Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for January 2019

B12 Serum Tests

I've had 5 negative B12 serum blood tests, all negative over several years when I suffered and continue to suffer the symptoms of PAS. I am aware of these...

I've had 5 negative B12 serum blood tests, all negative over several years when ...

Sasla

•6 years ago

5 Replies

Every other day until no further improvement

Reading through the posts I still do not understand that if b12 Injected stays in your system for so long why are they needed so often ? Also when I stop the...

Reading through the posts I still do not understand that if b12 Injected stays i...

Nackapan

•6 years ago

9 Replies

Low b12...help!

Hi! This is my first post on here, please be nice :) So a bit of back ground, I went to the doctors a while back due to feeling completely exhausted all the...

Hi! This is my first post on here, please be nice :) So a bit of back ground, I ...

Sammiiiii

•6 years ago

2 Replies

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Endocrinologist or General Consultant

My doctor, before she retired at Christmas, put a referral through for an endocrinologist to check thyroid, but the appointment has come through for me to...

My doctor, before she retired at Christmas, put a referral through for an endo...

mountainice

•6 years ago

4 Replies

Would blood tests 3months after last b12 injection be accurate?

Hi all I don't have PA but had very low b12 this time last year and many neurological symptoms gP gave me loading injecitons and then 3 monthly injections...

Hi all I don't have PA but had very low b12 this time last year and many neurolo...

Saya85

•6 years ago

13 Replies

My B12 and folate. BetterYou Pure Energy B12

Hi all got bloods back folate is low again so back on 5mg folic acid, my b12 is still around 300s but it recently dropped by 20. So I got the BetterYou Pure...

Hi all got bloods back folate is low again so back on 5mg folic acid, my b12 is ...

vooxxy

•6 years ago

15 Replies

B12 deal on line

B12 deal online https://www.versandapo.de/vitamin-b12-depot-rotexmedica-injektionsloesung-100x1ml-pzn-03862305 Got 200 vials delivered to UK for £105

B12 deal online https://www.versandapo.de/vitamin-b12-depot-rotexmedica-injekt...

Siobhan1965

•6 years ago

8 Replies

Plodding on

Restarted every other day hydroxocobalamin injections. Now into 4th week. Some improvements being made which I'm very relieved about. Still waiting for light...

Restarted every other day hydroxocobalamin injections. Now into 4th week. Some...

Nackapan

•6 years ago

5 Replies

Missed B12 injection should I double up?

I have PA and I normally have B12 injections every 10 weeks. I recently discovered I've accidentally missed a dose (there's a lot going on in my life at the...

I have PA and I normally have B12 injections every 10 weeks. I recently discover...

smish

•6 years ago

18 Replies

If the methylcobalamin I obtained online from abroad was not refrigerated by the manufacturer before I bought it, is it still viable?

I bought my B12 shots from Vitaminquick and B12 online, but neither seem to refrigerate their stores. I have now put them in the fridge. Are they still going...

I bought my B12 shots from Vitaminquick and B12 online, but neither seem to refr...

e66--

•6 years ago

7 Replies

WHAT'S YOUR OPINION OF THESE LAB RESULTS?

These are some, not all, of the results of my last bloodwork done on October 29, 2019. These are US estimates. I didn't include the ones that was in normal...

These are some, not all, of the results of my last bloodwork done on October 29,...

dianewilson1900

•6 years ago

4 Replies

Are MMA lab results affected by loading doses?

I had been taking B 12 injections starting June 1, 2018. I had one June 1, June 13, July 5, July 13, July 22, July 31, and took the MMA test in Mid August I...

I had been taking B 12 injections starting June 1, 2018. I had one June 1, June ...

dianewilson1900

•6 years ago

2 Replies

WHATS YOUR OPINION OF THE INGREDIANTS IN THE B 12 I INJECT? IT GIVES ME BLURRY VISION, DAMPENS MY APPETITE AND DOESNT WORK WELL FOR MY ENERG

These are the ingrediants in the 1000 mg injections I take every two weeks. (Cyanocobalbamin). I live in the US but it was ordered from outside the country:...

These are the ingrediants in the 1000 mg injections I take every two weeks. (Cya...

dianewilson1900

•6 years ago

13 Replies

Advice on what to do next

Morning all, I posted before Christmas regarding my new diagnosis. My doctor found antibodies by chance when she was checking for reumatroid arthritis...

Morning all, I posted before Christmas regarding my new diagnosis. My doctor fou...

Emmapemma

•6 years ago

5 Replies

ANYBODY GET BLURRY VISION FROM B 12 ORDERED OUT OF THE US?

I ordered injectible B 12, liquid Cyano, and my vision has been hazy and blurry the past few days. My last injection was given on Friday, January 11th and...

I ordered injectible B 12, liquid Cyano, and my vision has been hazy and blurry ...

dianewilson1900

•6 years ago

15 Replies

B12 Deficiency

Hi past two month I have b12 Deficiency...now only I noticed my skin impression is there like shoe shoks impression and watch impression belt impression if I...

Hi past two month I have b12 Deficiency...now only I noticed my skin impression ...

Balrajasal

•6 years ago

6 Replies

Overcoming B12 deficiency

I have been taking B12 shots once or twice a week since last two months. After over a week without shots my deficiency symptoms return. I am wondering if this...

I have been taking B12 shots once or twice a week since last two months. After o...

andy109

•6 years ago

4 Replies

Can you have a look at these results please.

Daughter has just had some more bloods done by GP. She had her 6 loading b12 jabs done 5 wks ago but is back to square one already. She has been on ferres...

Daughter has just had some more bloods done by GP. She had her 6 loading b12 ja...

Vicky2822

•6 years ago

1 Reply

Can you have a look at latest blood test results please

Hi daughter has had 6 loading b12 jabs about 5 wks ago and has been on ferres sulphate for 2 moths. She is back to square one with symptoms so dr did more...

Hi daughter has had 6 loading b12 jabs about 5 wks ago and has been on ferres su...

Vicky2822

•6 years ago

3 Replies

Shortage of b12?

Hi has anybody recently managed to get hold of b12 ampuoles on line? The sites I have tried are all out of stock. Thanks guys

Hi has anybody recently managed to get hold of b12 ampuoles on line? The sites I...

Quigley2005

•6 years ago

7 Replies

help- B12 supplier please.

Just had my order with apotalis versand apothere cancelled due to lack of supply. Has anybody got alternative sources to purchase? Any help greatly...

Just had my order with apotalis versand apothere cancelled due to lack of supply...

islandlass

•6 years ago

4 Replies

B12

B12 level was 152 then 2 weeks later 107 8 months pregnant then GP said readings satisfactory don’t need injection - my understanding is low B12 in pregnancy...

B12 level was 152 then 2 weeks later 107 8 months pregnant then GP said reading...

Frenchiebabe

•6 years ago

8 Replies

VITAMIN B12 deficiency, Misdiagnosis of my condition

I have been struggling with depression for years, ending up with app 15 tablets a day and no real improvement, I recently moved to Wagga Wagga and had to find...

I have been struggling with depression for years, ending up with app 15 tablets ...

XMX326MB100

•6 years ago

3 Replies

Vitaminb12online.com

Hello 😁 I have just ordered B12 ampules and syringes from a company called vitaminb12online.com. I researched them as much as I could and they seem...

Hello 😁 I have just ordered B12 ampules and syringes from a company called vita...

1998cd

•6 years ago

9 Replies

Prolonged diarrhoea and psychosis

Hello My PA was first diagnosed after a first episode psychosis. I became increasingly paranoid over the weekend but in a moment of calm I began to question...

Hello My PA was first diagnosed after a first episode psychosis. I became incre...

Hidden

•6 years ago

15 Replies

OXFORD BIO SCIENCES

Helllo! Has anyone purchased the powder for of B12 from Oxford Bio Sciences?? If so , how was the experience, comparisons to pre bought vials from Germany....

Helllo! Has anyone purchased the powder for of B12 from Oxford Bio Sciences?? If...

morna666

•6 years ago

6 Replies

Ferritin and folate

B12 115 for which I had standard loading doses but am SI also. Folate 8.5 (3.1-19.9) Ferritin 24(15-200) I would welcome any advice if I should take iron or...

B12 115 for which I had standard loading doses but am SI also. Folate 8.5 (3.1-1...

Quigley2005

•6 years ago

2 Replies

Which form of b12?

I have pernicious anemia and also homozygous MTHFR c667t. Which form of b12 injectables would be best for me. I did not tolerate Methylfolate well so I now...

I have pernicious anemia and also homozygous MTHFR c667t. Which form of b12 inje...

Freezeframe

•6 years ago

3 Replies

2 weeks post loading doses update

Hi all, I wanted to write an update. There are a lot of horror stories online but I wanted to share some positives. Something to note is that although I am...

Hi all, I wanted to write an update. There are a lot of horror stories online b...

humaashraf

•6 years ago

8 Replies

Follow up to gp stopping b12 injections

Hi again - I'm not sure how you follow up initial posts but here we go. My GP stopped b12 injections about 15 months ago as level was >2000. Recently started...

Hi again - I'm not sure how you follow up initial posts but here we go. My GP s...

Irismay

•6 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2019

B12 Serum Tests

Every other day until no further improvement

Low b12...help!

Endocrinologist or General Consultant

Would blood tests 3months after last b12 injection be accurate?

My B12 and folate. BetterYou Pure Energy B12

B12 deal on line

Plodding on

Missed B12 injection should I double up?

If the methylcobalamin I obtained online from abroad was not refrigerated by the manufacturer before I bought it, is it still viable?

WHAT'S YOUR OPINION OF THESE LAB RESULTS?

Are MMA lab results affected by loading doses?

WHATS YOUR OPINION OF THE INGREDIANTS IN THE B 12 I INJECT? IT GIVES ME BLURRY VISION, DAMPENS MY APPETITE AND DOESNT WORK WELL FOR MY ENERG

Advice on what to do next

ANYBODY GET BLURRY VISION FROM B 12 ORDERED OUT OF THE US?

B12 Deficiency

Overcoming B12 deficiency

Can you have a look at these results please.

Can you have a look at latest blood test results please

Shortage of b12?

help- B12 supplier please.

B12

VITAMIN B12 deficiency, Misdiagnosis of my condition

Vitaminb12online.com

Prolonged diarrhoea and psychosis

OXFORD BIO SCIENCES

Ferritin and folate

Which form of b12?

2 weeks post loading doses update

Follow up to gp stopping b12 injections

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