Plodding on: Restarted every other day... - Pernicious Anaemi...

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Plodding on

Nackapan profile image
5 Replies

Restarted every other day hydroxocobalamin injections. Now into 4th week. Some improvements being made which I'm very relieved about.

Still waiting for light sensitivity to lesson /go. Still have a ' sizzling head' if I do too much like try and read a book! ( bought the 2nd edition by m Hooper) Still in bed 12 hours as seem to crash around 8pm. Still not driving but am walking. So not functioning to a level I can shop or indeed cook properly. The 'fizzing " head happening more and popping of ears? Fatigue rather than exhauation.Bloods finally back. Folate not done as hasn't been 3 months! ( labs refused) HB 131g/l total white blood count 5.2g/L (was 11.6) mcv 92.1fl neutrophil 3.29/l (was. 3) lymphocyte below range 1.0 (1.1 3.5) vit D 53mmol/L ferritin39ug/l so seem to have settled . If anthing humps out to anyone that could be improved please say. I take 400ug folic acid. Vit D ( a loading dose a week ago 20,000) usually 25ug a day vit c . zexanthema and lutein(eyes) I also on every other day take a multi vit and not duplicating anything. I tried omega 3 standard dose but upstairs my stomacheek so may take 2x week . Any thoughts appreciated

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Nackapan
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Nackapan profile image
Nackapan

Neutrophil count 3.29/L was 9.3 (correction)

Annnon58 profile image
Annnon58

Your Ferritin is in range but would be better at a higher level such as 60 or 80 . My OH was prescribed ferrous fumerate twice a day at that level . You could join the tinitus group or google tips to help tinitus , hopefully it will improve in time with b12 injections / daily folic acid . Glad you are improving slowly , it takes time , all the best . 🌟😀

Nackapan profile image
Nackapan in reply to Annnon58

Thank you. I thought ferritin should be higher. I will try and address that. I'm hoping the head sizzling and tinnitus is part of the healing. Yes improvine slowly. Headache all day today though! I will continue the every other day Injections. Hope your OH is doing okay. Thank you for your kind reply. You replied when I was extremely poorly and I acted on your advice. TC

Sita505USA profile image
Sita505USA

Hi Neighbor

I am glad you are seeing some improvements. I have no advice or wisdom to offer, but am sending you good energy and cyber hugs.

Take care! Sita

Nackapan profile image
Nackapan in reply to Sita505USA

How nice of you. Thank you Sita.

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