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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for May 2021

Would appreciate any insight on this please. Am a newbie!

Positive for antibodies to Intrinsic Factor, extensive neurological involvement, but high active b12 - can anyone explain the latter? I have been supplementing...

Positive for antibodies to Intrinsic Factor, extensive neurological involvement,...

R0llrolls10

•3 years ago

8 Replies

Apotheke-marienbrunn.de

Has anyone heard of Apotheke-marienbrunn.de ? This is one in a few addresses I was given recently. I looked at them and they appear ok but I just want to...

Has anyone heard of Apotheke-marienbrunn.de ? This is one in a few addresses I w...

Margaret-S

•3 years ago

21 Replies

PA blood test

Ive been refused a PA blood test by my gp. My blood test results for B12 and Folate came back Normal/low borderline on the chart. Since reading all the...

Ive been refused a PA blood test by my gp. My blood test results for B12 and Fol...

Odinil

•3 years ago

4 Replies

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Candida anyone?

Hi. I wasn’t really sure where to post this but have been having health issues for several years. I have been diagnosed with vitamin deficiencies in the past...

Hi. I wasn’t really sure where to post this but have been having health issues f...

Hayley31

•3 years ago

14 Replies

Cost of Tests

Can someone please tell me what it would cost to have Pernicious Anemia tests done privately? I had NHS bloods sent off a while ago and my GP told me they...

Can someone please tell me what it would cost to have Pernicious Anemia tests do...

pigletcat

•3 years ago

7 Replies

stomach issues

Not yet had a diagnoses of PA but does anyone else have strange contractions of stomach and upper GI tract and is this a symptom of PA. Also have tachycardia...

Not yet had a diagnoses of PA but does anyone else have strange contractions of ...

Shelley1234567

•3 years ago

1 Reply

WARNING ABOUT German online pharmacy —-pharma24.de. who only guarantee that Rotexmedica B12 depot ampoules have a use-by date of 6 months .

I ordered 10 x 10 packets of Rotexmedica B12 ampoules ( 100) and on receipt noticed that the use -by date was just one year ahead . So I complained about such...

I ordered 10 x 10 packets of Rotexmedica B12 ampoules ( 100) and on receipt noti...

wedgewood

•3 years ago

6 Replies

Cyanocobalamin

Advice needed please So I usually buy and use hydroxy ampoules, I bought a new box of ampoules a couple of months ago and I have just discovered they are...

Advice needed please So I usually buy and use hydroxy ampoules, I bought a new b...

Pixielula

•3 years ago

18 Replies

Stuck in Time in the US

Hi guys, I have a question. I was diagnosed back in February with PA. My B12 was 94 pg/ml and I tested positive for IF antibodies. I was presenting with...

Hi guys, I have a question. I was diagnosed back in February with PA. My B12 was...

Volsfan918

•3 years ago

12 Replies

Feeling bad when discontinuing injections

I am taking b12 injections every other day. Since my legs have been burning lately, I decided to decrease the frequency. But as soon as more than 2 days go by...

I am taking b12 injections every other day. Since my legs have been burning late...

Zeffy90

•3 years ago

14 Replies

Neurological symptoms

I have been experiencing several severe symptoms over the past three to four years. Recurring chest infections, UTIs, heart racing, severe breathlessness,...

I have been experiencing several severe symptoms over the past three to four yea...

Skimmingstone226

•3 years ago

35 Replies

Fed up

Hi everyone I have B12 injections every 12 weeks and a yearly blood test. My doctors receptionist always tell me they are (Fine)??? And I carnt discuss it with...

Hi everyone I have B12 injections every 12 weeks and a yearly blood test. My doc...

Deejanator

•3 years ago

10 Replies

B12 level after a year of twice weekly injections.

Hello everyone. I would be interested in your opinions regarding my recent b12 test results done at my regular physical 2 days ago. I have a history of PA...

Hello everyone. I would be interested in your opinions regarding my recent b12 ...

jimmel196

•3 years ago

5 Replies

View from my window

Wisteria has done so well - will probably flower three times this year if I'm lucky. Liked the dramatic sky as a backdrop. This one is especially for Nackapan...

Wisteria has done so well - will probably flower three times this year if I'm lu...

Cherylclaire

Forum Support•3 years ago

13 Replies

Declining b12

Hi all, since my last post my Medichecks active b12 came in at 39, which is borderline. Doctors retested my serum b12 and it has come down from 209 to 190,...

Hi all, since my last post my Medichecks active b12 came in at 39, which is bord...

CanIHaveYourJuiceBox

•3 years ago

2 Replies

Where to get B12 ampoules

Hello all. I ordered Rotexmedica B12 ampoules from Bodfeld a few days ago and have had a message today saying they are not available from the manufacturer and...

Hello all. I ordered Rotexmedica B12 ampoules from Bodfeld a few days ago and ha...

Csl1

•3 years ago

17 Replies

Brain Fog

Hi I'm new here, though I've posted on the Thyroid Forum before. I'm a 51 year old male. In 2014 I went on a low carb high fat diet and it affected my thyroid...

Hi I'm new here, though I've posted on the Thyroid Forum before. I'm a 51 year o...

Arnold_Layne

•3 years ago

8 Replies

Have UK ref ranges for ferritin changed?

Hi, I'm sure I read on the forum recently that UK ref ranges for ferritin have changed. Does anyone know if this is true? I can't find the post where it was...

Hi, I'm sure I read on the forum recently that UK ref ranges for ferritin have c...

Sleepybunny

•3 years ago

8 Replies

Needing some help

Hi everyone! Haven’t posted on here for a long while as I’d been feeling ok :) but that was short lived (lol) Doctors ran tests and convinced me that nothing...

Hi everyone! Haven’t posted on here for a long while as I’d been feeling ok :) ...

Ellesbells12

•3 years ago

7 Replies

Where can I buy B12 ampoules

I have purchased (in the past) my B12 Ampoules from Amazon Gernamy - they are no longer shipping to the UK. I don't have a PayPal account (someone compromised...

I have purchased (in the past) my B12 Ampoules from Amazon Gernamy - they are no...

Silvershine

•3 years ago

18 Replies

Hiccups

I am due my B12 injection but for the last 2 days I cannot stop hiccuping does any one else get this

I am due my B12 injection but for the last 2 days I cannot stop hiccuping does a...

Anonom

•3 years ago

1 Reply

No screening required B12?.

someone who’s colon is removed, then years later there terminal ileum taken out. Why when I was told years ago I shouldn’t require any blood work for B12...

someone who’s colon is removed, then years later there terminal ileum taken out....

Twinkle_Little_Star

•3 years ago

6 Replies

Worried mum of teen daughter, suspect b12 deficiency

Hi, I’m new here as i’m trying to research as much as I can about B12 deficiency and PA. I have a 14 year old daughter who has been complaining of feeling...

Hi, I’m new here as i’m trying to research as much as I can about B12 deficiency...

ATS1304

•3 years ago

55 Replies

Red mark around B12 injection site ?

Hi The red marks have just started to appear but not after every injection. I have been self administering for approximately 6 months with no problems. My...

Hi The red marks have just started to appear but not after every injection. I h...

Divine1990

•3 years ago

6 Replies

Pharmacist Questions B12 Frequency

This is a story of my interaction yesterday with a pharmacist who is B12 ignorant. I'm in the US and I've been self injecting and receiving B12 injections...

This is a story of my interaction yesterday with a pharmacist who is B12 ignoran...

MoKayD

•3 years ago

15 Replies

Help with where to go next

Hi all, I posted this originally on the thyroid UK board and received some great advice but was advised to post here too so I hope you can help Hi all, I’m so...

Hi all, I posted this originally on the thyroid UK board and received some great...

Scottishsally

•3 years ago

15 Replies

D3 suggestions

Hi suggestions of best Vit d 3 supplements for a relative who is on a lot of heart medication for high blood pressure including aspirin and is anxious about...

Hi suggestions of best Vit d 3 supplements for a relative who is on a lot of hea...

Andypandy30

•3 years ago

3 Replies

Getting hold of the b12 ampules

I have tried endlessly to get hold of more b12 ampoules but going through PayPal is a nightmare. I was ordering through the bodfiled on Amazon option and the...

I have tried endlessly to get hold of more b12 ampoules but going through PayPal...

LittleA

•3 years ago

3 Replies

B12 Institute - Diagnosis and treatment pitfalls

B12 Institute is in Netherlands Article about diagnosis and treatment pitfalls https://b12-institute.nl/en/diagnosis-and-treatment-pitfalls/

B12 Institute is in Netherlands Article about diagnosis and treatment pitfalls h...

Sleepybunny

•3 years ago

20 Replies

B-12 Strange Colour

Hello I received B12 which is a strange colour. Bright red like liquid cherry candy. I have never seen b12 this colour. I have never used this company before....

Hello I received B12 which is a strange colour. Bright red like liquid cherry ca...

debrandw246

•3 years ago

12 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2021

Would appreciate any insight on this please. Am a newbie!

Apotheke-marienbrunn.de

PA blood test

Candida anyone?

Cost of Tests

stomach issues

WARNING ABOUT German online pharmacy —-pharma24.de. who only guarantee that Rotexmedica B12 depot ampoules have a use-by date of 6 months .

Cyanocobalamin

Stuck in Time in the US

Feeling bad when discontinuing injections

Neurological symptoms

Fed up

B12 level after a year of twice weekly injections.

View from my window

Declining b12

Where to get B12 ampoules

Brain Fog

Have UK ref ranges for ferritin changed?

Needing some help

Where can I buy B12 ampoules

Hiccups

No screening required B12?.

Worried mum of teen daughter, suspect b12 deficiency

Red mark around B12 injection site ?

Pharmacist Questions B12 Frequency

Help with where to go next

D3 suggestions

Getting hold of the b12 ampules

B12 Institute - Diagnosis and treatment pitfalls

B-12 Strange Colour

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive