Low dose naltrexone for PA

[Themaid]

Does anyone have any experience in using low dose naltrexone as a supplemental treatment for Pernicious Anemia?

[fbirder]

I could find just one reference - pernicious-anaemia-society.... - Here's a quote...

I was prescribed LDN in August of 2008, with high hopes of some sort of relief. I have PA, Hashimotos Thyroiditis, possible Rheumatoid Arthritis and possibly Coelic.

Much to my dismay I’ve had no success with LDN

[Themaid in reply to fbirder]

Thank you so much fbirder. You always have the best information. I often see LDN mentioned as helpful for PA, but I have yet to see an account where anyone has ever tried it. In any case, my Doctor refuses to prescribe it. Like everyone else with PA, I’m continually looking for anything that may improve our quality of life.

[fbirder in reply to Themaid]

I'm not surprised doctors are loath to prescribe it for PA. I cannot find any evidence that it does any good, and the side-effects sound horrible. medicinescomplete.com/#/con...

[SouthSounder]

I did a course of LDN a few years ago, prior to my realizing my decades-long symptoms were PA. I had no reaction, positive or negative.

[Ania22]

Was it gp who prescribed you LDN or private doctor?

[Hidden]

I'm on LDN. for months now. ramped up from 1.5mg to 9.5mg. 9.5 is on the high side. no side effects. early on i may have had a minor headache for a few days which is common. before i got on it i logged hours listening and reading about side affects. very very low incidence.

it's cheap, old, known, and super low side effects. so i said why not. of course my doc said no. but that's what the internet is for. : ) i will give it 6 months and decide if it's worth continuing. currently can't tell much good or bad.

it is generally good for autoimmune issues. LDN research institute i think it is...has all the studies and uses. trouble is there is no money in this drug so no one is funding large studies are getting the word out.

[Themaid in reply to Hidden]

Thanks for your reply, Thunderdoggy. Of course, my doctor has said No to it as well. But, like you, I’m doing my research. It is so frustrating that only the high profile money making conditions get attention. Oh well...onward! And good luck with everything!