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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for December 2020

Martyn's new book

Hi, I missed this recent post on Martyn Hooper's blog. It's about his new book which includes recipes that contain B12. He acknowledges that the recipes won't...

Hi, I missed this recent post on Martyn Hooper's blog. It's about his new book w...

Sleepybunny

•3 years ago

3 Replies

B12

Ears burning hissing more from b12 injections Neuro issues 🥺 Normal ?

Milley2

•3 years ago

1 Reply

B12 folate

If your taking alter day b12 And a folate supp of 400 ug on these days or few times a week Would there be any reason fir increased neuro issues like ear...

If your taking alter day b12 And a folate supp of 400 ug on these days or few t...

Milley2

•3 years ago

8 Replies

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Low B12

Blood test for B12 was 177ng/L. range 197.0-771.0 I asked for injections from GP. He said no as they only give injections for pernicious Anaemia and to get a...

Blood test for B12 was 177ng/L. range 197.0-771.0 I asked for injections from G...

meme

•3 years ago

8 Replies

B12 injections side affects

hi been having b12 for 7 years haf one yester feel as if I been fun over by a bus not happened before

hi been having b12 for 7 years haf one yester feel as if I been fun over by a bu...

Hbkb

•3 years ago

1 Reply

Side effects

Can to much b12 cause side effects or similar symtoms of the defiency ? Like prickly skin nausea weight loss anxiety ear hissing ? Weight loss a lot no...

Can to much b12 cause side effects or similar symtoms of the defiency ? Like pr...

Milley2

•3 years ago

23 Replies

Cant seem to win!

Fed up. My doctor rang last night (a first when not a booked consult) My blood results back. Iron and ferritin levels have improved. Vitamin D dropped again...

Fed up. My doctor rang last night (a first when not a booked consult) My blood ...

Nackapan

•3 years ago

26 Replies

Has anyone purchased B-12 from this canadian website?

Hello everyone! I'm curious if anyone has ever purchased B-12 through www.canadadrugsuperstore.com?

Hello everyone! I'm curious if anyone has ever purchased B-12 through www.canada...

KristinCC

•3 years ago

6 Replies

Why are my legs painful and burning?!

Hi everyone, so I’m used to bouts of my toes really hurting, usually for a few weeks at a time and then it eases off, I think that’s referred to as peripheral...

Hi everyone, so I’m used to bouts of my toes really hurting, usually for a few w...

ExploringWonderland

•3 years ago

8 Replies

Driving in the dark

I am just wondering if anemia messes with your eyesight I had glasses since the first grade and my eye sight is getting worse. I am now 28 and I can’t see a...

I am just wondering if anemia messes with your eyesight I had glasses since the ...

mcginnmx

•3 years ago

6 Replies

Next steps

Hi I am new. I feel very low and stressed out at the moment. I haven’t got any motivation to work or even manage my health. I had low B12 which has been...

Hi I am new. I feel very low and stressed out at the moment. I haven’t got any m...

Kaydee88

•3 years ago

10 Replies

PA and Covid Vaccines

Are the new Covid vaccines safe for PA patients?

Estrella1969

•3 years ago

3 Replies

HEmoglobine in normal range

Hello evryone Please my red blood cell are in normal range but my CCMHand TCMH are low What can decrease this n’ombres Thanks

Hello evryone Please my red blood cell are in normal range but my CCMHand TCMH ...

Raoudha

•3 years ago

4 Replies

Does the body require more Hydroxocolalamin if taken more than every 3 months?

In two months I have heard of both a nurse and a phlebotomist say that the more frequently a person has an injection of Hydroxocobalamin, the more frequently...

In two months I have heard of both a nurse and a phlebotomist say that the more ...

Contralto

•3 years ago

15 Replies

Folic levels

Just had folic results from doctor. They were 5.4ugl. Doc says they are fine. Are they telling the truth ?

Just had folic results from doctor. They were 5.4ugl. Doc says they are fine. Ar...

Jennybob

•3 years ago

7 Replies

Are there any links ?

I posted a couple of months ago after I was refused 3 monthly b12 injections after a blood test came back measuring 173. After reading and taking advice from...

I posted a couple of months ago after I was refused 3 monthly b12 injections aft...

Fullondoglover

•3 years ago

Be the first to reply

Freaking out a bit

So, I was late for my period and then about 70 hours after getting my first b12 shot it showed up suddenly. However, it has been much lighter than usual. I am...

So, I was late for my period and then about 70 hours after getting my first b12 ...

WanderingSassenach

•3 years ago

Be the first to reply

IFA test after B12 shots

My GP told me today that she won’t re-test my blood for IFA as once I’ve started B12 shots it gives false positives. I’m aware that the IFA test often gives...

My GP told me today that she won’t re-test my blood for IFA as once I’ve started...

Cinders70

•3 years ago

2 Replies

Increased Shallow Breathing

Hi all! First of all thank you for all the support and assistance, this forum has been a huge help. One of my symptoms of b12 deficiency is shallow breathing...

Hi all! First of all thank you for all the support and assistance, this forum ha...

Dolansan

•3 years ago

5 Replies

B12 injection cancelled for covid injections.

This post is not a grouse against the massively important Covid vaccine. After last weeks tussle with practice nurse I am flummoxed that yet again I will be...

This post is not a grouse against the massively important Covid vaccine. After...

barbegrub

•3 years ago

7 Replies

How long before symptoms return

My dr has stopped my B12 shots because the intrinsic factor test came back negative, even tho it was positive in 2012 which led to me being diagnosed with PA....

My dr has stopped my B12 shots because the intrinsic factor test came back negat...

wendyhoney

•3 years ago

2 Replies

B12 supplements with intrinsic factor

Has anyone tried b12 supplements with intrinsic factor ? I’m wondering if supplementing with intrinsic factor would help reduce excess methylmalonic acid or if...

Has anyone tried b12 supplements with intrinsic factor ? I’m wondering if supple...

Samsungtracy

•3 years ago

6 Replies

Nitrofurantoin (macrobid) and vit b12 deficiency

Hi all, I recently had a 3 day course of Nitrofurantoin (macrobid) for a UTI. The gp also requested routine blood tests Which have today indicated Serum...

Hi all, I recently had a 3 day course of Nitrofurantoin (macrobid) for a UTI. Th...

Job387

•3 years ago

9 Replies

Awareness of heart beating

Hi has anyone experienced this? Diagnosed b12 deficient in May. Loading doses and gp / neurologist wouldn't give anymore. Numb foot came back in July so...

Hi has anyone experienced this? Diagnosed b12 deficient in May. Loading doses an...

Deronda77

•3 years ago

13 Replies

Blood test

Hey everyone.. my doctor has requested I go in tomorrow to have my bloods done as he wants to check over everything.. I am a bit wary as they don't know i...

Hey everyone.. my doctor has requested I go in tomorrow to have my bloods done a...

Ljbillo

•3 years ago

9 Replies

MMA is it affected by injecting?

Hi will MMA indicate pernicious anaemia if you have been injecting b12? Is it linked? I take ad hoc for ME and Pots. My serum and active have previously been...

Hi will MMA indicate pernicious anaemia if you have been injecting b12? Is it l...

Wattie88

•3 years ago

3 Replies

Vitamin b12 Deficient ..Low as 131pg/ml

Its started about 3 weeks back when it got dizziness, lack of concentration, numbness/tingling mainly affecting on right side of my body, also faced imbalance...

Its started about 3 weeks back when it got dizziness, lack of concentration, num...

Akshay145

•3 years ago

2 Replies

Advice please

So I first got my B12 checked (October) and it was 148 so started on 5 loading doses over 2 weeks then told next one due 12weeks later. I had a wee blip of...

So I first got my B12 checked (October) and it was 148 so started on 5 loading d...

Bamboo71

•3 years ago

7 Replies

Very High B12 Serum Level

I was diagnosed with PA in May/June 2020 and have been self-injecting for the past six months. Initially I was injecting 5000 mcg methylcobalamin daily, then...

I was diagnosed with PA in May/June 2020 and have been self-injecting for the pa...

HealingRose

•3 years ago

3 Replies

B12 deficiency?

Hi, we’re in NZ where the acceptable serum b12 levels are 110-650. My 14 year old daughter has had levels of 89 at end of August, then weekly injections, was...

Hi, we’re in NZ where the acceptable serum b12 levels are 110-650. My 14 year ol...

KRTb12

•3 years ago

4 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(76)

All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2020

Martyn's new book

B12

B12 folate

Low B12

B12 injections side affects

Side effects

Cant seem to win!

Has anyone purchased B-12 from this canadian website?

Why are my legs painful and burning?!

Driving in the dark

Next steps

PA and Covid Vaccines

HEmoglobine in normal range

Does the body require more Hydroxocolalamin if taken more than every 3 months?

Folic levels

Are there any links ?

Freaking out a bit

IFA test after B12 shots

Increased Shallow Breathing

B12 injection cancelled for covid injections.

How long before symptoms return

B12 supplements with intrinsic factor

Nitrofurantoin (macrobid) and vit b12 deficiency

Awareness of heart beating

Blood test

MMA is it affected by injecting?

Vitamin b12 Deficient ..Low as 131pg/ml

Advice please

Very High B12 Serum Level

B12 deficiency?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive