it help? I have 10 weekly...

Hello lovely people, I have recently had a flare up of gut problems. Does anyo...

Mrsmr

•6 months ago

49 Replies

iron panel test

Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?

Would it be best to do iron panel test as I am now free of B12 and b complex or...

Fluffyone

•6 months ago

1 Reply

feelings of palpitations in torso and faint ..

I am new to this sight . Having B12 every 10 weeks since 2019 .. took 2 years to feel better and lose majority of symptoms. Diagnosed with IFA deficiency.....

I am new to this sight . Having B12 every 10 weeks since 2019 .. took 2 years to...

Altinkum50

•6 months ago

2 Replies

IBS and B12

good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for...

good evening, I hope everyone is doing well I am wondering about the link bet...

Ctadds1

•6 months ago

12 Replies

Apohealth.de Panpharma - out of stock

Hi, Just tried to order my hydroxycobalamin on the apohealth.de site and they are all sold out. Was looking at amazon.de and they don't see to stock the...

Hi, Just tried to order my hydroxycobalamin on the apohealth.de site and they a...

JanCymru

•6 months ago

18 Replies

NICE Guidelines Delay?

Does anyone have any information about the delay for the publication date of the new NICE B12 guidelines to be moved from next week to early March? I need the...

Does anyone have any information about the delay for the publication date of the...

RoseFlowerDew

•6 months ago

2 Replies

nhs stopping b12 injections

I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above...

I have heard that nhs are stopping b12 injections due to the work load on surger...

Triggert5656

•6 months ago

81 Replies

Blood results

Have recently had a private blood test done to check my B12, results were 47.4 (range 37.5-188) It was an active B12 test. Notes from doctor were it is...

Have recently had a private blood test done to check my B12, results were 47.4 (...

Kayls32

•6 months ago

15 Replies

best place for b12 ampoules

well now I know my out of date stock isn’t worth using where are people buying their b12 for injections? I last bought before the final brexit from Germany but...

well now I know my out of date stock isn’t worth using where are people buying t...

Mag999

•6 months ago

5 Replies

rotexmedica bbe dates

hi I have several boxes of b12 ampoules which are best before 02/24. Is it safe to carry on using it? Thanks.

hi I have several boxes of b12 ampoules which are best before 02/24. Is it safe ...

Mag999

•6 months ago

5 Replies

4 week trial results.

I reviewed in depth the rationale for the amount of B12 that is effective and found it to not be based on credible science, specifically retention times based...

I reviewed in depth the rationale for the amount of B12 that is effective and fo...

WIZARD6787

•6 months ago

12 Replies

Newly diagnosed with low VitB12

Went to the GP a few months back with menopause symptoms. Mainly sleep issues, anxiety, brain fog and fatigue. The doc ordered a full fasting blood count which...

Went to the GP a few months back with menopause symptoms. Mainly sleep issues, a...

BigH70

•6 months ago

12 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2024

Doubling Dose For Hypothyroidism?

USA Travel

Folic acid and B12 deficiency blood test

Thought about Intrinsic factor

Vestibular Neuritis

At What Level Is Low B12 Treated?

How quickly would B12 Levels drop post injection?

Marie

Injection

Is 3 times enough? And inherit.

Panpharma injections sting

Consultant doesn’t feel it’s necessary to find cause of gastritis/gastropathy following endoscopy. Does this sound right?

CT scan instead of gastroscopy / colonoscopy with all PA tests normal

Tablets v Injections

Low Folate

Having Private Blood Tests Done. Asking for Peer Review.

Hello!

Spinal stenosis & b12 deficiency

Kefir for gut problems

iron panel test

feelings of palpitations in torso and faint ..

IBS and B12

Apohealth.de Panpharma - out of stock

NICE Guidelines Delay?

nhs stopping b12 injections

Blood results

best place for b12 ampoules

rotexmedica bbe dates

4 week trial results.

Newly diagnosed with low VitB12

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