Feeling bad when discontinuing inject... - Pernicious Anaemi...

Pernicious Anaemia Society

31,933 members23,073 posts

Feeling bad when discontinuing injections

Zeffy90 profile image
14 Replies

I am taking b12 injections every other day. Since my legs have been burning lately, I decided to decrease the frequency. But as soon as more than 2 days go by I start feeling sick, fatigued, depressed and can't concentrate. Does this happen to you as well? What do you recommend?

Written by
Zeffy90 profile image
Zeffy90
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Nackapan profile image
Nackapan

Keep going at present if it's keeping symptoms at bay.

Zeffy90 profile image
Zeffy90 in reply to Nackapan

Many symptoms have improved, however, I don't understand if the burning legs are caused by too much b12 or a healing process

Nackapan profile image
Nackapan in reply to Zeffy90

I would think healing.Wonderful you have had improvements as relatively early days

I burn up still like a hot flush after an injection. Transient .

I treat it as 'firing up

Sometimes vision goes down

Sometimes tinnitus

Sometimes dopey

Twice a surge of energy when I really didn't know what to do first as so many things I wanted to do.

I used to get terrible headaches / migraines the day after an injection.

But I continued every other day for months despite this as was alot worse off them.

Still not any consistent clear patterns after 2 1/2 years.

Am now at last yawning .an odd thing but enjoy it .

Some of my symptoms are now more recognisable from what are deemed 'typical'

Also I get an occasional pain I had before ill like crunchy knees or a sore lower back from standing.

That were masked by so much more going on .

While there's change there's hope.

wedgewood profile image
wedgewood

Keep injecting every other day . Burning legs/ feet can be a sign of B12 deficiency. Are you taking a daily 400mcg tablet of folic acid . It works withB12 .

Zeffy90 profile image
Zeffy90 in reply to wedgewood

I was taking 400 mg of methylfolate but stopped recently because it was making me very anxious. My legs have been burning since I started taking the injections.

Narwhal10 profile image
Narwhal10

Hi Zeffy90,Sorry to hear you are suffering. It’s a case of which symptoms have least impact. I’ve found it completely trial and error. I read your other posts and you say you have IBS ? Has anyone recommended the FODMAPS diet ?

Take good care.

Zeffy90 profile image
Zeffy90 in reply to Narwhal10

After taking a probiotic and cutting out fruit, my ibs improved tremendously.

Nackapan profile image
Nackapan in reply to Zeffy90

White bread better than wholemeal. My mum found .

Might be fructose as that can be a problem.

Berries might be okay to try.

Leils profile image
Leils

I have to stick to every other day.

Magnesium should help with burning legs

Also B5. Are you on a B complex?

Zeffy90 profile image
Zeffy90 in reply to Leils

No, because they contain folic acid and I have the MTHFR mutation, so I think it's better to use methylfolate.

Leils profile image
Leils in reply to Zeffy90

Yes, understand that.

There is a B complex made by seeking health that has no folic acid in it if you did want one. Called B Minus.

Zeffy90 profile image
Zeffy90

I previously had no problems with my legs other than sciatic nerve pain every month (which went away after the injections).

Nackapan profile image
Nackapan

Unbelievable...grrr

deniseinmilden profile image
deniseinmilden

I just wonder if you have had your potassium and magnesium levels checked?

If not this could be a good thing to do as it suggests to me that your muscles are lacking something. Electrolytes are the most obvious ones but it could be other vitamins and minerals - my head is suggesting vitamin E and selenium, despite this being a rare problem for us.

While you're about it, ask them to check folate, iron and Vit D too.

Once you have had your blood tests it's a good idea to take a broad spectrum A-Z multivitamin and mineral supplement as a background starting point and then make sure you eat high nutrient foods.

You are doing the right thing by listening to your body and hearing its complaints! If you were OK before it suggests there is possibly a problem - not with the jabs but in addition to them.

Good for you! Go look for answers!

I hope you find them soon and you feel better.

You may also like...

Feeling bad after injection

have been feeling very bad since my first injection on Monday. The first two days I was very weak...

Feel Bad After B12 injection

Hey, So i had a B12 injection today at 11.30. As soon as i had this injection i felt little rush of...

Discontinuing B12 injections.

need injections for life or not? Can high B12 cause paraesthesia? I know the received wisdom is...

Is it ok to go ahead with self injection when feeling so weak

400 twice a day and and potassium rich foods . Should I persevere and try every other day as I...

When can I expect to feel the effect from B12 injections?

tired and fatigue among other typical symptoms due to b12 defiency. I'v received two injections so...