sublingual B12: if there is ever a... - Pernicious Anaemi...

Pernicious Anaemia Society

31,969 members23,110 posts

sublingual B12

CH52 profile image
CH52
14 Replies

if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup

Written by
CH52 profile image
CH52
To view profiles and participate in discussions please or .
Read more about...
14 Replies
topazrat profile image
topazrat

I was knocking them back like sweeties, hoping I could stave off symptoms and they did absolutely nothing. I was hoping for a bit of passive absorption, but it didn't seem to work. If I took too many, they upset my tummy. ☹️

Lin602 profile image
Lin602

I have tried them as a substitute/ backup, both drops and tablets. They were effective but after a few weeks caused severe tooth pain and discomfort. I still use them occasionally but place them on top of my tongue instead of underneath near my teeth. A heads-up to use with caution.

CH52 profile image
CH52 in reply to Lin602

Thank you for responding and your tips. My primary care physician suggested keeping them on hand in case our supply chain gets cut off. My emergency plan would be cut back my dose to once a month vs every two weeks with using sublingual in between.

Nackapan profile image
Nackapan

I tried them in hope of reducing Injections .Did nothing for me

wedgewood profile image
wedgewood

I have tried sub-lingual and also nose -spray , but without any success at all.

But I read on the forum that some people use sub-lingual lozenges and nose spray between injections with a degree of success . So it’s worth a try .

Gambit62 profile image
Gambit62Administrator

They can be effective but they don't work for everyone - I use them and they more or less work.

Wheat profile image
Wheat

Hello, CH52, I have tried oral and sprays and they didn't work Tried some sl drops, no addatives and they do work. Its to try l as we are all different. There are many type's available .

e.g. Vitamin B12 Liquid Drops 3000 mcg Methylcobalamin + Adenosylcobalamin .

MKB001 profile image
MKB001 in reply to Wheat

I find the sublingual spray between injections allows me to increase the period between injections - but they cannot substitute for injections however (symptoms return)

tomdickharry profile image
tomdickharry

I needed 25000 micrograms a day for any to be absorbed. I try to re-order ampoules when I get to my last box. Expensive, but try Amazon.de.

debra_bill profile image
debra_bill

My mum won't SI, so uses the liquid and it has been really good for her.

Saoirse2016 profile image
Saoirse2016

I started off using an oral spray (Better You), it tells you to take 4 sprays if it a day on the inside of your cheek. 4 sprays wasn't helping, so I increased it to 4 sprays 4 times a day (which turned out to be just over 1ml) and that helped!

ReallyWondering profile image
ReallyWondering

sublingual did not work for me. Took them for three weeks and they did nothing.

Orchard33 profile image
Orchard33

I inject hydroxoc. EOD and on the other day I drink diluted adeno and methylc. In water. No idea if it helps. It's a matter of faith.

mcg-woo profile image
mcg-woo

I used sublingual and liquid when I discontinued injections and became the sickest I’ve ever been in my life after only three months. Absolutely did nothing for me.

You may also like...

Vitamin B12 sublingual hydroxocobalamin

cannot make B12 which we think could be related to long term PPI use. Symptoms etc have been around

Depression after sublingual B12

depressed in my body if that makes any sense. I've also started getting considerably brain fog and...

sublingual B12 pointless?

they did not absorb considering I have been having B12 injections every 8 weeks and the lozenges...

PA and b12 sublinguals

taking weekly injections which have worked ok. I recently started on daily sublinguals because I...

B12 levels on sublingual hydroxycobalamin.

Hi I managed to get my serum levels up on sublingual b12 only. My last test is while still taking...