Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for December 2020

How to store b-12 injektions?

Hi guys, I have bought 100 b-12 ampules ( Rotexmedica) from Germany. Will I put it in the fridge or where do you store ut? Thank you, /M

Hi guys, I have bought 100 b-12 ampules ( Rotexmedica) from Germany. Will I put ...

Hidden

•3 years ago

4 Replies

Polycystic Ovarian Syndrome and PA

Hello folks, I'm new here and I am curious who else is going through this? I have had PCOS since I was a preteen and just recently am having a second bout with...

Hello folks, I'm new here and I am curious who else is going through this? I hav...

WanderingSassenach

•3 years ago

8 Replies

IF test

Hello How do I go about getting an intrinsic factor test please? Is this something a GP can do on request at an appointment or do they need as advance......

Hello How do I go about getting an intrinsic factor test please? Is this someth...

BluebellPettle

•3 years ago

4 Replies

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Safe to exercise with pernicious anemia?

Hi, and thank you for the wonderful resource! I am 45, and my B12 deficiency was first identified in June 2019, after I had been suffering for at least 3-4...

Hi, and thank you for the wonderful resource! I am 45, and my B12 deficiency wa...

Maksmomma

•3 years ago

18 Replies

Advice

Hi everyone, I hope you’re all safe and well! Routine blood tests have shown my B12 and folate levels to now be normal (whatever normal is), but feel like...

Hi everyone, I hope you’re all safe and well! Routine blood tests have shown m...

Ellesbells12

•3 years ago

5 Replies

New and wanting to know this is "Normal". Your experience?

Hey everyone! I'm new to the platform. Little back story. In 2013 I got the gastric sleeve. Since then I have had chronic anemia. My iron has consistently...

Hey everyone! I'm new to the platform. Little back story. In 2013 I got the gast...

anastasiaoctavia

•3 years ago

2 Replies

B12 levels

Hi guys iv just finished my two week loading of b12 injections and already I’m starting to feel the benefit of it, I have a lot more energy however I’m still...

Hi guys iv just finished my two week loading of b12 injections and already I’m s...

Hobbs1980

•3 years ago

6 Replies

Diet to help with pernicious Anaemia

Hello Has anyone tried changing their diet to help with the symptoms associated with pernicious Anaemia? I personally have stopped eating wheat and other...

Hello Has anyone tried changing their diet to help with the symptoms associated...

Rhesus23

•3 years ago

6 Replies

Recovery timeline

Hello I am curious how long it took for some of you to “recover” from B12 deficiency. When I say recover I mean having the majority of your symptoms subside?...

Hello I am curious how long it took for some of you to “recover” from B12 defic...

Ctadds1

•3 years ago

9 Replies

Hello long time no post!

Hello I first posted a few years back and with your help came to the conclusion that I was low in b12. Things Have moved on! But for context I continued to...

Hello I first posted a few years back and with your help came to the conclusion...

BluebellPettle

•3 years ago

9 Replies

No self injections allowed

I had phone appointment with practise nurse who diagnosed my PA. I asked if she will give me 6 weekly injections. No. I asked if I could have 8 weekly. No....

I had phone appointment with practise nurse who diagnosed my PA. I asked if she...

barbegrub

•3 years ago

24 Replies

Online B12 injections

Hello Has anyone purchased B12 injections on line Have you managed to inject yourself? Lirraine

Hello Has anyone purchased B12 injections on line Have you managed to inject yo...

LorraineBav

•3 years ago

2 Replies

Help with B12

My doctor put me in B12 injections. I was feeling very tired, hair falling out etc. I got them for 5 days in a row then 2 weeks later then another 2 weeks. He...

My doctor put me in B12 injections. I was feeling very tired, hair falling out e...

LorraineBav

•3 years ago

16 Replies

BPPV Vertigo and Pernicious Anaemia

I keep reading in the posts about Vertigo. My question is does Benign Proximal Positional Vertigo BPPV have a connection to pernicious anaemia and Vit B12...

I keep reading in the posts about Vertigo. My question is does Benign Proximal ...

DBHolland

•3 years ago

16 Replies

Does betaine hcl help?

I really want to improve my digestion. Lately I have tried betaine hcl with no success. When taking a pill after lunch, I get very anxious and have a slight...

I really want to improve my digestion. Lately I have tried betaine hcl with no s...

Zeffy90

•3 years ago

4 Replies

I currently get b12 injections from a pharmacy in the US, however, I feel that I need to inject more often. Where could I buy b12?

I want to buy a large amount so I dont have to worry about going through the pharmacy.

I want to buy a large amount so I dont have to worry about going through the pha...

Dakota17777

•3 years ago

4 Replies

Petition for b12 OTC

Hope more have written to their mps to support this . By chance I'm in the same constituency as another who wrote We got identical replies to very different...

Hope more have written to their mps to support this . By chance I'm in the same ...

Nackapan

•3 years ago

3 Replies

Oral b12 or injections

Diagnosed with low b12(130) had loading injections, not heard from gp since. I started self injecting hydroxycobalamin but continued feeling rubbish and have...

Diagnosed with low b12(130) had loading injections, not heard from gp since. I s...

Mag999

•3 years ago

32 Replies

Methycobalamin B12 injections

Hi, I’m in Ireland getting B12 injections since age 35 - (20 odd yrs) changed my life for the better. I have read that Methycobalamin is the best form ofB12...

Hi, I’m in Ireland getting B12 injections since age 35 - (20 odd yrs) changed m...

Eile2018

•3 years ago

3 Replies

Vitamin B12 deficiency level 131pg/ml..ya really low

Its been 2 weeks since I m tested fort B12 deficiency. Currently had my 5 shots of methylcobalamin every alternate day. But still feeling bit dizzy, confused,...

Its been 2 weeks since I m tested fort B12 deficiency. Currently had my 5 shots ...

Akshay145

•3 years ago

6 Replies

Second b12 blood test result - advice please

Hi everyone. I posted a couple of months ago about being hit with a barrage of neurological issues: muscles shaking/ tremors, twitching etc. These all started...

Hi everyone. I posted a couple of months ago about being hit with a barrage of n...

Mayfly999

•3 years ago

3 Replies

Where do i get needles?

Hi, My wife has PA & has an injection every 8 weeks but the doctor can't increase due to Nice guidelines. I've looked into getting a supply of b12 from...

Hi, My wife has PA & has an injection every 8 weeks but the doctor can't increa...

nastynigel

•3 years ago

11 Replies

Blood Test Results

Hi could someone preferably medically trained give me a run down of my blood results as its almost impossible to speak to my own GP, so I've had to ask the...

Hi could someone preferably medically trained give me a run down of my blood res...

Bluesjc87

•3 years ago

1 Reply

3rd time being told I no longer have Anemia, this time it wasn't a DO, but an Internal Med DR! How many people suffer because of this? USA

I'm at my wits end and went to the dr today for a referral to Hematologist, but the Internal dr I saw said "no," and when I asked why they cut back my monthly...

I'm at my wits end and went to the dr today for a referral to Hematologist, but ...

robinsnestwalke

•3 years ago

1 Reply

SIBO

Does anyone have any experience of resolving SIBO? What did you do and what were the improvements? I think this may be why I don't absorb B12 as well as I...

Does anyone have any experience of resolving SIBO? What did you do and what were...

Cakebake

•3 years ago

12 Replies

Advice about folate deficiency

Hi all, I was recently diagnosed with Pernicious Anemia through the test after about two years of being diagnosed with B12 deficiency. I took the plunge and...

Hi all, I was recently diagnosed with Pernicious Anemia through the test after a...

Luac

•3 years ago

7 Replies

weird test results

my first test came back positive for gastric parietal cell antibodies using the Elisa test. Second test tests 5 years later for parietal cell antibody...

my first test came back positive for gastric parietal cell antibodies using the ...

BumbleBeeBumble

•3 years ago

2 Replies

How often can I self inject

Hiya all, could anyone give me any info on how often I should self inject, I have 3 monthly injections by docs but it’s literally makes a difference for about...

Hiya all, could anyone give me any info on how often I should self inject, I hav...

Romany8

•3 years ago

4 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2020

How to store b-12 injektions?

Polycystic Ovarian Syndrome and PA

IF test

Safe to exercise with pernicious anemia?

Advice

New and wanting to know this is "Normal". Your experience?

B12 levels

Diet to help with pernicious Anaemia

Recovery timeline

Hello long time no post!

No self injections allowed

Online B12 injections

Help with B12

BPPV Vertigo and Pernicious Anaemia

Does betaine hcl help?

I currently get b12 injections from a pharmacy in the US, however, I feel that I need to inject more often. Where could I buy b12?

Petition for b12 OTC

Oral b12 or injections

Methycobalamin B12 injections

Vitamin B12 deficiency level 131pg/ml..ya really low

Second b12 blood test result - advice please

Where do i get needles?

Blood Test Results

3rd time being told I no longer have Anemia, this time it wasn't a DO, but an Internal Med DR! How many people suffer because of this? USA

SIBO

Advice about folate deficiency

weird test results

How often can I self inject

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive