Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for November 2021

Treatment

Recently diagnosed. My GP doctor suggested injection of 1000mcg once a month. But I’ve read it should be more like daily or at least weekly. He plans to...

Recently diagnosed. My GP doctor suggested injection of 1000mcg once a month....

PA1920

•2 years ago

2 Replies

Links between pernicious anaemia and kidney function?

Hi all, I have pernicious anaemia which is treated with 12 weekly injections... I've recently had some blood tests as part of a pre op as I'm having a total...

Hi all, I have pernicious anaemia which is treated with 12 weekly injections... ...

LizzieRb12

•2 years ago

7 Replies

How to proceed with my own supplies

Hi everyone, hope you are well. My supplies arrived today from Germany and Medisave but I am unsure how to proceed. I had my last B12 injection 2.5 weeks ago...

Hi everyone, hope you are well. My supplies arrived today from Germany and Medi...

newbiegirl

•2 years ago

7 Replies

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Did anyone had long lasting effects from an EMG/NCS?

Mine was absolutely awfull. Electrical shocks felt like I was getting electrocuted. I’m on the small side 52 kg ( 114 pounds) and 1m59 (5,2 feet) and my guess...

Mine was absolutely awfull. Electrical shocks felt like I was getting electrocut...

Tess2222

•2 years ago

3 Replies

Amazon ban on visa payment for Uk users

https://news.sky.com/story/amazon-to-reject-customer-payments-using-uk-issued-visa-credit-cards-12470641

https://news.sky.com/story/amazon-to-reject-customer-payments-using-uk-issued-vi...

SallyRees

•2 years ago

3 Replies

Is there EVER a need to retest B12 levels if already on treatment?

Hi all, I have been receiving B12 injections since 2018. I’m still unwell, but thanks to PAS and this forum, I’m aware this is probably due to the fact that...

Hi all, I have been receiving B12 injections since 2018. I’m still unwell, but ...

JLB_

•2 years ago

35 Replies

A few symptoms that just won’t give!!

Hi all :) I hope you are all doing well! Here in the US we are gearing up to celebrate Thanksgiving. I just want you all to know how thankful I am for this...

Hi all :) I hope you are all doing well! Here in the US we are gearing up to ce...

Ctadds1

•2 years ago

15 Replies

Gezabelle

Does everyone feel the benefit of B12 injections. I never feel any benefit at all. I’m still always soooooo tired and my serum levels are high. Doctor won’t...

Does everyone feel the benefit of B12 injections. I never feel any benefit at al...

Gezabelle

•2 years ago

9 Replies

Are eod injections safe?

I am addressing those who are getting b12 injections every other day. How long have you been doing this? Have you had any consequences?

I am addressing those who are getting b12 injections every other day. How long h...

Zeffy90

•2 years ago

7 Replies

Articles indicating need for frequent injections?

Hi everyone! I am wondering if there are any articles that I can bring to my doctor that indicate the need for frequent injections? I am currently having once...

Hi everyone! I am wondering if there are any articles that I can bring to my doc...

KittyKitten

•2 years ago

16 Replies

B12 and omeprazole

Hi, I need advice re B12 and omeprazole. My hubby has bronchiectasis, rheumatoid arthritis, hypothyroidism and severe peripheral neuropathy but not pernicious...

Hi, I need advice re B12 and omeprazole. My hubby has bronchiectasis, rheumatoid...

sunshineday

•2 years ago

26 Replies

Overwhelming fatigue, chills, shortness of breath, weakness - recent labs

I’m two months into injections. Had weekly shots the first month and have had shots three times a week for the past month. I feel so awful that I can barely...

I’m two months into injections. Had weekly shots the first month and have had sh...

Soulquest

•2 years ago

16 Replies

Syringes for B12

Anyone help me here on ordering syringes, needles for my ampoules, i.e, how to order by name, product from German suppliers I have seen on here. I know what...

Anyone help me here on ordering syringes, needles for my ampoules, i.e, how to ...

hdroxo

•2 years ago

2 Replies

Here we go again

Hi all. I'm so glad to be on here for advice. There are time to has really put my mind to rest. I'm hoping someone will have an opinion on what's going on. I...

Hi all. I'm so glad to be on here for advice. There are time to has really put m...

Darcey14

•2 years ago

6 Replies

Functional Neurological Disorder!

I just wanted to let everyone know of a problem with private doctors and neurologists. There is a continuing lack of education among these professionals who...

I just wanted to let everyone know of a problem with private doctors and neurolo...

RoseFlowerDew

•2 years ago

10 Replies

Update on GP request for Serum B12 for patient already on treatment.

About 2 months ago I wrote about my GP having sent a text in the evening saying he was reviewing all his patients on Hydroxycobalamin injections. He wanted to...

About 2 months ago I wrote about my GP having sent a text in the evening saying ...

GGourmet

•2 years ago

3 Replies

How low do you go before your next injection?

Has anyone had their B12 retested just before their next injection is due to see how low their B12 levels have dropped? If so, what was your level?

Has anyone had their B12 retested just before their next injection is due to see...

Lamornacove

•2 years ago

22 Replies

Out of syringes!

Hi all. Having a crazy time and wanted to share. I'm very blessed that I get 3 self jabs a week and do well with that number. Every month, I get my 13 viles,...

Hi all. Having a crazy time and wanted to share. I'm very blessed that I get 3 s...

Wowo23

•2 years ago

12 Replies

Dentist

If you have b12 defiency/pernicious anaemia will it make your gums bleed more? I saw a new Denist today and she lectured me on my bleeding gums after she’d...

If you have b12 defiency/pernicious anaemia will it make your gums bleed more? I...

Hidden

•2 years ago

7 Replies

Platelet count high and B12 deficiency

One of the main reason of high platelet high count is B12 deficiency and if it's not treated by taking B12 specially injection can cause heart attack due to...

One of the main reason of high platelet high count is B12 deficiency and if it's...

Hamayeshguy

•2 years ago

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FIRST HYDROXOCOBALAMIN INJECTION - feel even worse

Hi My 22 year old daughter started hydroxocobalamin injections for the first time yesterday for pernicious anaemia and she told me afterwards she felt pretty...

Hi My 22 year old daughter started hydroxocobalamin injections for the first tim...

Chenders

•2 years ago

29 Replies

Why does it sting in thigh?

I've twice self injected into my thigh and the first time it stung a lot but today it was absolutely awful and I jumped so bad that the needle came out and I...

I've twice self injected into my thigh and the first time it stung a lot but tod...

TexasDixie

•2 years ago

17 Replies

Feeling down and anxious

Hi ,its a long time since I was on here owing to various issues. I started self injecting back in August. My daughter gave me the first shot in my arm and it...

Hi ,its a long time since I was on here owing to various issues. I started self...

TexasDixie

•2 years ago

1 Reply

SYRINGE SHORTAGE

F.Y.I., I saw this article about a possible syringe shortage in 2022,...

MoKayD

•2 years ago

4 Replies

Does Milk Thistle or other herbs deplete B12 faster

Hi all, a bit of strange one here but I would really appreciate some insight on this topic. I have been working with my naturopath for a few years now and am...

Hi all, a bit of strange one here but I would really appreciate some insight on ...

WorkingProgress

•2 years ago

3 Replies

Finally, a neurology referral…after 8 years

After 8 years of symptoms and poor management of symptoms finally a referral to neurologist was mentioned. Because of the way things work I won’t believe it...

After 8 years of symptoms and poor management of symptoms finally a referral to ...

RoseFlowerDew

•2 years ago

10 Replies

Side effects of cutting down a regular daily dose?

I've been injecting 1.5mg daily for the last month and now want to cut down. I take a lot of supplements in general and the total amount is probably too much...

I've been injecting 1.5mg daily for the last month and now want to cut down. I ...

Cetus

•2 years ago

8 Replies

Advice please from fellow suffers.

I have been having B12 injections for nearly 18months and due to failing the battle with my Dr to have them more frequently beause of my ongoing symptoms I am...

I have been having B12 injections for nearly 18months and due to failing the bat...

Jillymo

•2 years ago

6 Replies

B12 deficiency & depression

Starting to see how my decline in b12 injection frequency was correlated with my sharp decline in mood. I’d say my mood 3 months ago was moderate to high...

Starting to see how my decline in b12 injection frequency was correlated with my...

Purplegirl2

•2 years ago

8 Replies

Source supplies

I'm desperately trying to order my B12 Rotexmedica and I can't find anywhere which sends to the UK apart from the ones which are charging ridiculous amounts of...

I'm desperately trying to order my B12 Rotexmedica and I can't find anywhere whi...

Shanrhian71

•3 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2021

Treatment

Links between pernicious anaemia and kidney function?

How to proceed with my own supplies

Did anyone had long lasting effects from an EMG/NCS?

Amazon ban on visa payment for Uk users

Is there EVER a need to retest B12 levels if already on treatment?

A few symptoms that just won’t give!!

Gezabelle

Are eod injections safe?

Articles indicating need for frequent injections?

B12 and omeprazole

Overwhelming fatigue, chills, shortness of breath, weakness - recent labs

Syringes for B12

Here we go again

Functional Neurological Disorder!

Update on GP request for Serum B12 for patient already on treatment.

How low do you go before your next injection?

Out of syringes!

Dentist

Platelet count high and B12 deficiency

FIRST HYDROXOCOBALAMIN INJECTION - feel even worse

Why does it sting in thigh?

Feeling down and anxious

SYRINGE SHORTAGE

Does Milk Thistle or other herbs deplete B12 faster

Finally, a neurology referral…after 8 years

Side effects of cutting down a regular daily dose?

Advice please from fellow suffers.

B12 deficiency & depression

Source supplies

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive