I've been injecting 1.5mg daily for the last month and now want to cut down. I take a lot of supplements in general and the total amount is probably too much workload for my body to handle.
Have the "daily-injecting people" here experienced a rebound of bad symptoms when cutting down to, say, half their usual dose? Or perhaps when taking a couple of weeks off?
I ask this because I'm very fragile at the best of times and want to know if any surge in symtpoms is coming from a change in my supplements/B12 or from somewhere else.
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For reasons I cannot explain, I was able to go down to weekly from daily after taking daily doses for months.
I don't know why. I felt a constant need for the stuff and would start to feel the effects even if I went 12 hours without an injection.
In my case, it definitely gets worse in times of great stress. Which I was under all the time because I felt horrible.
At some point it became less necessary for me. I went down to 3 days, and then spaced it out further from there.
A suggestion would be to keep a diary. Write down every single one of your symptoms, the date, and what you did/took/changed. If you noticed any improvement or worsening of symptoms.
It's been invaluable for me, because of the memory loss.
And then when you do change something, you do it one at a time.
If you're going to cut back on b12 and your supplements have been helping you, then try less b12 for a while. If you feel really horrible, then you'll know it was the b12. If it's all done at once, you can't tell really easily.
In the spring I had effective treatment for my SIBO coupled with the necessity for an operation, which limited my ability to exercise below the level that my malabsorption normally limits me to (for a change I had energy available beyond what I could do) and for a few weeks my nerves were working so well that my legs could feel me doing my jabs and I just felt like I didn't need so much B12 so I let the timing on my jabs slide a bit by a few hours. For several weeks I managed fine on 4 or 5 jabs a week. After a while though, as the amount of SIBO gradually increased and I was able to do more post my op (and I actually had a good month generally health wise in May ish time) I could feel the need to increase my jab frequency again so I did. I can currently still go 27ish hours before I feel slowed up but I don't bother unless other things dictate - I just do my jab when I get up and know I don't have to worry about it any more!
I think that every person act differently on decreasing b12injections. I am trying almost 1 year to decrease injections, which I use daily. Unfortunately I did not succeed. When I did not had my B12 injection in the morning at the end of the same day I am exhausted, hardly can walk and suffering from more neuropatical pain. I keep on trying but for me it is to early to decrease the quantity now ( I already inject daily for more than 3 years, probably I had the B12 deficiency already for about 40 years before they found out )
But as mentioned before , every person acts differently.
If you want to decrease please do it slowly f.e. from 7 to 6 injections per week for some months and if you still feel well you can go from 6 to 5 injections per week for some months.
I agree with the advice to go slowly with any decreases. Cutting out one shot a week for several months sounds wise to try. At least, since you said your body is sensitive to things.
Fragile was your word. Yes, I'd honor your own evaluation. I know it gets tiresome doing the shots!!
Maybe you could start by re-evaluating your other supplements first. Even there, you're fragile, you said so! Careful evaluation, maybe eliminating one or lowering a dose for a week or a month.
I also agree with cutting back slowly. I had better luck cutting down on dosage than frequency. I went from 1000 mcg every day to 500 mcg for 2 days and then 1000 mcg on the third day, then repeat. So still every day but not full doses every day. That works better for me than skipping days. I'm still hopeful I'll eventually need less but any time I try too hard to cut back more, I regret it.
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Careful evaluation, maybe eliminating one or lowering a dose for a week or a month.
seeing neurologist, advice on b12 injections welcomed…
Serum ferritin too high?
