injection type

[Fluffyone]

Not sure if I’m allowed to ask this, apologies if not.

Dr has agreed 6 loading doses then 3 monthly B12 injections which will be Hydroxocobalamin this injection is cyanocobalamin.

Two questions has anyone used these injections, are they any good? Can you have hydroxo and then inject with cyano ?

I liked idea of these because they are pre-filled.

Medivitan ® iV contains

5 mg of vitamin B6

1 mg vitamin B12

1.05 mg folic acid

Two chamber pre-filled syringe

[Narwhal10]

Hi Fluffyone,

Sorry do you mean that you have had loading doses of 1 mg/ml of Hydroxycobalamin intramuscularly and whilst waiting for the next one at GP surgery you are looking to order yourself ?

The Medivitan ® iV where iV means that it is for intravenous use. It would mean someone qualified to site a cannula into your vein and they administer it.

I await your response.

🐳

[Fluffyone in reply to Narwhal10]

I was going to have loading doses at surgery but then self injecting until symptoms stop improving.

Aah didn’t realise IV only. Daunted at sourcing paraphernalia and ampoules. This seemed like an easier option!

[wedgewood in reply to Fluffyone]

I’ve just looked up Medivitan iV and it can come in ready filled syringes for normal injection . They should be absolutely fine for you .

[Fluffyone in reply to wedgewood]

So is it a different injection To the IV?

[wedgewood in reply to Fluffyone]

All I did was google it . and got the information . Your doctor would not give you anything that had to be delivered intravenously .Intravenous injections are only given by a trained nurse or doctor . I suggest you google that medication and read the information that I read.

[Narwhal10 in reply to Fluffyone]

We will help you source the appropriate paraphernalia and ampoules. P.A./B12D is a journey. It is poorly understood so please consider joining the P.A. Society to have the correct literature.

I will private message you later today.

Please get copies of you blood records and blood tests.

[Fluffyone in reply to Narwhal10]

I have joined PA Society. I have posted bloods on a different feed a few days ago. When on B12 injections and then when off for four months at the request of haematologist.

[am111]

Both types work but note that cyanocobalamin is supposed to be given every month while hydroxy can be pushed a bit to 2-monthly or 3-monthly and yes, both are effective.

[Fluffyone]

just had my iron panel results back

Iron panel

[Narwhal10 in reply to Fluffyone]

Hi Fluffyone,

Oops, take the confidential information off. Just to be safe on-line. I cannot understand the rationale for the haematologist stopping your injections. Good to read you are a member of the PA Society. Their literature is help you and your doctors understanding of this illness/disease.

[Fluffyone in reply to Narwhal10]

Got rid of my name but now I do know how to edit once it’s on 🙈

[Cornwaller]

I would be most cautious about injecting b6 - too much b6 can be an issue with peripheral neuropathy.

[Rosydawn]

Hi Fluffyone

It takes a little bit of thought and courage but much cheaper if you learn to do your own injections. Go with Wedgewoods advice ...I did and Narwhal 10 is right in that PAS will help get it right.

IV is a hospital type injection that goes directly into the blood and not one you would normally use to self administer for PA

IM is into the muscle like the top of your arm or outer thigh which is the one I use and the one your GP will use.

SC is sub cutaneous a way of saying into your more fatty region often around the stomach but not one I use.

I use Hydroxycobalamin which is what NHS prescribe in 1mg/ml ampoules. It can be given either IM or SC.

Since I inject frequently I would NOT consider a preloaded cocktail as I would not want to overdue whatever else is in the mix. It is also a very expensive way of doing it.

I have no experience of cyanocobalamin but believe it is what the USA typically use. It is not as stable in storage or shelf life I don't think.

If you want B6 I suggest taking an oral supplement in the form known as P5P as you cannot over do that form I am told . Other forms of B6 can can give similar symptoms to B12 deficiency if you overdose on it. If you get a good quality multi vit supplement it should have p5p specified.

Good luck you can do it.