Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2021

Blood test results , platelet distribution width??

Hiya, I am low in b12 and SI EOD at the moment. Have been going through my blood results and have noticed my Platelet distribution width is always really...

Hiya, I am low in b12 and SI EOD at the moment. Have been going through my bloo...

Purpleloulou27

•3 years ago

3 Replies

B12 excess and inflammation

Is too high b12 connected to high inflammation levels in the body?

lakestreet

•3 years ago

2 Replies

Could it be B12? MOVIE

I'm asking everyone with PA b12 deficiency to copy and paste this movie in their doctors mailbox. I have. They probably won't look at it but it's worth a...

I'm asking everyone with PA b12 deficiency to copy and paste this movie in thei...

Hidden

•3 years ago

3 Replies

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Calling fbirder -Where are you ?

You haven’t been on the forum for ages . Hope you are alright . Please come back -we miss your knowledgeable prickly posts . You spiced up the forum ! Admin...

You haven’t been on the forum for ages . Hope you are alright . Please come back...

wedgewood

•3 years ago

39 Replies

IF and celiac test results 'normal'

Hi all, if you had tests on the NHS for Intrinsic factor did you get details of test or just told normal? I have two tests in my online records which just show...

Hi all, if you had tests on the NHS for Intrinsic factor did you get details of ...

Bonjourtristesse

•3 years ago

27 Replies

Could it be b12 movie

Have any of you guys watched this movie, Could it be b12 by the one that wrote the book? I will watch it today. So glad and thankful she is bringing awareness...

Have any of you guys watched this movie, Could it be b12 by the one that wrote t...

Hidden

•3 years ago

6 Replies

MMA tests: serum vs urine tests

Can anyone explain under what circumstances urine MMA tests might be conducted in preference to serum tests ? I thought I read somewhere a long while ago that...

Can anyone explain under what circumstances urine MMA tests might be conducted i...

Cherylclaire

Forum Support•3 years ago

8 Replies

How do I know I can care for a baby?

I am absolutely 100% ready, in my mind, to start making plans for pregnancy and motherhood. My partner used to feel the same way, although he has now started...

I am absolutely 100% ready, in my mind, to start making plans for pregnancy and ...

JDorian0817

•3 years ago

15 Replies

Where to get private testing done

Hi I just wondered is anyone can tell me where I could get more in depth testing done for B12 deficiency and pernicious anaemia as my GP only orders the...

Hi I just wondered is anyone can tell me where I could get more in depth testing...

BEE2019

•3 years ago

10 Replies

Methylcobalamin 5000mcg patches - do they work?

Hi, I have just got some B12 patches and would be interested to hear from anyone who has found these helpful. I have 6-weekly injections but when my life is...

Hi, I have just got some B12 patches and would be interested to hear from anyone...

VamboMarbleEye

•3 years ago

6 Replies

Advice with B12 results ?

Hi , I have hypothyroidism and I’ve been told that B12 levels need supplementing . Medichecks test says active B12 is low at 62 - range 25.1-165 . A GP test...

Hi , I have hypothyroidism and I’ve been told that B12 levels need supplementing...

Blackpanther46

•3 years ago

39 Replies

What kind of magnesium should you take if taking b12 injections for PA?

I'm taking B12 injections. What is the best Magnesium to take? Is it magnesium oxide, magnesium citrate or magnesium aspartame? Thank you.

I'm taking B12 injections. What is the best Magnesium to take? Is it magnesium...

Hidden

•3 years ago

29 Replies

Should I continue B12

I have just been diagnosed with cirrhosis.I have been having B12 injections for the past 7 yrs 6wkly.I have them 12wkly at the docs and I self inject in...

I have just been diagnosed with cirrhosis.I have been having B12 injections for ...

Chocolate41

•3 years ago

5 Replies

B12 and hot flushes

Hello, I started my loading doses just over a year ago and ended up resorting to SI as many do around Nov 2020 as I had ongoing neuro symptoms (tingling &...

Hello, I started my loading doses just over a year ago and ended up resorting to...

Alpaca24

•3 years ago

19 Replies

Thank you.

I would just like to take this time to send out an overwhelming thank you to everyone who contributes to this site👍 This is 1 of the best sites I have ever...

I would just like to take this time to send out an overwhelming thank you to eve...

Sk1ppy

•3 years ago

9 Replies

Folic Acid

Hi I am new here but would just like to ask a question on this post. My Doctor has prescribed me 5mg of Folic Acid for 3 months, they said my Folate is too low...

Hi I am new here but would just like to ask a question on this post. My Doctor h...

Sk1ppy

•3 years ago

38 Replies

Does regular B12 injections as frequent as EOD lower ferritin levels?

Is this true or another erroneous facebook forum statement? Here is the statement:- B12 will deplete ferritin/iron not raise it. In very simple terms b12 makes...

Is this true or another erroneous facebook forum statement? Here is the statemen...

WorkingProgress

•3 years ago

4 Replies

Daily Express

July 22 Updated July 23rd 2021 Article on mouth problems ftom b12 deficiency Not my newspaper! And csnt read much on that size. Oh a notification I think....

July 22 Updated July 23rd 2021 Article on mouth problems ftom b12 deficiency ...

Nackapan

•3 years ago

2 Replies

Temperature

Can someone please give me accurate temperature needed to keep boxes of B12 usable? I keep mine wrapped in a cool pad, in the dark, but still the temperature...

Can someone please give me accurate temperature needed to keep boxes of B12 usab...

jaybirdxNHM

•3 years ago

10 Replies

Essex

Meet in Essex for information

Essex999

•3 years ago

1 Reply

Need proof for clueless Doctor

Anyone with PA have something I can be armed with to show at upcoming appointment? Dr. says my test show Pernicious but I only need 1 shot a month...

Anyone with PA have something I can be armed with to show at upcoming appointm...

Hidden

•3 years ago

8 Replies

5mg Folic Acid

I’m really confused and hope someone may be in a position to offer clarification on this question. My folate levels have always been mid range, regardless of...

I’m really confused and hope someone may be in a position to offer clarification...

User2020-1

•3 years ago

16 Replies

Apotheke-mariannebrunn.de

Hi everyone. I ordered Hydroxycobalomin for SI from the above pharmacy which is in Leipzig Germany. Although being in a list of different pharmacies given to...

Hi everyone. I ordered Hydroxycobalomin for SI from the above pharmacy which is ...

TexasDixie

•3 years ago

7 Replies

B12 AND FOLATE BLOOD TEST RESULTS

ADVICE WITH RECENT BLOOD TESTS PLEASE B12 45 RANGE 25.1 - 165 FOLATE 3.2 RANGE MORE THAN 2.9 I was told these are ok but i dont think they...

ADVICE WITH RECENT BLOOD TESTS PLEASE B12 45 RANGE 25.1 - 165 FOLATE ...

ninja1

•3 years ago

12 Replies

My Labs

Just got my labs back (keep in mind that I had a B12 injection from my former GP on June 30th). Not sure what to make of it. I have had two loading doses of...

Just got my labs back (keep in mind that I had a B12 injection from my former GP...

Pain12345

•3 years ago

9 Replies

Advice please on S.I. by Sub-cutaneous method .

I’m trying to help someone who wants to self-inject using the sub-cutaneous method, into the thigh. Can the injection be into any part of the thigh ? Thank...

I’m trying to help someone who wants to self-inject using the sub-cutaneous meth...

wedgewood

•3 years ago

8 Replies

MMA and B12

So if high sublingual tablets are working for me- meaning I am no longer B12 deficient- an MMA test will confirm that this is the case?

So if high sublingual tablets are working for me- meaning I am no longer B12 def...

D9d9

•3 years ago

3 Replies

B12 high levels without taking supplement

Advice reference to high b12 blood test results. I have had high out of range blood results since 2018. 2018. Blue horizon 735. Range (569)....

Advice reference to high b12 blood test results. I have had high out of range ...

Harlech

•3 years ago

12 Replies

U

Is dysarthria a symptom of b12 deficiency?

Forensic6

•3 years ago

6 Replies

Very high IF Antibodies 300s

In August before my treatment my IF antibodies were 1.2 and I was diagnosed with pernicious anemia (B-12 160 with neuropathy). Now, after weekly injections on...

In August before my treatment my IF antibodies were 1.2 and I was diagnosed with...

strazzin

•3 years ago

8 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2021

Blood test results , platelet distribution width??

B12 excess and inflammation

Could it be B12? MOVIE

Calling fbirder -Where are you ?

IF and celiac test results 'normal'

Could it be b12 movie

MMA tests: serum vs urine tests

How do I know I can care for a baby?

Where to get private testing done

Methylcobalamin 5000mcg patches - do they work?

Advice with B12 results ?

What kind of magnesium should you take if taking b12 injections for PA?

Should I continue B12

B12 and hot flushes

Thank you.

Folic Acid

Does regular B12 injections as frequent as EOD lower ferritin levels?

Daily Express

Temperature

Essex

Need proof for clueless Doctor

5mg Folic Acid

Apotheke-mariannebrunn.de

B12 AND FOLATE BLOOD TEST RESULTS

My Labs

Advice please on S.I. by Sub-cutaneous method .

MMA and B12

B12 high levels without taking supplement

U

Very high IF Antibodies 300s

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