I have had another appointment with Oral Medicine consultant, the one who got rid of my angular cheilitis.
I am now seeking help from him about my burning tongue, which is an everyday occurrence despite my frequent self-injecting. He introduced the possibility of oral dysaesthesia, if the saliva sample does not produce any alternative results. He is somewhat doubtful that it will since all the swabs from angular cheilitis did not show expected candida/ staph infections.
When I looked up oral dysaesthesia/ burning mouth syndrome (BMS):
While I think he may be looking at primary dysaesthesia, which is burning without (known) cause, I was far more interested in the causes for secondary dysaesthesia.
They include (among others):
B12 / folic acid/ iron deficiencies
autoimmune diseases
salivary gland disorders
hormonal changes
...and a definite diagnosis of primary BMS relies on the exclusion of all secondary causes.
women are affected much more often that men - 7:1 - of which most are post-menopausal.
This information was from a lecturer's presentation slides to students at the University of Mosul studying dentistry.
The Oral Medicine consultant seemed keen to find out why I find it difficult to inhale and have a nasal obstructed voice pattern, believing this could be forcing me to breathe through my mouth at night, thus causing dry mouth and tongue soreness. As far as I can recall, I have always spoken this way. Next investigation recommended to my GP: nasal spray (Flixonase) then arrange ENT nasendoscopy locally. Have been informed that a telephone appointment has now been arranged for Wednesday. Maybe obstruction will turn out to be a long-lost crayon !
I hope this is of use to others, Sleepybunny - and will let you know of outcome. Will also try to post a photo.
PS: I have had B12/folic acid/iron deficiency, salivary gland disorder, perhaps autoimmune issues, but definitely fit the profile. Consultant not keen on my "sky-high" B12 levels, while I'm not keen on losing any of my hard-won gains.
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