B12 INJECTIOSS: Where can I buy vitamin... - Pernicious Anaemi...

Pernicious Anaemia Society

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B12 INJECTIOSS

Burbank profile image
6 Replies

Where can I buy vitamin B and needles to self medicate as I'm an exhausted carer and my doctor stopped my medication 9 months ago? Any information would be appreciated, thankyou

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Burbank
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6 Replies
fbirder profile image
fbirder

healthunlocked.com/pasoc/po....

Nackapan profile image
Nackapan

Firstly look at wedgewood posts and fbirder for shopping lists. Medisave is where I get my needkes from.

Do write to your sugery

Do get help from PAS

Dont give up

Loads of posts to loom at if yih uses topics af the top. Magnifying glass

Meanwhile I wish you well doing your own.

Also be good to post again so we know the outcome for you.

Were your notes found?

Burbank profile image
Burbank in reply to Nackapan

No my notes have never been seen since

Nackapan profile image
Nackapan in reply to Burbank

You can get a copy

Sleepybunny profile image
Sleepybunny

Hi,

"doctor stopped my medication 9 months ago"

Did you challenge your doctor and ask them to explain why your medication was stopped?

Have you asked GPs to reinstate B12 injections?

Unhappy with Treatment (UK info)?

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

If you want to query your treatment then I recommend putting your concerns into a brief, polite letter to GP as I think letters are harder to ignore. The link above has letter templates that people can base their own letters on.

CAB NHS Complaints

citizensadvice.org.uk/healt...

May also be worth contacting your MP/devolved representative to see if they can help.

If GP won't start injections again then you could draw their attention in any letter or conversation to the risk of permanent neurological damage if a person is untreated or under treated for B12 deficiency.

Neurological Consequences of B12 Deficiency

PAS news item

pernicious-anaemia-society....

PAS article about SACD, sub acute combined degeneration of the spinal cord

pernicious-anaemia-society....

If you have a PA diagnosis or suspect you have PA then worth joining and talking to PAS.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

There is a PAS leaflet "Treatment is for Life". You would need to be a PAS member to access it.

pernicious-anaemia-society....

Latest PAS news item about contacting NHSE about treatment concerns during pandemic

pernicious-anaemia-society....

I started a thread about this in last few days which has some useful contact details.

healthunlocked.com/pasoc/po...

More B12 info in my replies on the the thread below eg symptoms, causes of B12 deficiency, B12 books, B12 websites, B12 articles/documents and a few hints about dealing with unhelpful GPs.

healthunlocked.com/pasoc/po...

I am not medically trained.

Burbank profile image
Burbank in reply to Sleepybunny

thankyou,I have asked many times for my injections to be given again but no joy

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