Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for December 2018

Urgent Help!!

Hi everyone I’m wondering if anyone can help! In September of this year my Vitamin B12 was 287 ng/L. Anyway I’ve just last week started with Neurological...

Hi everyone I’m wondering if anyone can help! In September of this year my Vita...

SpiritualT

•6 years ago

11 Replies

B12 books

Hi all, I was just wondering if anyone could recommend any books out there that would give me a better insight into b12 deficiency. My doctors don’t want to...

Hi all, I was just wondering if anyone could recommend any books out there that ...

Jessie8

•6 years ago

10 Replies

Blood test results

So confusing. My blood tests are all fine ( had very low ferritin ) after bowel ops) had infusion. Obviously b12 is fine , but he very wisely said that's to be...

So confusing. My blood tests are all fine ( had very low ferritin ) after bowel ...

Gardeningbuff

•6 years ago

9 Replies

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Vision disturbances

Hi, just had my first injection today. Had to go private as GP refused. Have had an array of neuro symptoms since July and unable to work since then. I have...

Hi, just had my first injection today. Had to go private as GP refused. Have had...

Myshk

•6 years ago

9 Replies

What’s going on?! Help!

Low b12 (150) currently 3 monthly injections, low iron (not anemic) low vitiam D. I won’t even go on to list the symptoms Ive been having over the last 6...

Low b12 (150) currently 3 monthly injections, low iron (not anemic) low vitiam D...

Shannonf247

•6 years ago

3 Replies

Hormone results

Hey I was wondering if anyone could help with my hormone results I feel some are high and some are low; Serum oestradiol 215pmol LH level 4.3 U/L FSH Level...

Hey I was wondering if anyone could help with my hormone results I feel some are...

Claire2468

•6 years ago

4 Replies

Low B12, TPO antibodies but doctors insisting it's MS

Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12...

Hi all - new here You guys know so much so I'm hoping for your take on what's g...

Mirandarr

•6 years ago

2 Replies

B12 Ampoules

I recently managed to order some B12 ampoules for a very good price from a german site. As i have decided to cut down on the frequency of my injections I now...

I recently managed to order some B12 ampoules for a very good price from a germa...

Vonni7

•6 years ago

6 Replies

terrible insomnia for months

wondering if anyone can help me with my insomnia. I have been suffering from night sweats, burning arms legs and feet and dreadful insomnia - hard to fall...

wondering if anyone can help me with my insomnia. I have been suffering from nig...

jarlethblue

•6 years ago

8 Replies

Coping with work

Hello, I'm David and this is my first post. I was diagnosed with Pernicious Anaemia in June. I have had loading B12 injections and ongoing three monthly...

Hello, I'm David and this is my first post. I was diagnosed with Pernicious Anae...

dch252

•6 years ago

8 Replies

Neuropathy pain, GP has given up - what do I do?

Hi all, my GP changed and the new one seems to have given up, since the neurologist concluded I had no damage to long nerve fibres. I SI B12 about once a week...

Hi all, my GP changed and the new one seems to have given up, since the neurolo...

Mashie44

•6 years ago

5 Replies

Is this healing or things getting worse?

Hello again, I see from many posts that recovering from B12 deficiency is not a linear process of just getting better. I am certainly experiencing this and am...

Hello again, I see from many posts that recovering from B12 deficiency is not a ...

natcap1

•6 years ago

7 Replies

Breathlessness after eating.

Does anyone on the forum experience breathlessness after eating. I'm finding this really unpleasant.

Does anyone on the forum experience breathlessness after eating. I'm finding thi...

Gardeningbuff

•6 years ago

6 Replies

Suffering from Neuropathy.

I have been on vitamin b12 injections since 1994 when I was diagnosed with pernious anemia I was only 37. Since 2005 I started to suffer from Neuropathy. I can...

I have been on vitamin b12 injections since 1994 when I was diagnosed with perni...

Kerri05

•6 years ago

27 Replies

Self injecting methylcobalmin- some advice please.

Hi all, I have just ordered methylcobalmin online with diabetic syringes but am unsure how much to inject. My current B12 is 190 and I'm planning on...

Hi all, I have just ordered methylcobalmin online with diabetic syringes but am ...

smithj6873

•6 years ago

10 Replies

Access to Medical Records (UK)

While posting on a thread recently, I clicked on an old link about accessing medical records to find that the info had changed....

While posting on a thread recently, I clicked on an old link about accessing med...

Sleepybunny

•6 years ago

5 Replies

4 months of treatment and no better off, is it really PA?

I am debating with my doctor whether my neuropsychiatric symptoms are truly the result of Pernicious Anemia (I have tested "abnormal high" for Intrinsic Factor...

I am debating with my doctor whether my neuropsychiatric symptoms are truly the ...

teebeevee

•6 years ago

24 Replies

Effects of Nitrous Oxide on B12 levels ?

I would like to know what effect does Nitrous Oxide have on your B12 levels ? My son (20 years old) had a colonoscopy and they gave him the gas that one time a...

I would like to know what effect does Nitrous Oxide have on your B12 levels ? My...

Ryaan

•6 years ago

3 Replies

Neuroendocrine cell hyperplasia?

Hi - my latest endoscopy biopsy revealed I now have Neuroendocrine cell hyperplasia. Does anyone else have this and can it be treated? (I have AMAG & PA...

Hi - my latest endoscopy biopsy revealed I now have Neuroendocrine cell hyperpla...

jkiron

•6 years ago

5 Replies

How to check Folate levels whilst S.I.?

Hi! I've started to S.I. after GP resistant to increase B12. Improved energy levels but still got numbness in fingers and toes, plus difficulty walking as leg...

Hi! I've started to S.I. after GP resistant to increase B12. Improved energy le...

JillMaryC

•6 years ago

4 Replies

Update

Seen a neurologist. He is informing my doctor to put me on 2 monthly injections. MRI nothing sinister seen and to do neck and spine after nhs referral as not...

Seen a neurologist. He is informing my doctor to put me on 2 monthly injections...

Nackapan

•6 years ago

3 Replies

PA with no antibodies?

Hi all. My b12 level was tested back in May 2018 and was 197 (180 was classed as low so wasn’t treated at the time) and when I had it rechecked last month it...

Hi all. My b12 level was tested back in May 2018 and was 197 (180 was classed a...

Katier92

•6 years ago

11 Replies

Newbie First Post.. B12 deficiency and Crohn's, Increased injections and "The Sighs"

Hi everyone. This is my first post although I've visited a few times but have difficulty getting my foggy brain together to post. My story is quite complicated...

Hi everyone. This is my first post although I've visited a few times but have di...

Gutfeelings

•6 years ago

3 Replies

Anyone else with dental problems ?

Recently I have had some dental problems: bottom r/h wisdom tooth very loose and all the back teeth on that side leaning inward and painful. Can't eat...

Recently I have had some dental problems: bottom r/h wisdom tooth very loose and...

Cherylclaire

Forum Support•6 years ago

2 Replies

Needle size

This is what iv used for Im if anyone can tell me if they’d be ok for trying sc in tummy . Orange 25 g 1 inch

This is what iv used for Im if anyone can tell me if they’d be ok for trying sc ...

Andypandy30

•6 years ago

11 Replies

Half way through loading

I had problems with my GP so I decided to self inject. I am now half way through ‘loading’. I was feeling very poorly and didn’t have enough energy to inject...

I had problems with my GP so I decided to self inject. I am now half way through...

Suncliff

•6 years ago

2 Replies

B12 in Alzheimer's Disease

It seems that B12 when given with antipsychotic drugs can help in some aspects of Alzheimer's Disease and psychosis....

It seems that B12 when given with antipsychotic drugs can help in some aspects o...

fbirder

•6 years ago

2 Replies

Doctor is going to write to the haematologist...

Hi lovely people, wondered what you thought about this! Went to docs at around 8 weeks after b12 injection to ask (beg!)for earlier injection as I felt so...

Hi lovely people, wondered what you thought about this! Went to docs at around 8...

Vickymoonpixie

•6 years ago

8 Replies

spinal cord degeneration / lesions

Do any of you have lesions on your spine or in your brain from b12 deficiency? If so, did they resolve? How long did it take? I'm very scared that I may have...

Do any of you have lesions on your spine or in your brain from b12 deficiency? ...

blue2323

•6 years ago

1 Reply

Still virtually bedbound uodate

Have worked out only up to 2 hours out of bed a day. Weak. Thudding heart on movement now. Shaking alot different from the tremors I had. Hot flushes.aching...

Have worked out only up to 2 hours out of bed a day. Weak. Thudding heart on mov...

Nackapan

•6 years ago

20 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2018

Urgent Help!!

B12 books

Blood test results

Vision disturbances

What’s going on?! Help!

Hormone results

Low B12, TPO antibodies but doctors insisting it's MS

B12 Ampoules

terrible insomnia for months

Coping with work

Neuropathy pain, GP has given up - what do I do?

Is this healing or things getting worse?

Breathlessness after eating.

Suffering from Neuropathy.

Self injecting methylcobalmin- some advice please.

Access to Medical Records (UK)

4 months of treatment and no better off, is it really PA?

Effects of Nitrous Oxide on B12 levels ?

Neuroendocrine cell hyperplasia?

How to check Folate levels whilst S.I.?

Update

PA with no antibodies?

Newbie First Post.. B12 deficiency and Crohn's, Increased injections and "The Sighs"

Anyone else with dental problems ?

Needle size

Half way through loading

B12 in Alzheimer's Disease

Doctor is going to write to the haematologist...

spinal cord degeneration / lesions

Still virtually bedbound uodate

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