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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for November 2021

What monitoring is required after treatment for vitamin B12 deficiency has started?

The NICE Guidelines are as follows: "What monitoring is required after treatment for vitamin B12 deficiency has started? Perform a full blood count and...

The NICE Guidelines are as follows: "What monitoring is required after treatment...

Springblossom13

•3 years ago

48 Replies

Walking out of GP office with a referral to see a sleep specialist versus B12 levels and symptoms.

Yes. It's the same questions: Can any one explain or point to any information that would help me understand how an individual with PA but "high/normal" b12...

Yes. It's the same questions: Can any one explain or point to any information th...

Evan16

•3 years ago

14 Replies

A B12 Research Paper that the British B12 deficiency sufferers might find interesting.

While I was googling this morning I found this article/study? To be honest, I didn't read the whole thing. It is titled: A patient and public involvement...

While I was googling this morning I found this article/study? To be honest, I d...

MoKayD

•3 years ago

1 Reply

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Rationale of the six loading doses?

Can somebody explain the science of the 6 loading doses of B12 hydroxocobalamin as advised by NICE & BNF and concentrated over a two week period? To me it...

Can somebody explain the science of the 6 loading doses of B12 hydroxocobalamin ...

Springblossom13

•3 years ago

24 Replies

The struggle for injections continues!

The only way to contact my surgery is now through the Ask my GP website. I do self inject weekly with b12 I using my own supplies which I haven’t told them...

The only way to contact my surgery is now through the Ask my GP website. I do ...

Showgem

•3 years ago

4 Replies

It's look like proteolytic enzymes are beneficial to muscle injury.

In some muscle injuries proteolytic enzymes are some beneficial in healing them. Does it apply to muscles micro injuries related to B12 deficiency. As muscles...

In some muscle injuries proteolytic enzymes are some beneficial in healing them....

Hamayeshguy

•3 years ago

1 Reply

Hydroxocobalamin - Spain

Where can I buy hydroxocobalamin? I live in Spain. Thanks

S1any

•3 years ago

8 Replies

Sourcing hydroxocobalamin - in US

Hello! I've seen many posts where all of you kind people provide info on where to order supplies and what to order. However, I have been scouring to...

Hello! I've seen many posts where all of you kind people provide info on where t...

Soulquest

•3 years ago

25 Replies

Peer support

I just wanted to thank administrators and contributors for such a wonderful, comforting and informative site. I don’t have pernicious anaemia but was diagnosed...

I just wanted to thank administrators and contributors for such a wonderful, com...

Libuse

•3 years ago

3 Replies

Where to but injectable B12 in the UK

I was diagnosed in Apr 2018. I bought extra injections from Germany and I have ran out. I get 1 injection every 6 weeks prescribed by my GP but self injected....

I was diagnosed in Apr 2018. I bought extra injections from Germany and I have r...

area16rep

•3 years ago

5 Replies

Pernicious Anemia or ALS

My mother died from ALS back in the early 90's. I now have been diagnosed with Pernicious Anemia. I wonder if she really had Pernicious Anemia. Don't have...

My mother died from ALS back in the early 90's. I now have been diagnosed with ...

lavada12

•3 years ago

11 Replies

Link between elevated b12 levels and lung / colon cancers. Need advice.

Hello - I have got myself worried about something. I self inject every two weeks but was wanting to increase this dose to every other day to see if I notice...

Hello - I have got myself worried about something. I self inject every two weeks...

Jennygal

•3 years ago

16 Replies

High B12 in blood 8 months after last injection

I wonder if anyone could help please? 8 months ago a different doctor decided to send me for a blood test after I had been having monthly B12 injections. I...

I wonder if anyone could help please? 8 months ago a different doctor decided to...

Gill567

•3 years ago

6 Replies

If I inject less than one ml of B12 like half ml is that still does work?

I tried half ml or less with higher frequency and I think it works with less worsening symptoms. Is there any minimum amount of injection fir each session? I...

I tried half ml or less with higher frequency and I think it works with less wor...

Hamayeshguy

•3 years ago

14 Replies

B12 Deficient.

Hi, I've been diagnosed with B12 deficiency and I'd like to know what options are available to me as far as buying and self-administering injections goes. What...

Hi, I've been diagnosed with B12 deficiency and I'd like to know what options ar...

Hidden

•3 years ago

15 Replies

B12 Micro Needle Patch?

I read an article about development of a patch delivery for vaccines. Because I had nothing else to do, I sent and email to one of the companies developing...

I read an article about development of a patch delivery for vaccines. Because I...

MoKayD

•3 years ago

11 Replies

versandapo.de order

Hi every one,I ordered from versandapo.de after wedgewood's post a week and a half ago on saturday morning-received an e-mail monday saying order delayed and...

Hi every one,I ordered from versandapo.de after wedgewood's post a week and a ha...

flosslechops

•3 years ago

10 Replies

Supplies for self injections

Hi everyone. Can I have help with suppliers of B12 ampoules, what would be the best needles for IM deltoid and suppliers and do you use swabs before as my...

Hi everyone. Can I have help with suppliers of B12 ampoules, what would be the...

newbiegirl

•3 years ago

4 Replies

B12 Hervert Depot 1mcg/2ml

Does anyone use 1mcg B12 in 2ml? I see these available on Amazon.de but wondered what the usual administration is? Do you treat them the same way as a 1mcg in...

Does anyone use 1mcg B12 in 2ml? I see these available on Amazon.de but wondere...

Hidden

•3 years ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2021

What monitoring is required after treatment for vitamin B12 deficiency has started?

Walking out of GP office with a referral to see a sleep specialist versus B12 levels and symptoms.

A B12 Research Paper that the British B12 deficiency sufferers might find interesting.

Rationale of the six loading doses?

The struggle for injections continues!

It's look like proteolytic enzymes are beneficial to muscle injury.

Hydroxocobalamin - Spain

Sourcing hydroxocobalamin - in US

Peer support

Where to but injectable B12 in the UK

Pernicious Anemia or ALS

Link between elevated b12 levels and lung / colon cancers. Need advice.

High B12 in blood 8 months after last injection

If I inject less than one ml of B12 like half ml is that still does work?

B12 Deficient.

B12 Micro Needle Patch?

versandapo.de order

Supplies for self injections

B12 Hervert Depot 1mcg/2ml

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive