Dizziness

[Catsmud]

Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological damage.. when I was diagnosed my B12 level was 40 was having symptoms but didn’t realise for a long time it was my B12 just want the dizziness to stop.

[Jillymo]

We are all different and repair at a different rate but I also get the dizzines which can be quite disturbing and a little frightening at times.

Will it ever decrease your guess is as good as mine but I do hope so it really is dificult to live with. 🤞

Keep the B12 going in. 🥴 🤗

[Catsmud in reply to Jillymo]

Thanks for replying I’ll just have to live with it 🥲

[Jillymo in reply to Catsmud]

Hopefully it will ease with time. 🙏

When I were first diagnosed I were bumping into the walls and doors so hang in there. I still get sudden bouts of dizziness and not sure if its B12 damage or my ears. It's like being drunk without having a drink.

Take care. 😘

[Nackapan]

Do you think 8 weekly is enough?You say b12 was 40

Useful if you could state if a serum b12 test and what measure used

Have you tried vestibular pysio?

Is your b.p okay ?

[Danny1604]

I had the same problems and took about 5 months to see any real improvements. I also had very shaky legs and vertigo which subsided around the same time.

Now all I get is a little dizziness if I turn rapidly or stand too quickly.

I also thought I had some neurological damage and was making me anxious. After the 4 months I thought about it less and my anxiety dropped. Not sure if the 2 are related but as it stands, no major issues.

All the best with your situation.

[Catsmud in reply to Danny1604]

Thanks for your reply 👍

[am111]

You are obviously not getting enough B12. Once in 2 months may not be enough. Even with a good active B12, neurological damage takes time, but if you feel things become bad towards the end of your shot duration, then obviously active B12 goes down and you need a higher frequency.

[Catsmud in reply to am111]

Thanks for your reply I was having once every 12 weeks but the dizziness was practically all day so went last Monday earlier and now having every 8 weeks hope that helps was thinking of also taking extra B12 vitamin tablets to boost 💁🏼‍♀️

[am111 in reply to Catsmud]

Once every 2-3 months is very slow and may not give you high active B12 that you need to fix your problems. For tablets, take cyanocobalamin. There is some research that shows it is better than methylcobalamin tablets and I have found it to be better as well. It is a little slower acting than the methyl version but picks up really well after a while (can take 1-2 months to really pick up, as it is more of a store builder than an immediate boost). I recommend 2000mcg/day.

[Catsmud in reply to am111]

Thanks will look into it

[Inquiringmind12]

I have been seeing a doctor in Thailand and she has told me that my episodes of vertigo are caused by a lack of b complex - both times I’ve had periods of vertigo, I’ve had b complex iv’s and the problem has resolved itself. I just mention this because you may want more b’s than just b12

[Catsmud in reply to Inquiringmind12]

Thanks will take more b’s do anything to get rid of these dizzy spells

[Inquiringmind12 in reply to Catsmud]

Hope it gets better

[Catsmud in reply to Inquiringmind12]

Thanks 🙏

[Orchard33]

I had dizziness. It stopped when I SI EOD. Occasionally get it now when I'm tired.

[WiscGuy]

I am in the US, but most sources who are familiar with B12 deficiency with neurological symptoms, (including the British NICE, if I understand correctly) recommend B12 injections every other day until symptoms show no further improvement. In the past couple of weeks, research papers posted on this forum suggest that insufficient B12 in the system limits how much improvement to damaged nerves can occur. So the most important thing you and your doctor can do is to comply with NICE guidelines. Though there can be side effects (most commonly dermatological), B12 is not toxic even at concentrations thousands of times greater than is ever injected to correct nutritional deficiency. Many people on this forum who have recalcitrant doctors who refuse to follow guidelines of injections every other day, or twice a week, do self injections, ordering injectable B12 from countries where it is sold over the counter, British people ordering from Germany, US people ordering from Canada, etc.

[Catsmud in reply to WiscGuy]

Thank you my Doctor will only do every 8 weeks and doesn’t seem that interest in my side effects of dizziness he doesn’t seem to know much about b12 symptoms

[WiscGuy in reply to Catsmud]

Doctors are generally aware of hematological symptoms (anemia), but not neurological symptoms, which is what nearly all of us here experience. Hematological symptoms seem to readily resolve with much less frequent doses of B12 (eg, every two or three months). Most of the people on this forum are here, generally speaking, because doctors were not aware that B12 deficiency with neurological symptoms have symptoms that are different from hematological symptoms, diagnostics that are different from diagnostics that are effective for hematological symptoms, and recommended treatment that is different from treatment for hematological symptoms (ie, injections every other day vs injections every two or three months). Some doctors, when presented with NICE and other recommendations, respond appropriately by prescribing B12 injections every other day (EOD). Other doctors are recalcitrant, defensive, etc, and refuse to comply. The longer people with neurological symptoms go without adequate treatment, the more severe the symptoms get, and the less likely the more severe symptoms are to fully resolve. Therefore, many of us buy B12 from countries where it is sold over the counter, and inject it ourselves.

This medical journal article is one of the better sources of information, in my opinion. Read especially

* the introduction

* Table 1

* the first paragraph of the section, "How should treatment be given?"

* the six brief patient profiles

ncbi.nlm.nih.gov/pmc/articl...