Well the end to the tale for now is the Gp surgery have basically bullied my mum into submission. They rang her . She can hardly hear. Deaf in one and partial hearing in the other.
She knows its causing an upset so she said it's alright she wont have them anymore!! She knows the nurses are busy.
Lost for words. Her level was 170( below range used ) and before she had inje tions she was rooted to the spot. It was awful. The Injections got her shuffling again si at least could get around house.
The usual way or the right way would be for a kind nurses to give her the injections to help her function mentally and physically . Not to stop them and upset her and everyone in the process.
It's not over .......
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Nackapan
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Bloody disgraceful treating our elderly like this makes my blood boil.Keep battling as long as your able to and meantime step in if she’s willing and administer yourself.im so sorry.xx
I feel for you Nackapan . The NHS is disgraceful towards your mother. That behaviour is cruel and unprofessional. Something must be done . Can she become a member of PAS , then they could intervene on her behalf . That surgery must not be allowed to get away with it. You must be beside yourself .
I would DIY bit I think my mum would say and I'd be In a heap of trouble she woukdnt'get' so im not going too .
I've not finished.
One of my daughtets will be home soon. She will do a brilliant letter .
She was an English teacher so has more polite eloquent language than me!
She will get up to speed and has b12 inje tions herself so 'gets it'
Often grandchildren are taken more note of too.
I'm too angry and frustrated I'm not well enough to get into gear .
More lessons with b12 deficiency/PA . Step down and micro manage.
Its all very well mum agreeing/bullied inti submission.
When she gets 'shut down ' and not functioning at all. The nurses and Gp dont see this . I have to deal with her.
It's almost like control over the elderly to become too ill to know what ti do or what happened.
They(medics) do not connect her 'shutting down ' to b12 deficiency/PA .
I saw the change in her after b12 Injections . She woke up. I really thought she was getting dementia but she wasnt . She had a better response than me. No ill effects at all. Not a cure all obviously but a help.
I'll let you all know the surgeries response at a later date.
If she lacks capacity to make reasoned decisions is it possible to argue that lack of capacity was not taken into account when she agreed to them stopping injections?
Would she consider going to a private GP/hospital?
Integrated Community Teams/District Nurses
Not sure what the correct term is these days but I wondered if you could contact the ICT or DN team for your area and ask about possibility of your mother having jabs from them at some point.
Blog post about elderly and b12 deficiency (may be upsetting to read)
Thank you. I've spoken to the district nurse team. It was them that withdrew their home visits 3 monthly and handed that info back to her surgery. Then it all began!! It will get sorted. Just cant believe the medics attitude to this at all.
She had a blood test after shutting down when I first ill. So I immediately arranged for someone to get her to the surgery for a b12 blood test and others. 2 years ago. She was prescribed the Injections and as saw she can hardly move arranged the district nurse team to do them.
The district nurses rang my mum. Just told her they woukdnt be coming anymore . I wrongly thought Covid but they went on for last two .?? Last one in August.
I've since realised the contract has changed . Bid won by costing less. So cuts being made as cant deliver same service.
So what do they do. Hit the most vulnerable often without ' a voice'
The surgery says housebound is on her notes. Must be something they asked her on the phone that she said yes to?? When I asked she only gir hey were not coming.
Your mum does not recognise her own frailty even after her fall. I do hope you delegate to your daughter and it’s good that she understands B12/PA.
Regardless of who has won the contract, patient safety, POVA (protection of vulnerable adults) and safeguarding are issues. Maybe the way around your mother’s compliance is CQC ‘Safeguarding Statement’ p6 which describes one issue of safeguarding as
Point 4.
‘Recognising that adults sometimes have complex interpersonal relationships and may be ambivalent, unclear or unrealistic about their personal circumstances and therefore potential risks to their safety or wellbeing.’
This also maybe of some use - From Comprehensive Geriatric Assessment :
‘ Frailty can be worsened by seemingly small events, such as a minor infection or a CHANGE IN MEDICATION I.e, not receiving her vitamin b12 I.M. injection at home. Whilst there is evidence that frailty may be modifiable, in the current system a person will typically present IN CRISIS with non-specific manifestations of frailty such as delirium, sudden immobility or (ANOTHER) fall.’
That’s even before your mum shows vitamin b12 deficiency symptoms again!!
I hope you are able to get some rest tonight and know our thoughts are with you.
I really feel for you and your mum. Healthcare for the elderly (and not so elderly too) is sadly lacking at present. My dad will agree to something just so he’s not a ‘nuisance’ but half the time he doesn’t hear what’s been said, and says yes and no where he thinks he should! You are a determined person and will resolve this one.
so sorry to hear the way that your elderly mother is being treated Nackapan I think I would put pen to paper and write to the practice manager and also send a copy to your MP.
I'm heart sorry to hear this, it's unbelievable in a so called civilised country ! I agree with the excellent suggestions from everyone here, and it sounds like you have good plans to move things forward, so I wish you all the very best . Thank goodness your Mum has such a wonderful family looking out for her ! xx
I echoe the others Nackapan. Ask your daughter to pen a formal letter to the practise including the amazing quotes given above and at the bottom cc your MP & the CQC. Make sure you ask for a response within a specified time frame. Cc people in will make them act when they see others are being made aware. They dare not ignore it. The cost for the b12 jab is pennies and seeing as your mum has a slow healing cut as you say can be a combined visit. Its inexcusable.
Outrageous and frankly they've clearly forgotten their doctors oath ...."first do no harm."
Yes thankyou. Will get my daughter to do it if necessary.
I think you missed the post yesterday.
A district nurse just turned up yesterday . Couldnt get in as mum had no idea she/he was coming .!!she didnt hear the doorbell. We have a light flashing it going on and on but if shes not expecting anyone shes not even put her hearing aid in!
Also because of certain events of signing up for expensive porches and at one stage had 4 energy providers. Agreed to pay £400 to have the drive power washed . Then tells me and I have ti get her out of contracs ect. CCTV installed. I've told her not to answer the door unless someone expected.
The nurse rang later saying they would return today. No idea who actioned it and who had a change of heart. ?? I doubt b12 will be done as they said it had stopped but hope as you say wound looked at and dressed and it would make sense to get the b12 done.
Will see !! Just no communication. Have my telephone number on her notes and now my sisters but she is often not available and away alot . A simple text to me to say coming. I live very close to her.
Why they want to give her another blood test for b12?? All seems ridiculous and actually cheaper to carry on with 3 monthly b12 injectuon dine by a district nurse. All this admin . Doctors time reading copies messages left on her notes left by me. I didnt even ask for wound to be looked at but said it affecting her mobility more?? She deficiency needs her b12 as quite vacant yesterday.
Seems confused and they are looking for a way out......hence the b12 blood test so if its above the range they are likely to say she no longer needs them.....lol Not meant to test b12 once on injections but ignorance breeds incompetance am afraid.
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VIT B12 INJECTIONS STOPPED
B12 stopping injections 
Stopping B12 injections.
