FERRITEN iron

[Milley2]

FERRITEN level 39 Gp says in range

I went b12 defiency in March this year had loading doses etc and folic to raise levels

I eat meat etc and good food

Intrinsic factor was normal

It’s now sept still symptomatic mainly ear hiss and humming which is vile

I requested h pylori test it was positive ?

So am in anti biotics to treat this

Glad I asked fir the test as I wasn’t ok

It’s now 6months in ive SI myself but it was doing nothing

And not noticed any difference only that my ears are worse

So

Could this be iron related ?

Range was 58 then 49 then. 43

Now 40 I think or just under

Gp and consultant said I’ll need iron if it gets to 20?

Could this ear noise etc be the FERRITEN low ?

They say I’m in range

It’s awFull

[Nackapan]

The symptoms usually of low ferritin are hair loss. Fatigue. Our of breath easily shaky and lots more.

Some people with your readiing in range are fine and have no symptoms. A large range.

I've been told that a ferritin level under 5o can give symptoms.

Discuss this with your doctor.

I did as the level was 29 and I was right in thinking too low for me. It is now 58.

Probably an absorbtion problem that should improve after your antibiotic treatment.

My ears hiss as well as my head. Akso get tinnitus which dims different again. Mi e initially was slot worse with b12 injections??

Not as bad now. Usually when using my eyes to sat type this sets it off to quite a shrill pitch.

[Milley2 in reply to Nackapan]

Hi thanks fir that my level was 43? Think it may if dropped again since Aug

I had h pylori which I’m on medicine for

Are you saying the b12 shits made you worse ? As I’ve found this to but mines constant throughout the day which is exhausting

Gp says my level is ok If it drops to 20 then I need iron but I’m pretyyy sure at this level it’s maybe causing my ear issues I had 2 days when it went it’s odd but this last 6 months it’s pretty horrific humming hissing I just can’t rest with it

I’m thinking on the days I was free if the noise then may be those days I outed my iron food intake ?

Can’t think of any other reason

What medication was you given ? To increase it was it tablets ferroius ?

[Nackapan in reply to Milley2]

I was initially prescribed folic and ferrous fumerate mixed 310mg but I only took it once as it made me ill.

I now take ferrous fumerate 210mg but have regulated blood checks ad tok much iron bad for you.

43 sounds okay. I dint think low ferritin caused the tinnitus. That actually improved with b12 but took over a year.

[Milley2 in reply to Nackapan]

Do you still have b12 ?

[Nackapan in reply to Milley2]

Yrs every 6th day

[Milley2 in reply to Nackapan]

Was your iron ferrous tabkets every other day 200mg

[Milley2 in reply to Nackapan]

Do you take folic acid to

[Nackapan in reply to Milley2]

Only in a multivit(200 mcg) 3 x a week as my blood test shows it's in range and never been lower than 9. Last one it was 20. Top of range 24. I cant seem to absorb iron vitamin d or b12 well but I can folate ?? Ot is deemed safe to take 200-400mcg daily of folic acid indeed women of child bearing age 400mcg daily.

[Milley2 in reply to Nackapan]

Yes it can cause ear humming ear hissing dizziness cold hand feet which I have all this

[Milley2 in reply to Nackapan]

Is that folic acid 20 then

[Nackapan in reply to Milley2]

My blood test says my folate level is 20ng/ml on the supplements. On no supplements it was okay at 9 ng/ml range. 4-24

[Milley2 in reply to Nackapan]

Which multi vit you take I take it it has folic acid in ?

Which brand make etc

[Milley2 in reply to Milley2]

And do you self inject the b12 ?

[Nackapan in reply to Milley2]

I have it at the surgery by a nurse and also self inject at home

[Nackapan in reply to Milley2]

A supermarket one or Boots

[Milley2 in reply to Nackapan]

Have you absobtion issue then what tests have they done ?

I had h pylori positive on meds at mo

[Milley2 in reply to Nackapan]

headaches

hearing ringing, buzzing or hissing noises inside your head (tinnitus)

food tasting strange

feeling itchy

a sore tongue

hair loss – you notice more hair coming out when brushing or washing it

wanting to eat non-food items, such as paper or ice (pica)

finding it hard to swallow (dysphagia)

painful open sores (ulcers

These are iron symtoms

[Nackapan in reply to Milley2]

Yes there are different sorts of iron anamia. You can have low ferritin levels with a normal HB level.

Different symptoms for different sorts of anaemia

Iron is complicated and needs discussion with a doctor.

[Milley2 in reply to Nackapan]

I’m at the Gp tomorrow I’ll discuss with her I think

[Milley2 in reply to Nackapan]

Yeah it’s safe if b12 isn’t low if high it can worsen symtoms

[Starseed1983]

Hi, I get that to the points it’s deafening , it irritates me so much but it always happens when my b12 is low. I can’t remember what my ferritin level was but my iron was 3.4. I gave up with my drs and now buy myself Methylcobalamin and adenocolbalamin mix tablets and take those as I going the cyancolbalamin just gave me painful cyst like lumps in my neck. I hope you find your way through as I know how much that ringing can affect you!

[Milley2 in reply to Starseed1983]

I have ear ringing dsily I feel I can’t go on

I’m on monthly hydrox b12 Gp

Having treatment h pylori OMG I feel dreadfull I can’t eat feel sick etc but I just want rid of this bug

It’s the worst time ever

Going to test my iron and folate again

Was the 3.4 your folate ? Level mines in range now but I just don’t know what’s going on here in my body so very unwell going to Gp this morn

As I’m so rough

[Milley2 in reply to Starseed1983]

Has your ringing stopped and do you get injections at doctors

[Showgem]

I have had tinnitus for many years, sadly none of the treatment for my deficiencies b12, d, folate, iron has made it any better. I have learned to live with it and don't find it so bothersome any more. Have you had your ears checked for wax as that makes it worse?

[Milley2 in reply to Showgem]

Yes ent all cleared it and found nothing

Have you been treated for iron then ?

[Showgem in reply to Milley2]

Yes, I have had iron supplements for years despite having a good diet, at times iron injections and infusion.

My doctor sent me to see a tinnitus specialist a few years ago, she helped me understand my tinnitus. I did try a sound masking tape for a while at night, I didn't find it helped me but it's worth trying.

Tinnitus is just the sounds in your head that everyone has but most aren't aware of, and once for whatever reason you've "switched on" to the sound, the switch stays on, the only thing that's worked for me is to except it, ignore it and stop worrying about it. It's not harmful, just annoying but you can just get used to it so it stops becoming such a big problem.

[Hidden]

Having read through your thread there is a thought I have which is tinnitus, your noises in your head, may not be to do with b12, folate or iron deficiency. There was a very good friend of mine who was plagued by it without having deficiencies. She found relief from a Walkman playing her favourite music and also when she was playing the huge Hammond electronic organ she had.

My tinnitus, which is a hissing sound, is bad today. My B12 and folate will be high as I take a folic acid tablet every day and I do a B12 injection three days ago. I no longer play electronic organs but I do play a good Yamaha digital piano. I find concentrating on something other than the noise is very effective. The more you let the noise bother you the worse it gets.

I know only too well this is something you are not going to want to accept. My friend of years ago took a while to realise it until she noticed her beloved Hammond organ, ever present Walkman and concentrating on building matchstick models did the trick.

I find cooking, driving, and even writing things like this help tremendously. If nothing your doctors can suggest helps then try doing something you have to concentrate on as it could well work for you too.

All the best.

[Jennygal]

I'm not sure if this is at all relevant but I'll mention it to you anyway. I have been b12 deficient for some time and get regular injections form Doctor. In Feb I became ill with some sort of stomach problem. I had gastritis, esophagitis and sinusitis. This went on for weeks and became really concerning to me. Then randomly my ear began to buzz/tap. It would not happen all the time and usually kicked off in the evening after I had eaten something. It drove me mad. I researched everything I could and thought it may be b12 related (but then again almost everything can be!) It would continue on through the night and then just stop. I was convinced it was to do with my sinus. I started to use a salt spray in my nose and over the weeks things calmed down. I was referred to ENT but by the time I reached him I knew I was improving. He checked my ears and saw nothing. Didn't seem concerned by the buzzing (which had stopped by then). He did mention I had severe TMJ but I don't think that is what caused the buzzing.

I only mention this because I strongly felt that the ear was connected to what was going on with my stomach and my sinus. It was horrible to live with - so I really feel for you. I felt like I was falling apart form all angles. Maybe try a salt spray in your nose - you've nothing to loose and intact, the ENT doctor told me that are better than the prescribed steroid ones that I was reluctant to use.

[Milley2 in reply to Jennygal]

Where do you get salt spray and how do u use it ?

[Jennygal in reply to Milley2]

I bought it on Amazon.

You squirt it up your nose.

[Milley2 in reply to Jennygal]

details

Visit the Sterimar Store

4.4 out of 5 stars 2,466 Reviews

Sterimar - Nasal Spray - Congestion Relief - 100% Natural Sea Water - with Copper & Magnesium - 100ml

Is it this ?

[Milley2 in reply to Jennygal]

Though I’m not congested I bought this earlier in the year

[Jennygal in reply to Milley2]

yes - that's it

[Milley2 in reply to Jennygal]

I have the buzz hiss 24/7

[Lurcher-lady]

I have had hissing tinnitus for maybe 10 years now. B12 or iron don’t help at all. It’s worse if I eat anything with sugar in or alcohol. Also worse after listening to music.

[Milley2 in reply to Lurcher-lady]

Oh dear god I’m guessing I’m stuck like this

[mbernhardt]

Optimal ferritin level is 50-150.

[Milley2]

Mines 39

[scnuke]

I have two different types of tinnitus. One is the constant hissing/crickets. The other is pulsatile, where I hear my heart pounding. Both of these seems to get worse according to my iron levels, specifically iron saturation %. My ferritin levels can be sky high since I receive iron infusions on a regular basis, but the tinnitus is worse, almost unbearable when my saturation levels drop into single digits. I find laying on my back with an ambient noise generator helps reduce my perception of the pulsatile variety. When my saturation levels are in the 20's, they both get better. I have PA and am currently doing cyano SI EOD, so I doubt my B12 levels have much to do with it. It all seems like a weird science experiment since so few physicians have much interest in really exploring the real details of PA and iron deficiency. Good luck to you.

[Lurcher-lady]

I have a noise generator prescribed by my hospital for the tinnitus. It helps amazingly when going to sleep at night, but I couldn’t listen to it all day long. Strangely when the tinnitus kicked off nobody took bloods, just mentioned ageing, anxiety etc etc It was years later that b12 was picked up on. I’m assuming it went on too long to be rectified. I have the pulsatile type too, both only on the left strangely.