Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for December 2023

B12 injections out of stock at Versandapo.de (Panpharma)

The B12 Panpharma injections are out of stock, I normally use the hydroxocobalamin. It says enter your email and we will notify when they’re back in stock,...

The B12 Panpharma injections are out of stock, I normally use the hydroxocobalam...

Ryaan

•7 months ago

4 Replies

copy of letter sent to GP surgery

rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell...

rheumatologist sent result of Dexa scan but interestingly he lists my medical di...

Beadbuddy

•7 months ago

17 Replies

URGENT ADVICE PLEASE: primary care has reached its limits

Can anyone advise what to do when the GP is saying that primary care has reached its limits? The Patient is housebound now and needing carers to assist...

Can anyone advise what to do when the GP is saying that primary care has reached...

Wwwdot

•7 months ago

9 Replies

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Pepsin

Hi everyone, do you know if pepsin helps digestion if you have atrophic gastritis

Hi everyone, do you know if pepsin helps digestion if you have atrophic gastriti...

Helliborous

•7 months ago

6 Replies

It is not me it is you.

I think I may have an understanding. "Those on this forum which refer to my work and the accomplishments I experience as the results of that work as finding...

I think I may have an understanding. "Those on this forum which refer to my wo...

WIZARD6787

•7 months ago

13 Replies

Best Wishes to All

I just wanted to send everyone my best wishes and thanks. Season's greetings to you all !

I just wanted to send everyone my best wishes and thanks. Season's greetings to...

Cherylclaire

Forum Support•7 months ago

20 Replies

low ferratin

Afternoon all looking for some more advice. As previously said been feeling feeling terrible for about a year. Doctors thought that it was my low folate as...

Afternoon all looking for some more advice. As previously said been feeling fe...

Lee_maynard

•7 months ago

5 Replies

First SI, the pain, ouch!

Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt...

Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I d...

Bertiepuss

•7 months ago

31 Replies

GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.

Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12...

Good morning.I've found this forum out of desperation having experienced what I ...

Betwelvepatient

•8 months ago

25 Replies

20 hours of non-injecting

Having completed a two week trial I did not inject until my stuffy head came back. It was then three days of recovery but nothing severe. I thought that I...

Having completed a two week trial I did not inject until my stuffy head came bac...

WIZARD6787

•8 months ago

9 Replies

Going round in circles

Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA...

Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MO...

Helliborous

•8 months ago

3 Replies

L glutamine benefits ?

Hi everyone, I am thinking of ordering some of above but not sure if taking it is safe as I have AMAG with neuroendocrine hyperplasia can anyone offer any...

Hi everyone, I am thinking of ordering some of above but not sure if taking it i...

Helliborous

•8 months ago

3 Replies

What level is normal after B12 injections

First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has...

First post after being diagnosed with very low B12 (67). I am in the UK and had ...

NeverSayDi

•8 months ago

26 Replies

Stomach and digestion problems

Hi I'm having my 6th jab today does anyone know if it upsets digestion and bowel movements and thanks for all your reply their really helping to get through...

Hi I'm having my 6th jab today does anyone know if it upsets digestion and bow...

gpw61

•8 months ago

8 Replies

Nees help

i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the...

i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The...

38yroldmale

•8 months ago

16 Replies

It is the little things.

I had a meeting 1/2 an hour from my house. Drove there and had an hour meeting and drove back. Did not have to pee! At least for those two hours my...

I had a meeting 1/2 an hour from my house. Drove there and had an hour meeting a...

WIZARD6787

•8 months ago

6 Replies

Update on my partner

Just wanted to say thank you to everyone. We are 4 weeks into EOD injections a local pharmacist showed me how to inject my partner and iv been doing them for...

Just wanted to say thank you to everyone. We are 4 weeks into EOD injections a l...

Nic878

•8 months ago

9 Replies

low haemoglobin.

🎄Happy Christmas every body and a healthier new year. 🎄 I have had pernicious anaemia for over 40 years now. My HB is never more than 9.7. And my other...

🎄Happy Christmas every body and a healthier new year. 🎄 I have had perniciou...

Yingtong22

•8 months ago

2 Replies

b12 and ferratin

hi all does anyone know if a ferratin level of 35 can have negative effects on my b12 injections. Doctors have told me it’s well with range(15-300). been...

hi all does anyone know if a ferratin level of 35 can have negative effects o...

Lee_maynard

•8 months ago

26 Replies

Restlessness

Hi sorry to be a pain, but after 5th jab out of 6 ifeel jittery and on edge can't seem to relax also appetite has gone yours hopefully that this is normal

Hi sorry to be a pain, but after 5th jab out of 6 ifeel jittery and on edge can...

gpw61

•8 months ago

7 Replies

Schilling Test -or something else ?

I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA...

I recently found this out: Seventeen years ago, my cousin was found to have B12...

Cherylclaire

Forum Support•8 months ago

30 Replies

PA and FND

Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my...

Today I saw a neurologist for the first time , sadly not impressed and I am frus...

purpleabc

•8 months ago

19 Replies

Symptoms of Vitamin B12 deficiency - that I cannot find an answer to....

I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it...

I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was sever...

Madman070578

•8 months ago

11 Replies

sublingual B12

if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience...

if there is ever a problem getting my injectable B12 I was told sublingual B 12m...

CH52

•8 months ago

14 Replies

B12 deficiency and bronchitis

hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20...

hi. I’m new to this and I’m hoping that someone can help me. Over four weeks a...

Hatwindowwindow4

•8 months ago

41 Replies

Part Rant

There is more B12 in the liver than in other organs Guessing a weight/volume measurement. Someone who wishes they had what it takes to be a scientist came up...

There is more B12 in the liver than in other organs Guessing a weight/volume mea...

WIZARD6787

•8 months ago

8 Replies

Injecting with out of date B12 ampules

I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they...

I still have some B12 ampules left over after panic buying a lot during the pand...

Cetus

•8 months ago

10 Replies

INTRINSIC FACTOR ANTIBODY positive result

Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?

Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does th...

ReallyWondering

•8 months ago

12 Replies

Private testing for B12 and MMA (UK)

Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties,...

Looking for some pointers from others. I have felt unwell since Jan 23. URQ pai...

Shoe2

•8 months ago

19 Replies

Dizziness

Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8...

Has anyone experienced dizziness in between having B12.. I’m having up to 15 epi...

Catsmud

•8 months ago

18 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2023

B12 injections out of stock at Versandapo.de (Panpharma)

copy of letter sent to GP surgery

URGENT ADVICE PLEASE: primary care has reached its limits

Pepsin

It is not me it is you.

Best Wishes to All

low ferratin

First SI, the pain, ouch!

GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.

20 hours of non-injecting

Going round in circles

L glutamine benefits ?

What level is normal after B12 injections

Stomach and digestion problems

Nees help

It is the little things.

Update on my partner

low haemoglobin.

b12 and ferratin

Restlessness

Schilling Test -or something else ?

PA and FND

Symptoms of Vitamin B12 deficiency - that I cannot find an answer to....

sublingual B12

B12 deficiency and bronchitis

Part Rant

Injecting with out of date B12 ampules

INTRINSIC FACTOR ANTIBODY positive result

Private testing for B12 and MMA (UK)

Dizziness

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