Thank You , : Calmed down a bit now... - Pernicious Anaemi...

Pernicious Anaemia Society

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Thank You ,

Polo22 profile image
7 Replies

Calmed down a bit now, still a bit fed up but still fighting . Looking through blood results though is really confusing. I spend time I haven't really got reading up , think I finally know what's going, then get really overwhelmed and confused. This is I guess par for the course.

Also find myself getting really annoyed , with GP, and myself for not getting it.

Probably doesn't help that I have ADHD and ASD. Oh the joys of leaping from hyper focused to completely brain fuddled. Still makes life interesting.

Will hopefully be back later to pick all your less fuddled brains,

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Polo22 profile image
Polo22
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7 Replies
charks profile image
charks

I think all of us have been in your position. It's really difficult getting help when one of the main symptoms of B12D makes us 'stupid'. I have a high IQ but I had trouble explaining everything to the G.P. The problem is the insidious nature of B12D. Looking back I realise that 'dumbing down' had been slowly happening to me for ages. Within a week of taking B12 I started to regain intelligence. It felt amazing being able to think again.

This forum was so helpful in processing all my medical information when I was too 'stupid' to be able to do it myself. Don't worry. As you get better you will find everything less confusing.

BTW. Did you know that recent research has shown a connection between low B12 and ADHD.

Polo22 profile image
Polo22 in reply tocharks

OOH thanks, I'll try and find that did wonder about connections. I know there is evidence that ADHD is or could be , brain farting, an inflammatory response/issue. I have always been different shall we say but only sought diagnosis 5 years ago, had started Uni and realised my usual, don't study, never revise, actually wouldn't know how to, may not cut it this time. Still functioning Ok but feeling a little anxious about if I was good enough. Not sure if that was my deep seated self esteem issues or the beginning of something new. I thought having a diagnosis might help, but wasn't prepared for the fall out, from my own psyche and ableist discriminatory attitudes.

I was bullied to destruction, well almost, I am a bit like that heavyweight fighter who you pray will just stay down, either very stupid, or very brave.

Everything came crashing down, threw of degree, appealed, won. Broke down, needed to take time out, when I should have gone back, Uni hadn't organised a placement Covid was excuse. Told I could walk away with certificate in Health or repeat year I choose to repeat. It did not go well, the more I tried the worse I got, being assessed on placement just felt like being judged. I would not stay down.

So currently supposed to be an external student, feel like I have forgotten everything, waiting on a short placement to try and rectify/pass some issues on placement, if by some miracle I pass I would enter 3rd year in September.

It's odd when intelligence has never been a problem, to suddenly find maybe I might be a bit thick after all

Narwhal10 profile image
Narwhal10

Hi Polo22,

I am sorry to read your post.

Unfortunately, cognitive function, memory, communication skills can be severely impaired due to being deficient.

I always remember looking at a hoover, knowing what it did but having absolutely no idea how to use it.

Also when I went food shopping, I’d copy a person for a few items, then move to a different person (didn’t want to get accused of stalking) buy what they were buying. I’d always have my friend with me, then copy them to pay.

It’s always best to go on symptoms as blood results can be unreliable.

Best wishes

Polo22 profile image
Polo22 in reply toNarwhal10

I forgot about the communication thing, I have always been a bit like Marmite, some love me, some hate me having a diagnosis obviously didn't change that but I ended up not being able to explain myself. Because the way I process information , the way my filing system is at best sort of ad hoc, I learned to mask, to give myself time to find the information and respond. I didn't know then it was ADHD or Autism, it was just me. Then after diagnosis when things started to go pear shaped I blamed the ADHD / ASD which is ridiculous really. I know I don't sound it but I am usually a quite positive confident person, affable even. People mistake the niceness as weakness. Then they think you can be gaslighted and to a degree certain people got away with it, I don't think they expected me to argue. Now the confidence has all but disappeared and I am trying not to panic. Hoping I can sort myself out enough to finish course.

I now have access to all my blood results and am driving myself up the wall trying to figure it all out. Might add the numbers here later for advice, Thanks for responding feels less isolating

Getting halfway through a sentence, not knowing what you are talking about.

Trying to explain something and not remembering the name of/word for something

🤦‍♀️

Puzsle profile image
Puzsle in reply toPolo22

I have a cousin who works in a bloods lab. I could ask her if she could give some idea of what’s going on? I know you don’t know me from Adam ( or Eve !) do won’t be offended of you choose not to, jus5 thought it might help?

Polo22 profile image
Polo22 in reply toPuzsle

that would be good 😍 Thank You

Twaddletop profile image
Twaddletop

Hey PoloI wasn’t aware of the link between ADHD and B12 D. My brother and I only found out we had ADHD a few years ago when my nephew was struggling at college. My nephew was struggling to do the course work at UMass because he struggled with just sitting down and focussing. When he was diagnosed, he was told that he wasn’t likely to be the only one in the family so, my brother and I went for testing. I was off the scale ADHD which explained so many of the difficulties I’d experienced in my life. I was doing well in my course work at St Andrew’s but was really struggling to work as a check out operator etc etc. I had concluded that I was just incapable of concentrating on anything that bored me. My brother is a doctor and has experienced many difficulties also with crazy things that must folk could do in their sleep.

What a strange and mysterious world it is living with AI conditions. I’m wishing you all the very best in finding the concoction of vitamins and minerals to work for your particular needs.

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