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Pernicious Anaemia Society

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All posts for June 2020

My new surgery has changed how often I can have my injection, help please.

Hi all, at my old surgery I was being given a Vit B12 injection every 4 weeks. My new surgery has changed it to every 2 months, my pins and needles are back...

Hi all, at my old surgery I was being given a Vit B12 injection every 4 weeks. M...

Rowin

•4 years ago

4 Replies

B12 Injections

I have been on B12 injection for ten years. In lockdown I needed my injection which I have every 3 months. I was told I would be on this for life . When I...

I have been on B12 injection for ten years. In lockdown I needed my injection wh...

Airtime2020

•4 years ago

13 Replies

which discuss patients with PA having normal

came across article in British Medical Journal, BMJ 2020;369:m1319, which discuss patients with b12 deficiency and normalcytic anemia, whcich I'am assuming is...

came across article in British Medical Journal, BMJ 2020;369:m1319, which discus...

alanlock

•4 years ago

7 Replies

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Phoney GP

I had a telephone appointment on Monday morning supposedly with my allotted GP, who I have had problems with in the past. He said he was the Dr who I had the...

I had a telephone appointment on Monday morning supposedly with my allotted GP, ...

Mannequin18

•4 years ago

23 Replies

B12 injections stopped

My GP has stopped B12 injections using the pandemic as a smoke screen. Blood tests are now required to see if you still need them!! I have injections every 10...

My GP has stopped B12 injections using the pandemic as a smoke screen. Blood tes...

twoclocks

•4 years ago

11 Replies

Why so many blood tests

Hello Injections changed to oral b12 for PA. have to have regular blood tests for a year or more, can you tell me why this is required? Will be happy if it...

Hello Injections changed to oral b12 for PA. have to have regular blood tests ...

Sunny999

•4 years ago

10 Replies

B12 & Folic acid read

https://www.pnas.org/content/early/2020/06/18/2006949117

Ritchie1268

•4 years ago

3 Replies

B12 injection re started

I called my Docter yesterday as I am two months ovedue for my injection and despite taking oral spray and B12 patches have been having increasing symptoms. I...

I called my Docter yesterday as I am two months ovedue for my injection and desp...

lizjohnston60

•4 years ago

6 Replies

Functional b12 deficiency

Hi All Having been refused injections due to my surgery closing during the pandemic I was put on twice daily 50ml b12 tablets. My b12 level has been checked...

Hi All Having been refused injections due to my surgery closing during the pande...

Alfabeta

•4 years ago

5 Replies

this is what GP's think of us.

First off let me say I like my GP, although I must admit to rubbing most of them up the wrong way. I don’t know why this is, I’m not like this with anyone...

First off let me say I like my GP, although I must admit to rubbing most of them...

Hidden

•4 years ago

24 Replies

Self injecting- tips to make it less painful?

Hi all, after lots of discussions the GP has finally agreed that I can self inject with B12 monthly and the practice nurse has trained me. I did it for the...

Hi all, after lots of discussions the GP has finally agreed that I can self inje...

ClaraJ

•4 years ago

23 Replies

Problem with GP

Hi everyone. I have posted on here before and had some helpful replies so I'm hoping that you'll be able to help again. Up until before lock down I had a...

Hi everyone. I have posted on here before and had some helpful replies so I'm ...

hjcohen

•4 years ago

3 Replies

B12 injections

My b12 injections have been stopped for a year, last injection in March. Feel really ill, and when I contact doctor they insist I will have to put up with it,...

My b12 injections have been stopped for a year, last injection in March. Feel re...

Kate71

•4 years ago

11 Replies

Not quite right?

Hi, I was diagnosed with pernicious anemia last Jan (2019). I had been suffering with anemia for about 5/6 years prior and had tablets and the 4hrs intravenous...

Hi, I was diagnosed with pernicious anemia last Jan (2019). I had been suffering...

Madmoo71

•4 years ago

3 Replies

Plz reply me...

My lips have turned blue and backside of tongue also ....what's the reason...MY MCH is high about 120

My lips have turned blue and backside of tongue also ....what's the reason...MY ...

Nakshatra_27

•4 years ago

2 Replies

Is this normal

I had my first injection yesterday and I feel awful, I feel more tired and drained today then iv ever felt, is this normal, my nurse told me nothing she gave...

I had my first injection yesterday and I feel awful, I feel more tired and drain...

Unknown1989

•4 years ago

2 Replies

Two years later from near death. PA, low B12.

Two years later after near death experience due to PA. Neuropathy still alive, but changing very SLOWLY and still making progression. I found out a website...

Two years later after near death experience due to PA. Neuropathy still alive, b...

Geckowacko

•4 years ago

25 Replies

Feel Bad After B12 injection

Hey, So i had a B12 injection today at 11.30. As soon as i had this injection i felt little rush of dizziness. nothing major compared to the dizziness from...

Hey, So i had a B12 injection today at 11.30. As soon as i had this injection i ...

Hidden

•4 years ago

54 Replies

Stomach acid and PPI's

Hi I've, like everyone else with PA, have intrinsic auto antibodies, I've also gastric reflux, a hiatus hernia and chronic gastritis/duodenitis (had more...

Hi I've, like everyone else with PA, have intrinsic auto antibodies, I've also...

Dewy9698

•4 years ago

17 Replies

MMA tests

Don’t you think that they should just stop doing b12 blood Serum tests and Instead just do a MMA test right at the outset and why on earth are they testing...

Don’t you think that they should just stop doing b12 blood Serum tests and Inste...

Hidden

•4 years ago

3 Replies

COBAL

No B12 injection in lockdown. Prescribed oral 50mcg twice daily. Severe tiredness! Practise nurse advised 1000 mcg in phone call. Rang today. NO. GP says...

No B12 injection in lockdown. Prescribed oral 50mcg twice daily. Severe tirednes...

neptywyn

•4 years ago

3 Replies

B12 level

Hi All Like many here, my injections have been stopped during the pandemic and I have been placed on 50ml tablets twice a day. Just had my blood checked and my...

Hi All Like many here, my injections have been stopped during the pandemic and I...

Alfabeta

•4 years ago

4 Replies

Feeling desperate to find a source

I cannot get any of the German sites to deliver to USA anymore. I’m desperate. My only two options are both quite expensive. The German apothecaries made...

I cannot get any of the German sites to deliver to USA anymore. I’m desperate. ...

pomegranate

•4 years ago

11 Replies

Anyone used a kidney glandular for adrenal support?

Would love to have input from anyone who tried using an kidney glandular to improve kidney health. Thanks

Would love to have input from anyone who tried using an kidney glandular to impr...

Liyaelize

•4 years ago

2 Replies

What’s the reason for my pains?

New pains doc doesn’t think the PA causes and just says it must fibromyalgia I just don’t know Pain in hands in morning hurt to clench them, pain under soles...

New pains doc doesn’t think the PA causes and just says it must fibromyalgia I j...

Trace-67

•4 years ago

22 Replies

Pa?

Hello! My doctor said I'm the first pa case she has diagnosed... So I want to make sure that it sounds legit if that makes sense... I have severe fatigue,...

Hello! My doctor said I'm the first pa case she has diagnosed... So I want to ma...

Cjcjcj

•4 years ago

4 Replies

Anyone heard of or used Eldervit Injections?

Hi, I've PA and been SI for years once a week, things mainly OKish, normally buy B12 Hydroxocbalamin from Germany but have noticed that they aren't sending out...

Hi, I've PA and been SI for years once a week, things mainly OKish, normally buy...

Hidden

•4 years ago

5 Replies

Hallelujah

Bloods back. Ferritin is 57. Taken over a year .At least o know any shaking and other symptoms are not low iron as Hb good too. I'm sticking to every other...

Bloods back. Ferritin is 57. Taken over a year .At least o know any shaking and ...

Nackapan

•4 years ago

22 Replies

Too much b12

Hi All I am a vegetarian/vegan and became b12 deficient around 7 years ago which, in my opinion, was caused by lack of b12 in my diet and my doctor putting me...

Hi All I am a vegetarian/vegan and became b12 deficient around 7 years ago which...

Alfabeta

•4 years ago

13 Replies

Veggie since 11 years old , have symptoms of B12 deficiency, yet levels are normal.

Hi l have been a veggie since 11 years old, and since my 40's l have had all the symptoms of B12 deficiency, but when l got tested it came back normal, how...

Hi l have been a veggie since 11 years old, and since my 40's l have had all the...

Felix666

•4 years ago

21 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2020

My new surgery has changed how often I can have my injection, help please.

B12 Injections

which discuss patients with PA having normal

Phoney GP

B12 injections stopped

Why so many blood tests

B12 & Folic acid read

B12 injection re started

Functional b12 deficiency

this is what GP's think of us.

Self injecting- tips to make it less painful?

Problem with GP

B12 injections

Not quite right?

Plz reply me...

Is this normal

Two years later from near death. PA, low B12.

Feel Bad After B12 injection

Stomach acid and PPI's

MMA tests

COBAL

B12 level

Feeling desperate to find a source

Anyone used a kidney glandular for adrenal support?

What’s the reason for my pains?

Pa?

Anyone heard of or used Eldervit Injections?

Hallelujah

Too much b12

Veggie since 11 years old , have symptoms of B12 deficiency, yet levels are normal.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive