B12 books : Hi all, I was just... - Pernicious Anaemi...

Pernicious Anaemia Society
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B12 books

Jessie8
Jessie8

Hi all,

I was just wondering if anyone could recommend any books out there that would give me a better insight into b12 deficiency.

My doctors don’t want to know as my bloods seem to be better (was 84 now 250)

I am still feeling all of my symptoms and they are leaving me for another 3 months before doing about blood test. I’m trying to help myself as much as I can.

Also has anyone tried Reflexology?

Thanks so much xxx

10 Replies
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Hi,

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society). Book is up to date with most UK b12 guidelines.

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies. There is also a paediatric version of this book "Could It Be B12? Paediatric Edition: What Every Parent Needs to Know".

Might be worth joining and talking to PAS. PAS office may be closed for part of festive season but messages can be left on answerphone.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

PAS tel no +44 (0)1656 769717 answerphone

I am a reflexologist myself and it may help you with anxiety and assist the healing process whilst you follow proper treatment but I would not say it will resolve the issues without supplementing.

I can recommend a book called “Could it be b12? by Sally Pacholok - a must read for anyone with b12 issues. What sort of treatment did you have? Your level is still far too low to feel improvement to your symptoms. My level was like yours when I started treatment and when all my symptoms appeared. How is your folate, iron? Are you taking magnesium?

Jessie8
Jessie8
in reply to Myshk

I have had 5 loading injections and then nothing as Dr said my levels are fine so won’t retest me until end of Feb

In order of reading:

Sally Pacholok and Dr Stuart's book, "Could it be B12? - An Epidemic of Misdiagnoses" would be first choice to begin:

All Martyn Hooper's books, but, ''What you Need to know about Pernicious Anaemia and B12 Deficiency", elaborates on unreliability of tests, connections to thyroid disease, leaky gut, etc,

There are also very interesting, research/references/connections to other autoimmune and neurological disease, as well as the effects of athleticism/exercise/stress, in the book, " Vitamin B12 Deficiency and Chronic Illness'.

Finally, not specifically about B12 def. but, if you're interested in the gut/brain connection to autoimmune disease, wish to know more about treating side effects with vitamins, herbs, etc. I'd thoroughly recommend Dr Datis Kharrizian's books "Why do I still have Thyroid Symptoms, when my Lab Tests are normal" and, "Why isn't my Brain Working". He is a leading Harvard neurologist and researcher into the gut/brain connection with autoimmune disease. He lectures post graduates but his books are very readable to the layman. One of his recommendations is a gluten free diet and he confirms that you don't necessarily have to test positive for coeliac or have obvious gastric symptoms to be sensitive to gluten.

Dr Sarah Myhill wrote two excellent books, 'Sustainable Medicine' and the other re ME/CFS - again not specifically about B12 but she treats patients with B12 injections.

The videos and l film about how Sally Pacholok came to write her book, as well as videos on Dr Chandy, are excellent sources too - available on Tracy Whitty's v. Informative B12def. website.

b12deficiency.info/what-to-...

There is one book that stands head and shoulders above the rest - "What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper.

I gave my GP a, signed, copy.

Thank you all for your advice, it’s all very insightful.

I have just recently (a few days) gone gluten free so will see what benefits that has. I am taking magnesium and vitamin D along with B12 spray.

Marz
Marz
in reply to Jessie8

How much VitD are you taking ? Did you test before supplementing ? Am only asking as the supplement dose can be linked to the result :-) VitK2-MK7 is also another co-factor in addition to magnesium - when taking VitD. Did you have Folate tested ? It is suggested you take B9/Folate/Folic Acid when taking B12 - as they work together in the body in an important way ... If all your levels are low in range it may be worth considering Low thyroid - which can affect the uptake of nutrients :-)

Could it be b12

The best book out there on the subject in my opinion is “Could It Be B12” by Sally Pacholok. It has real cases of people suffering from B12 deficiency and it actually does reference a lot of studies, and not to mention that she worked as a nurse and have actually witnessed first hand what B12 deficiency does to people. And if you’re wondering, according to her, anything below 550pg/ml is considered a deficiency and will manifest itself in the form of symptoms.

Jessie8
Jessie8
in reply to Dazedone

Thanks so much, this is so helpful xx

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