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Pernicious Anaemia Society

32,086 members • 23,232 posts

All posts for June 2020

Methylmalonic acid test preparation

Wondering what people's experience is with MMA test, and any suggestions about length of time between last injection and blood sample taken to get the most...

Wondering what people's experience is with MMA test, and any suggestions about l...

Nicksi

•4 years ago

8 Replies

Can sublinguals help to supplement b12 between injections?

I am on injections - have had 7 in a a row and the 8th a week later, and scheduled for once a week for a month then once a month for a year). I do feel an”lag”...

I am on injections - have had 7 in a a row and the 8th a week later, and schedul...

HopetoB12better

•4 years ago

11 Replies

B12 injections and weight loss?

So I’m on b12 injections for deficiency. But, as I continue to research my condition, I keep seeing ads for b12 injections for weight loss. I am certainly not...

So I’m on b12 injections for deficiency. But, as I continue to research my condi...

HopetoB12better

•4 years ago

19 Replies

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Folic acid deficiency

Hi guys, for the past 2 weeks I’ve felt super dizzy, eye sites wary and hard to focus, out of it and weak. Did a blood test and it came back as folic acid...

Hi guys, for the past 2 weeks I’ve felt super dizzy, eye sites wary and hard to ...

Haydux

•4 years ago

19 Replies

research paper you can give to your GP if hes ignorant on giving you B12

Here's a quite good research paper on b12 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4884371/ maybe show to your GP when they shake their heads saying no...

Here's a quite good research paper on b12 https://www.ncbi.nlm.nih.gov/pmc/art...

Pascha1

•4 years ago

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Year 2 into PA Diagnosis Please Help ! My Husband said he feels like he is slowly dying 😪

My husband is in year two of his diagnosis, positive IF test Vit D deficiency and folic acid, he has completed the courses 3 weeks ago of tablets and SI twice...

My husband is in year two of his diagnosis, positive IF test Vit D deficiency an...

Suchadrain

•4 years ago

24 Replies

do I have a b12 deficiency please help

Hi everyone Im very new here and would love some advice. I have been struggling with symptoms for a year and doctors have put it down to my hypothyroidism but...

Hi everyone Im very new here and would love some advice. I have been struggling...

Bronners36

•4 years ago

3 Replies

A little help...

Would just like to start by saying I don’t have PA. I found this website through google when I was looking at all my symptoms. So just hoping someone could...

Would just like to start by saying I don’t have PA. I found this website through...

B182

•4 years ago

5 Replies

B12injection and then immediate blood test

I had a B12injection on Monday and then five minutes later the nurse took a B12 blood test. The GP phoned and said my B12 level was high at 930. Will this...

I had a B12injection on Monday and then five minutes later the nurse took a B12 ...

Lizzie69

•4 years ago

5 Replies

B12 deficiency

Hi Not sure if this is the correct forum but I’ve been told today that I have a B12 deficiency (level 150). I’d been getting symptoms like tiredness, weak...

Hi Not sure if this is the correct forum but I’ve been told today that I have a ...

Hidden

•4 years ago

5 Replies

Anyone with B12 deficiency and subclinical hypothyroidism? Struggling to get GP to try treatment...

Hi there, I've been unwell since January... Long list of symptoms including tingling in arms/legs, fatigue, hair loss, palpitations, breathlessness, insomnia,...

Hi there, I've been unwell since January... Long list of symptoms including ting...

Travelling922

•4 years ago

9 Replies

Advice on GP stopping jabs!

Hi I’m after some advice, (sorry could be a long post) I was told I had a b12 deficiency nearly 2 years ago, after feeling very tired, sick, had weird feelings...

Hi I’m after some advice, (sorry could be a long post) I was told I had a b12 de...

MrsP2019

•4 years ago

3 Replies

SI for a year and feeling good. Now not so good

Hello. I’ve been IMSI twice a month for nearly a year and feeling great. However,,,the last month or so I’ve been feeling like I did before the SIs started....

Hello. I’ve been IMSI twice a month for nearly a year and feeling great. Howev...

SunshineMiGirl

•4 years ago

11 Replies

Update - Slowly getting there

Hi everyone :) Just wanted to start by thanking everyone e for your support on my last post! It really meant a lot to have so many lovely messages and words...

Hi everyone :) Just wanted to start by thanking everyone e for your support on...

Ellesbells12

•4 years ago

5 Replies

25 and Younger with PA

Hello, i have done this before and just like checking in to see how many people around my age have PA. I was diagnosed at the age of 19 and just wanted to...

Hello, i have done this before and just like checking in to see how many people ...

Dakota17777

•4 years ago

3 Replies

Positive intrinsic factor

Hi everyone, I’m a newbie here! The doctor have confirmed my intrinsic factor is positive and therefore, I will need b12 injections for the rest of my life....

Hi everyone, I’m a newbie here! The doctor have confirmed my intrinsic factor ...

Iheart_TS

•4 years ago

9 Replies

Does PA get worse in time?

Hi Folks Just a question of interest really. I have autoimmune thyroid disease (underactive). Back in summer 2018 I had borderline low active b12 (34 range...

Hi Folks Just a question of interest really. I have autoimmune thyroid disease (...

Laundretta

•4 years ago

3 Replies

Nerve damage ?

Lately I've been in the garden making raised vegetable beds - and noticed that while treading on a dry holly leaf can make me jump out of my skin with tears in...

Lately I've been in the garden making raised vegetable beds - and noticed that w...

Cherylclaire

Forum Support•4 years ago

37 Replies

Feeling MUCH better after 7 loading doses!!!

I had 7 loading doses and one more after a week (part of a long dosing regimen) and I feel almost back to normal!!! I can walk and balance better, my feet and...

I had 7 loading doses and one more after a week (part of a long dosing regimen) ...

HopetoB12better

•4 years ago

15 Replies

Pronounced veins

Good morning silly question probably but has anyone noticed their veins everywhere really stand out since starting b12 injections.? I’m really fair and...

Good morning silly question probably but has anyone noticed their veins everywhe...

Hidden

•4 years ago

3 Replies

Update on my Daughter

Hi everyone, I wanted to update you on my daughter. Her neurological symptoms are so severe now, she can't clench her fists and involuntarily drops things,...

Hi everyone, I wanted to update you on my daughter. Her neurological symptoms a...

Hidden

•4 years ago

56 Replies

Vitamin b12

Hi, I had a blood test taken,my b12 came back as low 178(120-625)I was advised to have an Active B12 taken.That has come back as 92(37-187)Can anyone please...

Hi, I had a blood test taken,my b12 came back as low 178(120-625)I was advised t...

sylus_911

•4 years ago

14 Replies

Help with b12 levels

Hello, I have been feeling very bad for nearly 2 years now, since the birth of my son, which was what I initially put it down to. My symptoms are, brain fog,...

Hello, I have been feeling very bad for nearly 2 years now, since the birth of m...

Cheekycow8

•4 years ago

23 Replies

Micro cystic anaemia

Micro cystic anaemia Symptoms being treated for 4 months with iron tablets 305 mg a day but still waiting to find underlying cause if Doctors remember Q what...

Micro cystic anaemia Symptoms being treated for 4 months with iron tablets 305 m...

John0

•4 years ago

6 Replies

Just had bloods done inc Iron & b12 but I’ve been taking berrocca for several months. any other way to test b12 without waiting 3months

Test for b12 after taking b12

Holiday12345

•4 years ago

4 Replies

Hi Im new and need advice please. The gp has stopped giving hubby his 3 monthly inj cos of covid, his symptoms are awful, what can we do?

B12 deficiency, PA, awful symptoms and no longer receiving much needed injections

B12 deficiency, PA, awful symptoms and no longer receiving much needed injection...

Neddot21

•4 years ago

22 Replies

Bleeding at injection site

Good morning, I’ve just done my SI B12, I’ve done about 6 now and this morning it bleed quite a lot but stopped after I applied pressure. Has anyone...

Good morning, I’ve just done my SI B12, I’ve done about 6 now and this morning i...

FlorencePocket-Owl

•4 years ago

8 Replies

Telling your GP you are self injecting B12

I want to tell my GP and nurse that I am currently self injecting and all.going well. I'm frightened of upsetting them.and causing a rift as seeing others...

I want to tell my GP and nurse that I am currently self injecting and all.going...

Hidden

•4 years ago

19 Replies

Thank you Canada

This is for anyone in the us, who needs b12. The German pharmacies are not delivering to the states at the moment so I ordered from buy-otc.com and they are...

This is for anyone in the us, who needs b12. The German pharmacies are not deliv...

Xena2202

•4 years ago

11 Replies

Low dose naltrexone for PA

Does anyone have any experience in using low dose naltrexone as a supplemental treatment for Pernicious Anemia?

Does anyone have any experience in using low dose naltrexone as a supplemental t...

Themaid

•4 years ago

7 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2020

Methylmalonic acid test preparation

Can sublinguals help to supplement b12 between injections?

B12 injections and weight loss?

Folic acid deficiency

research paper you can give to your GP if hes ignorant on giving you B12

Year 2 into PA Diagnosis Please Help ! My Husband said he feels like he is slowly dying 😪

do I have a b12 deficiency please help

A little help...

B12injection and then immediate blood test

B12 deficiency

Anyone with B12 deficiency and subclinical hypothyroidism? Struggling to get GP to try treatment...

Advice on GP stopping jabs!

SI for a year and feeling good. Now not so good

Update - Slowly getting there

25 and Younger with PA

Positive intrinsic factor

Does PA get worse in time?

Nerve damage ?

Feeling MUCH better after 7 loading doses!!!

Pronounced veins

Update on my Daughter

Vitamin b12

Help with b12 levels

Micro cystic anaemia

Just had bloods done inc Iron & b12 but I’ve been taking berrocca for several months. any other way to test b12 without waiting 3months

Hi Im new and need advice please. The gp has stopped giving hubby his 3 monthly inj cos of covid, his symptoms are awful, what can we do?

Bleeding at injection site

Telling your GP you are self injecting B12

Thank you Canada

Low dose naltrexone for PA

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive