Hi everyone, I wanted to update you on my daughter. Her neurological symptoms are so severe now, she can't clench her fists and involuntarily drops things, her left leg goes numb and she has blurred vision causing vertigo. She also feels sick with a bad headache in the morning. Her Doctor is sticking with the ME diagnosis even though the only tests they've done are blood tests. I've begged my daughter to try self injecting B12 to see if it helps but she won't. She paid for a private Bupa call with another Doctor yesterday who said the neurological symptoms are real red flags and she needs to see a neurologist within the next two weeks. I think nausea and headache in the morning can be a sign of something more sinister?
The private doctor wrote a letter to her GP yesterday so she will be the one to refer her to the neurologist. If she refuses, I guess we'll have to try to find a way to pay privately.
I didn't realise things had got so bad not living close by. Feeling very worried 😞