Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,169 members • 23,342 posts

All posts for March 2020

Further Injections refused after loading doses while symptoms still slowly improving

Dear All, Back after a disappointing trip to see my GP. One more of 6 loading doses of B12 left and symptoms have just started improving thankfully. I took...

Dear All, Back after a disappointing trip to see my GP. One more of 6 loading do...

CarlaEP

•4 years ago

31 Replies

Disability

Has anyone taken disability for PA because not being able to work

VDMd

•4 years ago

7 Replies

Numbness/tingling in a new location

I was diagnosed with low B12 in August (level was 274). I’ve been on weekly injections since then. Overall, my symptoms have greatly improved except for...

I was diagnosed with low B12 in August (level was 274). I’ve been on weekly inje...

Ashley820

•4 years ago

4 Replies

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Intrinsic factor etc

Can anyone advise me.. My vit b12 is 145. Vit D 60 folate 8 Intrinsic factor negative. Mother had pernicious aenemia and developed dementia in her seventies....

Can anyone advise me.. My vit b12 is 145. Vit D 60 folate 8 Intrinsic factor neg...

Soundwell1

•4 years ago

9 Replies

What causes tingling in the face?

What causes tingling in the face? I have been experiencing more often, in fact every evening a tingling sensation across my face. Usually on the left side....

What causes tingling in the face? I have been experiencing more often, in fact e...

Sparkle44

•4 years ago

15 Replies

Long term B12 injections should they be stopped

My mum was diagnosed with pernicious anemia 15 years ago, she has her B12 injections every 3months, her new GP has stopped her having her injections the last 2...

My mum was diagnosed with pernicious anemia 15 years ago, she has her B12 inject...

Jims62

•4 years ago

17 Replies

Oral supplements

Hi there, Can someone please explain to me why - if you are not able to absorb B12; then taking oral supplements may risk giving falsely high B12 serum...

Hi there, Can someone please explain to me why - if you are not able to absorb B...

B12newby

•4 years ago

24 Replies

Hi there

Hello everyone. I am really struggling at the moment. I was diagnosed with Lupus ten years ago then Bechets, APS, Raynauds, Pernicious Anaemia. I started...

Hello everyone. I am really struggling at the moment. I was diagnosed with Lupus...

CecilyParsley

•4 years ago

12 Replies

Feeling very unwell

Hi. As people may know I have been fighting to get loading doses from my GP. I decided to self inject and gave myself the loading doses IM every second day. I...

Hi. As people may know I have been fighting to get loading doses from my GP. I d...

Clarkie477

•4 years ago

11 Replies

Cognitive issues due to b12 recovery help

Hey all, You guys have been of great help last 4 months in the time of great despair. I was diagnosed with b12 deficiency on 11th of Nov 2019. After much of...

Hey all, You guys have been of great help last 4 months in the time of great des...

psawant

•4 years ago

5 Replies

Should I be worried??

Hi everyone. I have persistent Anemia. I recently had an endoscopy, biopsy was taken and I got my results from the lab last week. I’m waiting to go to my...

Hi everyone. I have persistent Anemia. I recently had an endoscopy, biopsy was t...

PrettyNoona

•4 years ago

14 Replies

Pains with b12 injections

Hey im just knew to this. Been just on google cheaking out symptoms and came accross this group. Ive recently started on b12 injections 2 weeks ago. Last week...

Hey im just knew to this. Been just on google cheaking out symptoms and came acc...

Stacey92

•4 years ago

3 Replies

PA and Black Mold Exposure

Hello, I was diagnosed with PA a month after I moved into a new place where I just discovered that has tons of water damage and black mold everywhere. Can...

Hello, I was diagnosed with PA a month after I moved into a new place where I ju...

Dakota17777

•4 years ago

5 Replies

Parietal status changing from positive to negative???

I'm sort of beside myself with my recent test results. A little history: I was diagnosed with PA at the Mayo Clinic in August 2019 based on low serum (170)...

I'm sort of beside myself with my recent test results. A little history: I was d...

Hidden

•4 years ago

6 Replies

Coronavirus - PA sufferers potentially at some increased risk

It’s been questioned whether PA sufferers are more - or perhaps less - at risk from coronavirus. As a long-standing PA sufferer, with confirmed ‘autoimmune’...

It’s been questioned whether PA sufferers are more - or perhaps less - at risk f...

Dollery

•4 years ago

1 Reply

How likely is a B12-deficiency among siblings?

Hello, community. I am concerned that my sister is deficient in B12 too because she has some signs and symptoms which would indicate to this: # maybe a...

Hello, community. I am concerned that my sister is deficient in B12 too because ...

Lunario

•4 years ago

9 Replies

P.A or not?? Confused

Hi my sisters daughter recently had bloods done folate was 3.9 (range 3.9-20) b12 was 368 but had been taking child multi vits, any way roll on 3 months no...

Hi my sisters daughter recently had bloods done folate was 3.9 (range 3.9-20) b...

shortytlc

•4 years ago

9 Replies

Coronavirus

My surgery is shut for a deep clean. Fortunately I've not to be in isolation as many have. I was there last week though. Has anyone else been in this position?...

My surgery is shut for a deep clean. Fortunately I've not to be in isolation as ...

Nackapan

•4 years ago

8 Replies

Metallic taste in mouth

Hi everyone, Love this support group although relatively new. Recently diagnosed and on loading injections. Should have been started in Sept 2018 if not...

Hi everyone, Love this support group although relatively new. Recently diagnos...

CarlaEP

•4 years ago

14 Replies

Newbie, never heard of this before! Feeling like crap sent bloods to medi checks. Please tell me what you think of my results.

I presumed it was thyroid as I have a sticky out nodule but GP said thyroid bloods are in range. 12 months later and feeling worse decided to pay and send...

I presumed it was thyroid as I have a sticky out nodule but GP said thyroid bloo...

Chukkalukka

•4 years ago

5 Replies

Dizziness

I have been feeling dizzy but it’s not dizziness fall type I can’t explain it my doctor said it probably because iron levels but they good though I been taking...

I have been feeling dizzy but it’s not dizziness fall type I can’t explain it my...

Honey1978

•4 years ago

21 Replies

Neurologist/MRI B12 deficiency.

Was reading a post earlier about seeing a neurologist and having an MRI and the length of time it takes. I had one taken recently (January) because I have TMD...

Was reading a post earlier about seeing a neurologist and having an MRI and the ...

Clarkie477

•4 years ago

8 Replies

Serum aluminum accumulation with Cyano B12 Injections

Cyanocobalamin injections and aluminum as a preservative - anyone finding they are accumulating aluminum in their blood? What are drawbacks of...

Cyanocobalamin injections and aluminum as a preservative - anyone finding they a...

DFord

•4 years ago

3 Replies

I am observing stomach inflammation more often & it's been 2 weeks my medication course is done for B12 & vitD deficiency .Should I worry?

B12 level were 118 and VitD were 18 . I never experienced stomach inflammation before diagnosing of deficiency. Help me to understand recovery path how I am...

B12 level were 118 and VitD were 18 . I never experienced stomach inflammation b...

vegetasama

•4 years ago

5 Replies

Hope

My reading for b12went to 200 from 150 after two and half years of injections. Is it enough. Every twelve week injections.

My reading for b12went to 200 from 150 after two and half years of injections. I...

Wllliam

•4 years ago

1 Reply

Hope

Does low b12 cause burning legs prickel y feet ankles

Wllliam

•4 years ago

3 Replies

Done

Thank you for being patient with the help you've all given. Used an Amazon account in the end so address not typed in. Same as paypal. I confess my head...

Thank you for being patient with the help you've all given. Used an Amazon acco...

Nackapan

•4 years ago

3 Replies

Amazon photo

This is what I saw . Sorry csnt find a way to actually reply to fbirder

Nackapan

•4 years ago

7 Replies

Brands of b12

Amazed at how many!! Currently my surgery are using Gerot Lannoch pharmacy (Austrian) Accord made by Rotexmedica I suppose its cost driven but all must be...

Amazed at how many!! Currently my surgery are using Gerot Lannoch pharmacy (Aust...

Nackapan

•4 years ago

4 Replies

B12 Misdiagnosed as Depression.

Has anyone ever been to the doctors knowing something isn't right and you're always tired? I've had several blood tests taken and although my vitamins levels...

Has anyone ever been to the doctors knowing something isn't right and you're alw...

Cubies

•4 years ago

57 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2020

Further Injections refused after loading doses while symptoms still slowly improving

Disability

Numbness/tingling in a new location

Intrinsic factor etc

What causes tingling in the face?

Long term B12 injections should they be stopped

Oral supplements

Hi there

Feeling very unwell

Cognitive issues due to b12 recovery help

Should I be worried??

Pains with b12 injections

PA and Black Mold Exposure

Parietal status changing from positive to negative???

Coronavirus - PA sufferers potentially at some increased risk

How likely is a B12-deficiency among siblings?

P.A or not?? Confused

Coronavirus

Metallic taste in mouth

Newbie, never heard of this before! Feeling like crap sent bloods to medi checks. Please tell me what you think of my results.

Dizziness

Neurologist/MRI B12 deficiency.

Serum aluminum accumulation with Cyano B12 Injections

I am observing stomach inflammation more often & it's been 2 weeks my medication course is done for B12 & vitD deficiency .Should I worry?

Hope

Hope

Done

Amazon photo

Brands of b12

B12 Misdiagnosed as Depression.

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