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Pernicious Anaemia Society

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All posts for March 2020

I would also like to help people who cannot get their B12 injections .

Admin Note: DISCLAIMER 1) This is a private initiative 2) Vitamin B12 injections are defined by the WHO as ‘essential...

Admin Note: DISCLAIMER 1) This is a private initiative 2) Vitamin B12 injection...

wedgewood

•4 years ago

10 Replies

Injections still going ahead?

Hi ive been having b12 injections for almost 20 years now. Every 10 weeks. Was told it will be for the rest of my life. Im worrying myself sick at the moment...

Hi ive been having b12 injections for almost 20 years now. Every 10 weeks. Was t...

jackie212

•4 years ago

15 Replies

Letter in

Had my injection at the surgery. They said to ring the bell. There wasnt one but got in to a fully gowned and masked nurse. I was pleased to see one by one...

Had my injection at the surgery. They said to ring the bell. There wasnt one bu...

Nackapan

•4 years ago

10 Replies

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Hep c and Corona

I had hep c after a blood transfusion after treatment I am now clear. My question is am I in the at risk group relating to the Corona virus

I had hep c after a blood transfusion after treatment I am now clear. My questio...

monkfishx

•4 years ago

1 Reply

Blog about Corona virus on B12 Deficiency Info website

Hi, I noticed this new blog post about Corona virus on B12 Deficiency Info website. https://www.b12deficiency.info/blog/2020/03/17/the-new-c-word/

Hi, I noticed this new blog post about Corona virus on B12 Deficiency Info websi...

Sleepybunny

•4 years ago

3 Replies

Normal B12 levels?

Hello, Have some suspicion that I might have a B12 problem. The symptoms are feeling tired/falling asleep in the afternoon (8 hours sleep per night), tingling,...

Hello, Have some suspicion that I might have a B12 problem. The symptoms are fee...

Uneasy10

•4 years ago

13 Replies

Concerned about my very frequent needs of self injections of b12

I’ve been si for five years now. I was fine with weekly shots until about 6 months ago when my neurological symptoms reared it’s ugly head again. I have shocks...

I’ve been si for five years now. I was fine with weekly shots until about 6 mont...

Bummed

•4 years ago

5 Replies

Where to buy B12 injections

When can I buy B12 injections and how do I know my dose or all they usually the same? I had a text today to say surgery cancelling them all and I was due...

When can I buy B12 injections and how do I know my dose or all they usually the ...

Tralest

•4 years ago

2 Replies

Gp surgery shut

Just been told surgery locked . If I am well!!(if only) I assume cold free I can have my injection if I ring the doorbell. Safer for staff and me. I thought...

Just been told surgery locked . If I am well!!(if only) I assume cold free I ca...

Nackapan

•4 years ago

6 Replies

B12 injections available for payment in Swansea, South Wales?

I am overdue for a B12 injection. I am unable to get through to my Gp at all due to the chaos over Coronavirus. Can I find a GP who could do this privately...

I am overdue for a B12 injection. I am unable to get through to my Gp at all due...

jeffreys48

•4 years ago

3 Replies

Private injections

I have just tried to book my b12 injection apparently I cannot get a injection for the foreseeable future??? I said I have them every eight weeks for the last...

I have just tried to book my b12 injection apparently I cannot get a injection f...

Daisy292

•4 years ago

11 Replies

Can’t order B12 ampoules online from Germany

Hi Just tried ordering ampoules from Germany via : Mycare.de Amazon.de and another supplier ( can’t remember the name. It does not appear that they are sending...

Hi Just tried ordering ampoules from Germany via : Mycare.de Amazon.de and anoth...

CarlaEP

•4 years ago

12 Replies

B12 patches

Has anyone tried using B12 patches I see that they are available on line would these be better than self injecting

Has anyone tried using B12 patches I see that they are available on line would t...

monkfishx

•4 years ago

33 Replies

Self injecting equipment?

Self injecting Can someone give me details of the what exactly and where I should get the things I need to self inject. I have the b12 but have no idea re...

Self injecting Can someone give me details of the what exactly and where I shoul...

lesley12

•4 years ago

11 Replies

Preservatives and other ingredients in injections

Hi! I'm wondering if anyone has opinions about or has researched preferable preservatives/ingredients in injections. In the US, benzyl alcohol seems to be the...

Hi! I'm wondering if anyone has opinions about or has researched preferable pre...

lynxis

•4 years ago

1 Reply

Covid-19 / Coronavirus – B12 jab postponed by surgery today

I have PA and my surgery has just cancelled my B12 injection which was booked for tomorrow. They have a new policy as of today of not doing non-urgent routine...

I have PA and my surgery has just cancelled my B12 injection which was booked fo...

smish

•4 years ago

42 Replies

Coronavirus: PAS Advice - PA Diagnosis Does Not Fulfil High Risk Criteria. Follow Current NHS and Government Guidance - Links Here

Hi All We are getting an increasing number of posts about coronavirus and questions about whether those with PA are in the high risk category. The PAS have...

Hi All We are getting an increasing number of posts about coronavirus and questi...

Foggyme

Administrator•4 years ago

COVID -19 High Risk

Does having Pernacious Anemia put you in the High Risk group for COVID -19

Active57

•4 years ago

3 Replies

B12 Active blood test

I have been feeling very short of breath on exertion so I had a b12 active test. Results 49.8 range 37.5 to 187.5 should I be supplementing to improve my...

I have been feeling very short of breath on exertion so I had a b12 active test....

ninja1

•4 years ago

1 Reply

re virus outbreak.

should i consider self isolating ,i have a sapressed inmmune system are concerned about this recent virus outbreak.?

should i consider self isolating ,i have a sapressed inmmune system are concer...

burnscottage

•4 years ago

1 Reply

Anxiety n tremors

Shortness of breath, anxiety , tremors are the worst symptoms which are not going away.. despite every other day injections...2 yrs into treatment ☹️

Shortness of breath, anxiety , tremors are the worst symptoms which are not goin...

Gunj_redjem

•4 years ago

14 Replies

Dr has told me i suffered from Vitamin B12 deficiency and ask me to go for gastrocopy as suffered frequent stomachache

Dr has told me i suffered from Vitamin 12 deficiency and ask me to go for gastrocopy as suffered frequent stomachache

Dr has told me i suffered from Vitamin 12 deficiency and ask me to go for gastro...

Tigerdan

•4 years ago

3 Replies

SC injections

I want to start self injecting and was thinking about SC injections as I think I could cope with that but not at all sure about IM. There seems to be...

I want to start self injecting and was thinking about SC injections as I think I...

jonlyme

•4 years ago

9 Replies

b12 after effects

Hi 6 weeks on from b12 loading injections im feeling nervy jittery and have muscle aches i was expecting to feel a bit better than this ,also constipation i...

Hi 6 weeks on from b12 loading injections im feeling nervy jittery and have musc...

gpw61

•4 years ago

6 Replies

low body temperature

Hello, I have pernicious anaemia (15+ years), I had a B12 injection on Thursday. I've always "felt the cold" my feet are permanently like ice, but having had...

Hello, I have pernicious anaemia (15+ years), I had a B12 injection on Thursday....

LadyBothwell

•4 years ago

12 Replies

Folate deficiency

i’ve recently been told i have low folate levels, i’ve been taking folic acid for a week now and i’m just feeling worse, feeling sick, light headed, exhausted,...

i’ve recently been told i have low folate levels, i’ve been taking folic acid fo...

emilycatherine95

•4 years ago

16 Replies

PAS Challenge Events

New PAS news item about events to raise awareness. https://pernicious-anaemia-society.org/fundraising/join-or-support-us-in-the-2020-pas-challenge-events/ I...

New PAS news item about events to raise awareness. https://pernicious-anaemia-so...

Sleepybunny

•4 years ago

Be the first to reply

PAS News - Meeting with Welsh Government

Recent PAS news item about PAS meeting with Chief Medical Officer for Wales and members of Welsh Haematology Group in Cardiff....

Recent PAS news item about PAS meeting with Chief Medical Officer for Wales and ...

Sleepybunny

•4 years ago

Be the first to reply

Vitamins

I just took a vitamin d test and It’s very low what can I take

Honey1978

•4 years ago

36 Replies

Precaution mask for coronavirus

I found out I have two anemia’s b and d. An with this Coronavirus going on in Florida. I need to keep my mask on at all public area’s cause basically my immune...

I found out I have two anemia’s b and d. An with this Coronavirus going on in Fl...

mcginnmx

•4 years ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2020

I would also like to help people who cannot get their B12 injections .

Injections still going ahead?

Letter in

Hep c and Corona

Blog about Corona virus on B12 Deficiency Info website

Normal B12 levels?

Concerned about my very frequent needs of self injections of b12

Where to buy B12 injections

Gp surgery shut

B12 injections available for payment in Swansea, South Wales?

Private injections

Can’t order B12 ampoules online from Germany

B12 patches

Self injecting equipment?

Preservatives and other ingredients in injections

Covid-19 / Coronavirus – B12 jab postponed by surgery today

Coronavirus: PAS Advice - PA Diagnosis Does Not Fulfil High Risk Criteria. Follow Current NHS and Government Guidance - Links Here

COVID -19 High Risk

B12 Active blood test

re virus outbreak.

Anxiety n tremors

Dr has told me i suffered from Vitamin B12 deficiency and ask me to go for gastrocopy as suffered frequent stomachache

SC injections

b12 after effects

low body temperature

Folate deficiency

PAS Challenge Events

PAS News - Meeting with Welsh Government

Vitamins

Precaution mask for coronavirus

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive