Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for January 2019

New diagnosis

Hi, I have been going to my GP for over a year with fatigue, headaches, blurry vision and joint pain. She said you are a working mum, what do you expect. I...

Hi, I have been going to my GP for over a year with fatigue, headaches, blurry v...

Emmapemma

•5 years ago

9 Replies

How long before B12 peripheral neuropathy starts to go away?

Hello. I'm on B vitamin shots. My main symptom of peripheral neuropathy is burning feet. My other symptoms is very slight numbness on my left foot (kind of...

Hello. I'm on B vitamin shots. My main symptom of peripheral neuropathy is burni...

Hidden

•5 years ago

13 Replies

Diagnosed with low folate levels.

Been taking folic acid for three weeks. Palpitations, headaches and nausea have stopped. However still breathless and fatigued. How long until I feel back to...

Been taking folic acid for three weeks. Palpitations, headaches and nausea have ...

Awil

•5 years ago

3 Replies

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B12 symptoms

Hi, wondering if anyone could help. I have been getting lots of symptoms lately such as : pins and needles in hands and feet, tiredness, muscle pains, memory...

Hi, wondering if anyone could help. I have been getting lots of symptoms lately ...

Sarahmeacock_91

•5 years ago

8 Replies

Hydroxy Acetate?

Hi All Just about to place an order with Mycare for my next batch of b12. But have noticed the pack that I ordered last time now says hydroxycobalamin...

Hi All Just about to place an order with Mycare for my next batch of b12. But h...

Portia1974

•5 years ago

3 Replies

Ataxia

I'm so new to all of this, so please forgive my ignorance.. I was dxd with PA just over 7 weeks ago. I also have FMS, Hypothyroidism (0% thyroid remaining),...

I'm so new to all of this, so please forgive my ignorance.. I was dxd with PA ju...

SeabeeWifeWidger

•5 years ago

3 Replies

Why do symptoms fluctuate day to day even though I'm frequently self-injecting?

I'm self-injecting methylcobalamin about 250 mcg per day. My understanding is that it should stay in the body for 4 or 5 days. So can anyone explain why I...

I'm self-injecting methylcobalamin about 250 mcg per day. My understanding is t...

Dopey-Grumpy-Sleepy

•5 years ago

3 Replies

Help with understanding test results.

Please could I have help with understanding test results? I have had a parietal cell autoantibodies test and a faecal calprotectin content test. Both of these...

Please could I have help with understanding test results? I have had a parietal ...

Numbsew

•5 years ago

4 Replies

Nutrient testing... how often?

Hi everyone. I am curious how often you test for vitamin and minerals as well as just a regular blood panel (CBC)? I wanna make sure I am on the same page as...

Hi everyone. I am curious how often you test for vitamin and minerals as well a...

shaylynn

•5 years ago

7 Replies

Which form of B12 is best to SI?

Hi.just looking at options for my daughter if we don’t get anywhere with her GP re more frequent B12 injections. If we do go down the SI route which form of...

Hi.just looking at options for my daughter if we don’t get anywhere with her GP ...

Vicky2822

•5 years ago

17 Replies

Confused about megabolostic anaemia

My hb is 13. my folate 9 . Potassium and magnesium in range. If my Hb is normal does that mean I do not have megoblastic anaemia? My vit D is 60 I had more...

My hb is 13. my folate 9 . Potassium and magnesium in range. If my Hb is norm...

Nackapan

•5 years ago

2 Replies

Re started b12 I jections alternate days until further improvement

I had my second injection today after a 6 week break after initial loading doses.G.p finally agreed after advice from here. This is a very different...

I had my second injection today after a 6 week break after initial loading doses...

Nackapan

•5 years ago

4 Replies

MMA and homocysteine testing - have I already messed it up by supplementing?

Hello there, As a bit of background, I'm 30 years old and I've been suffering from a range of symptoms including fatigue, headaches and tingling for over a...

Hello there, As a bit of background, I'm 30 years old and I've been suffering fr...

Sick-and-Tired

•5 years ago

3 Replies

Advice on where to source vit b12

Hi Iv got to the point where I need to do something about my health and wellbeing Iv suffered with extreme tiredness to the point I can sleep 4 hours in the...

Hi Iv got to the point where I need to do something about my health and wellbein...

Carlz211

•5 years ago

15 Replies

folinic acid

Hi just thought would start a post about this. Anyone take folinic acid? I've been struggling with tolerating both folic acid and methylfolate but definitely...

Hi just thought would start a post about this. Anyone take folinic acid? I've be...

Littledancingtiger

•5 years ago

2 Replies

What is the best brief, written statement on B12 deficiency to give to your doctor on first meeting?

I have given up on the medical community for treating my B12 deficiency and I now self-inject 500 mcg every other day. But I have a new doctor, and I have...

I have given up on the medical community for treating my B12 deficiency and I no...

Dopey-Grumpy-Sleepy

•5 years ago

6 Replies

Can anyone advise re magnesium

How important is it to take magnesium alongside b12 injections . What is the best type to try ?

How important is it to take magnesium alongside b12 injections . What is the bes...

Andypandy30

•5 years ago

7 Replies

could it be low b12?

Ive finished my 6 b12 loading doses about a month ago. All symptoms dissappeared including pins and needles, blurry vision and brain fog. I now have weird...

Ive finished my 6 b12 loading doses about a month ago. All symptoms dissappeared...

Itchyislander

•5 years ago

8 Replies

Folate level, I'm I in range?

Hi my folate has come back as 5.6 u/gl with a range written like (>5.40 u/gl) so does that mean I'm in range or not? If anyone could explain this to me please...

Hi my folate has come back as 5.6 u/gl with a range written like (>5.40 u/gl) so...

Cheryl1986

•5 years ago

13 Replies

Safe to carry on alternate day injections

Hi all I had low folate a few weeks back and was taking folic acid but I did not get on with it as it made me feel sick and gave me gastric distress. I’m now...

Hi all I had low folate a few weeks back and was taking folic acid but I did not...

Littledancingtiger

•5 years ago

34 Replies

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Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2019

New diagnosis

How long before B12 peripheral neuropathy starts to go away?

Diagnosed with low folate levels.

B12 symptoms

Hydroxy Acetate?

Ataxia

Why do symptoms fluctuate day to day even though I'm frequently self-injecting?

Help with understanding test results.

Nutrient testing... how often?

Which form of B12 is best to SI?

Confused about megabolostic anaemia

Re started b12 I jections alternate days until further improvement

MMA and homocysteine testing - have I already messed it up by supplementing?

Advice on where to source vit b12

folinic acid

What is the best brief, written statement on B12 deficiency to give to your doctor on first meeting?

Can anyone advise re magnesium

could it be low b12?

Folate level, I'm I in range?

Safe to carry on alternate day injections

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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