Hi all, since my last post my Medichecks active b12 came in at 39, which is borderline.
Doctors retested my serum b12 and it has come down from 209 to 190, when I actually started taking supplements! I fought my GP and had an intrinsic factor antibody test today (haven’t taken b12 since April 27th so shouldn’t interfere).
I also sent a letter with relevant BSH guidelines which state b12 levels under 200 with neuro symptoms, of which I have many, should be treated with EOD injections. The doctors are discussing my case but it sounds like they are going to agree to me having injections. I feel so relieved.
I think I am to assume I have PA, with the fact I:
- already have two linked pre existing autoimmune diseases
- have a father with type 1 diabetes and vitiligo, with one small patch of vitiligo on my hand
- have declining b12 serum levels despite eating animal products and taking supplements
Feeling confident. Hopefully they allow me to have injections as I currently feel awful. I can’t remember a time when my ears didn’t ring, my hands didn’t buzz and my tongue and mouth didn’t hurt.
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CanIHaveYourJuiceBox
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Thought I'd add that BSH guidelines indicate that people who are symptomatic for B12 deficiency should be treated even if their serum B12 result is within normal range.
Maybe your GP would like a copy of the summary below?
"In presence of discordance between the test result and strong clinical features of deficiency, treatment should not be delayed to avoid neurological impairment
Which to me means,
if you have the symptoms of B12 deficiency, you should be treated even if B12 result is normal, to stop neurological damage.
If PA is a possibility, worth joining and talking to PAS.
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