Neuropathy from being Deficient?

[Chris5629]

I found out Feb 1, 2019 that I was deficient. I was told to take b12 supplements. I’m guessing I had been deficient for maybe 4 years or more as I got really sick in 2016. Looking back, the symptoms I had were possibly from b12. No one ever checked nor did I know anything about b12.

Fast forward. Anxiety went away. Now I’m getting what seems like neuropathy/nerve pain. Burning sensations on my fingers, arms, feet, hands, legs. My skin will feel itchy for no reason. I tried lotion for dry skin but never helped. My finger tips will burn and my palms from time to time will be sensitive to whatever I’m touching.

(I do have asthma and allergies but these symptoms described above started late last year into this year). Not to be gross, sometimes burning pain down my leg and feet when I have to use the restroom.

Does this sound like neuropathy from b12?

What were/are any of your symptoms?

I live in the US and was never given injections. Sometimes I feel my doctors don’t want to help or know what to do.

[fbirder]

Did the oral B12 increase your blood levels?

There are over 80 possible causes of peripheral neuropathy. Only a neurologist can tell what is causing yours.

[Chris5629 in reply to fbirder]

Yes. From April 2019 to now it has. My last blood test was in December. It was over 2000. I was told to stop taking the supplements. I still am taking them.

[fbirder in reply to Chris5629]

Keep taking them. You cannot possibly overdose on B12, especially not orally.

That means that you are absorbing B12, so no need for injections.

[Sleepybunny]

HI,

A few links that you may find helpful.

I'm in UK so some links may have info specific to UK.

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society).

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (US authors)

Very comprehensive with lots of case studies.

PAS (Pernicious Anaemia Society)

Based in Wales, UK. Has some members in other countries.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring and an online contact form.

B12 Deficiency Info website

b12deficiency.info/

B12 Awareness (US website)

b12awareness.org/

US link about PA

rarediseases.org/rare-disea...

Stichting B12 Tekort (Dutch website with English articles)

stichtingb12tekort.nl/weten...

Films about b12 deficiency

b12deficiency.info/films/

B12 article from Mayo Clinic in US

ncbi.nlm.nih.gov/pmc/articl...

Table 1 in above article is about frequent misconceptions about B12 deficiency.

I am not medically trained.

[Jirachi]

This is sounding a bit similar to what I’m experiencing! I have quite low b12 but recently had my injections for it. I am experiencing horrible symptoms like burning in my arms, face, legs and hands. Pain everywhere, really bad anxiety, chest pain and others. I also have asthma to. I would also like to know if its neuropathy from b12 as the doctors keep telling me that my anxiety is causing a flood of symptoms which i know it isn’t

[Jirachi in reply to Jirachi]

I also get really itchy for no reason on my stomach in the same spots that i cause myself to rash