Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for March 2020

Anyone have details on roger Robert in France babes plz

Anyone have details for roger Robert in France names plz

Medz50

•4 years ago

3 Replies

Pension points

I now have to make up 3 years £2,100 to get my full state pension. Apparently if you Inform them when unfit to work(last thing on my mind) you can get points...

I now have to make up 3 years £2,100 to get my full state pension. Apparently if...

Nackapan

•4 years ago

10 Replies

Vitamin B12 deficiency after a decompression surgery

One year after my sugery i ended up with PA. So recently began my vitamin B12 injections. Now on my fourth weekly shots. At the begining i didn't seem to...

One year after my sugery i ended up with PA. So recently began my vitamin B12 i...

Brownsugar3

•4 years ago

8 Replies

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Four months wait to see Neurologist

Hi has anyone else been told there is at least a four month wait to get a neurologist appointment? I wonder what it costs and whether you can go privately. I'...

Hi has anyone else been told there is at least a four month wait to get a neurol...

Newcastlelover

•4 years ago

31 Replies

London & SE B12 neurologists

Can anyone recommend Neurologists in South-East England who specialise in B12-deficiency or are at least experienced and sympathetic about B12? Thanks in...

Can anyone recommend Neurologists in South-East England who specialise in B12-de...

MrsShoe

•4 years ago

1 Reply

B12 to order

Another question.i have 1ml hydroxcobalamin IM at my surgery which I will continue with. To get my order right online what does it say on the box? Or what do I...

Another question.i have 1ml hydroxcobalamin IM at my surgery which I will contin...

Nackapan

•4 years ago

33 Replies

Help with diagnosis

Hi. Long story short, I have serum b12 within 'normal' UK range but increasing neurological symptoms. My mum has PA. I take oral b Complex daily and have done...

Hi. Long story short, I have serum b12 within 'normal' UK range but increasing n...

MrsShoe

•4 years ago

6 Replies

Please help with shopping list

I'm having 2 weekly hydrox b12 at my surgery by the nurse given IM. I want to try SC at home.so what do I need. I've gleaned some info but wanted to check.. I...

I'm having 2 weekly hydrox b12 at my surgery by the nurse given IM. I want to tr...

Nackapan

•4 years ago

6 Replies

Hi PAS friends. Please help with my diagnosis

I think I may have functional neurological disorder and possibly PA. I have a massive number of serious physical, neuro, and mental health symptoms over many...

I think I may have functional neurological disorder and possibly PA. I have a m...

Chloebaby

•4 years ago

9 Replies

B12 loading

Hello, I was diagnosed with PA 2 months ago. I'm 50 years old and live in the US. My doctor started me on weekly shots of b12. The first couple of times I...

Hello, I was diagnosed with PA 2 months ago. I'm 50 years old and live in the US...

RLG99

•4 years ago

11 Replies

B12

Why is that so many people start to feel instantly better within a few hours of their first b12 shot and some feel worse or no difference at all during the...

Why is that so many people start to feel instantly better within a few hours of ...

Shipra33

•4 years ago

6 Replies

PA and Coronavirus

PAS (Pernicious Anaemia Society) recent news item https://pernicious-anaemia-society.org/other-news/coronavirus-and-pernicious-anaemia/

PAS (Pernicious Anaemia Society) recent news item https://pernicious-anaemia-soc...

Sleepybunny

•4 years ago

12 Replies

MMA rechecked

So my last urine MMA was end of November/early Dec 2019. Result was 2.7 and top of range is 2.2 Just last week did a recheck on my urine MMA. The result is...

So my last urine MMA was end of November/early Dec 2019. Result was 2.7 and top ...

Kimme1029

•4 years ago

6 Replies

Feel I have to research pernicious anaemia then go to Drs and give them the info. I’m to tired to do it. Any advice?

Absolutely knackered..........Dr doesn’t understand why. Mum had pernicious anaemia feel to tired to explain to Dr . I feel I have to research it and then go...

Absolutely knackered..........Dr doesn’t understand why. Mum had pernicious anae...

So-tired

•4 years ago

7 Replies

Notifications

I seem to have lost my email notifications of posts from here. I can’t find any thing to get them back. Can anyone help me please?

I seem to have lost my email notifications of posts from here. I can’t find any ...

Dragonwalker

•4 years ago

3 Replies

Do I have PA?

Another post from me, thank you for all the help with the last. I’m at a stage here where I’m now trying to figure out exactly what’s happening with me. I have...

Another post from me, thank you for all the help with the last. I’m at a stage h...

kristianjones

•4 years ago

1 Reply

Low RBC count and low HEMOGLOBIN

I am a male, age 40 years I take B12 and folic acid injections once in 3 months. my test results for B12, folic acid and HOMOCYSTEINE were within normal...

I am a male, age 40 years I take B12 and folic acid injections once in 3 months....

anonymous1279

•4 years ago

5 Replies

Brands of hydrox b12 for SC

Pharmacist got back to me. They can't order Roxexmedica. Wavylines as you get it prescribed n the NHS what brand is it please. The pharmacist said he would...

Pharmacist got back to me. They can't order Roxexmedica. Wavylines as you get i...

Nackapan

•4 years ago

11 Replies

Blood Test

will pernicious anemia show in a blood test if you are having b12 loading dose injections ?

will pernicious anemia show in a blood test if you are having b12 loading dose i...

Songbird1

•4 years ago

13 Replies

Subcutaneous injection

Went for my b12 sc injection today as agreed by Gp to try. Nurse said she'd had a meeting with Gp. Apparently told by pharmacy not licenced to be given sc??...

Went for my b12 sc injection today as agreed by Gp to try. Nurse said she'd had...

Nackapan

•4 years ago

21 Replies

Question about folate

Apologies for asking so many questions- I really feel this forum is the only place to get informed answers- appreciate your help so much. I’m reading lots of...

Apologies for asking so many questions- I really feel this forum is the only pla...

SAM2608

•4 years ago

9 Replies

Ordering B12 from Europe

Has anyone been able to order B12 from Europe recently? Just tried to place an order with Bodfeld and they no longer deliver to UK. Thanks

Has anyone been able to order B12 from Europe recently? Just tried to place an o...

Coxeymcqueen

•4 years ago

12 Replies

Should we be worried about B12 supplies? Coronavirus has closed China and now India manufacturers. Who else supplies B12 for injections?

BBC News says India no longer exporting some drugs eg Paracetamol and B12. Should we be raising concerns with someone about the lack of suppliers?

BBC News says India no longer exporting some drugs eg Paracetamol and B12. Shoul...

Hidden

•4 years ago

7 Replies

Supplements (Blood Tests)

Do I need to stop taking vitamin supplements prior to taking a blood test for accurate results?

Do I need to stop taking vitamin supplements prior to taking a blood test for ac...

Cubies

•4 years ago

1 Reply

Weird day

Today I went shopping ,hadn’t been feeling great so hadnt been out much. As I was walking around putting bits n bobs in the trolley all of a sudden I had a...

Today I went shopping ,hadn’t been feeling great so hadnt been out much. As I wa...

Hidden

•4 years ago

9 Replies

A surprise from my last visit to the GI

To start, I remind you I am in the US and so there are differences in treatment, and am aware that retesting b12 during treatment is considered unnecessary and...

To start, I remind you I am in the US and so there are differences in treatment,...

BethCam

•4 years ago

9 Replies

Alcohol and PA

Does consumption of alcohol affect your b12 absorption and storage?

Dakota17777

•4 years ago

5 Replies

16 year old b12 135, negative intrinsic factor

My 16 year old son had been experiencing dizziness, headaches, low energy and tiredness for the last year. He was sent for blood tests where it was found his...

My 16 year old son had been experiencing dizziness, headaches, low energy and ti...

Redazzy

•4 years ago

11 Replies

Haven't got a clue what this means

This is my test results is this really low x

Pippa76

•4 years ago

8 Replies

Too much b12

I self inject daily with Pascoe hydroxocobalamin , I chose Pascoe because it doesn't sting like the Rotexamedico. They do the hydroxocobalamin in 1500mcg in 1...

I self inject daily with Pascoe hydroxocobalamin , I chose Pascoe because it doe...

miravet

•4 years ago

19 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2020

Anyone have details on roger Robert in France babes plz

Pension points

Vitamin B12 deficiency after a decompression surgery

Four months wait to see Neurologist

London & SE B12 neurologists

B12 to order

Help with diagnosis

Please help with shopping list

Hi PAS friends. Please help with my diagnosis

B12 loading

B12

PA and Coronavirus

MMA rechecked

Feel I have to research pernicious anaemia then go to Drs and give them the info. I’m to tired to do it. Any advice?

Notifications

Do I have PA?

Low RBC count and low HEMOGLOBIN

Brands of hydrox b12 for SC

Blood Test

Subcutaneous injection

Question about folate

Ordering B12 from Europe

Should we be worried about B12 supplies? Coronavirus has closed China and now India manufacturers. Who else supplies B12 for injections?

Supplements (Blood Tests)

Weird day

A surprise from my last visit to the GI

Alcohol and PA

16 year old b12 135, negative intrinsic factor

Haven't got a clue what this means

Too much b12

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