Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2018

Latest news

So today I tell my doctor that I am getting severe anxiety and tremors throughout my body. She tells me that they treat many people with B12 deficiency and...

So today I tell my doctor that I am getting severe anxiety and tremors throughou...

Hercules1969

•6 years ago

14 Replies

B12 Deficiency Injections

Hello All, I had a B12 injection this morning, prior to that in September. approx. 2hrs later, 2 painful bruises on both thighs have appeared. Is there a...

Hello All, I had a B12 injection this morning, prior to that in September. ap...

sianklawrence

•6 years ago

3 Replies

More tests

Second test also see results on earlier post https://healthunlocked.com/pasoc/posts/137686862/blood-test-results-first and details of treatment on this post...

Second test also see results on earlier post https://healthunlocked.com/pasoc/po...

Stell1969

•6 years ago

2 Replies

Want to take advantage of all our features? Just log in!

Blood test results first

First results Please reply on this post https://healthunlocked.com/pasoc/posts/137686868/more-tests

First results Please reply on this post https://healthunlocked.com/pasoc/posts/1...

Stell1969

•6 years ago

Tablets or Injections for B12

I had a Whipples just over 2 years ago. I didn’t have any of my stomach removed, just my duodenum, part of my pancreas, gall bladder and some of my liver. I...

I had a Whipples just over 2 years ago. I didn’t have any of my stomach removed,...

Maggie29

•6 years ago

5 Replies

19 years old, wanting to self inject B12??? - long post!

I'm 19 years old, female. In October 2017 I was diagnosed as being deficient in B12. I initially went to the doctors for headaches and he ran a complete blood...

I'm 19 years old, female. In October 2017 I was diagnosed as being deficient in ...

Sofiihorrell

•6 years ago

73 Replies

Should I ask to see a neurologist?

Despite regular monthly B12 injections and a within normal range blood test a few months ago, my pins and needles have got worse. Now they are sharp and...

Despite regular monthly B12 injections and a within normal range blood test a fe...

Hologram

•6 years ago

9 Replies

Newbie

I was recently diagnosed with pernicious anemia following testing. The tests included B12 level where I was low. To my knowledge I was not tested for folate...

I was recently diagnosed with pernicious anemia following testing. The tests in...

Lapaz4

•6 years ago

3 Replies

Nothing is working

Sorry but I’m not sure where to start, I was diagnosed with B12 deficiency last May, I’ve had my loading injections, level was 89 which the nurse said...

Sorry but I’m not sure where to start, I was diagnosed with B12 deficiency last...

Stell1969

•6 years ago

4 Replies

Medical scandal

Hi All I, like many other sufferers on this site, detail the casual ignorance and wanton misdiagnosis by medical professionals of our conditions even, in my...

Hi All I, like many other sufferers on this site, detail the casual ignorance an...

Alfabeta

•6 years ago

28 Replies

Do symptoms get worse before healing?

Hello, i am on injections for about half a Year. My Feet pain (tingling and prickling) is gering worse. Is this part of the healing progress? Are there more...

Hello, i am on injections for about half a Year. My Feet pain (tingling and pric...

Myemmy80

•6 years ago

3 Replies

High b12

My b12 is 2000 and my vitamin d is 24 which is low that worry me a lot can someone help

My b12 is 2000 and my vitamin d is 24 which is low that worry me a lot can someo...

Tareq89

•6 years ago

3 Replies

Does PA occur more frequently in the British Isles?

I recently did a DNA test and found out that I am 57% British and 19% Irish, Scottish and Wales, 17% Scandinavian, 3% European Jewish,... I live in the US....

I recently did a DNA test and found out that I am 57% British and 19% Irish, Sco...

xyz011

•6 years ago

8 Replies

Sweating in day and at night

Hi just wondered if anyone gets really sweaty like drenched in the day, and at night I wake up absolutely soaked . It seems to happen two weeks before my jabs...

Hi just wondered if anyone gets really sweaty like drenched in the day, and at n...

kyanah

•6 years ago

7 Replies

Do I have enough evidence of PA?

I got my results back. I tested negative for ifab but positive for parietal cells. I have the symptoms of PA. I also tested positive for hashimotos. My B12d...

I got my results back. I tested negative for ifab but positive for parietal cell...

Ilala

•6 years ago

3 Replies

Hot flushes

Hi has anybody been on hrt and been okay with b12 thanks :-)

loopyLoopster1968

•6 years ago

2 Replies

Help - suddenly feeling awful (after major stress)

Hi wonderful people, I need help please, to deal with sudden symptom escalation after stress. I was doing well, neurologist discharged me 2 months ago, with...

Hi wonderful people, I need help please, to deal with sudden symptom escalation ...

Mashie44

•6 years ago

5 Replies

Doctors have stopped my b12

Hi All, I am seriously fed up. I was diagnosed with B12 deficiency back in 2013 but not PA. My injections have been stopped once before but I managed to see...

Hi All, I am seriously fed up. I was diagnosed with B12 deficiency back in 2013...

alison687

•6 years ago

30 Replies

Viapath Nutris B12 Test Results- Can anyone assist me in interpreting them?

Hello I had some B12 related tests performed last week by Viapath Nutris and require some assistance in interpreting them. The tests and results are as...

Hello I had some B12 related tests performed last week by Viapath Nutris and req...

ARRozental

•6 years ago

4 Replies

B12 blood results low

Hi all, I went to the doctors due to feeling exhausted all of the time, constant headaches, memory loss, a feeling of swallowing something in my throat,...

Hi all, I went to the doctors due to feeling exhausted all of the time, constant...

Carlaco

•6 years ago

4 Replies

Need help

Do I take my sublingual b12 the same time as I take my Folic acid pill, or do I have to wait a little in between. All comments I have seen says you should...

Do I take my sublingual b12 the same time as I take my Folic acid pill, or do I ...

Shirley7144

•6 years ago

3 Replies

Recovery, and feeling lonely. Anyone else felt this way?

Feeling great, but i still have to follow the steps i took when i was a little bit more desperate. Think all these new feelings and emotions are coming out....

Feeling great, but i still have to follow the steps i took when i was a little b...

Fl17

•6 years ago

9 Replies

Can’t take this b12 induced acne any longer!

I started to get really painful cystic acne when I started supplementing b12. Essentially never had a pimple prior to supplementation. Now I have cysts all...

I started to get really painful cystic acne when I started supplementing b12. Es...

marcus12345

•6 years ago

4 Replies

Folate levels on loading dose injection advice please?

Hi, I have just started my loading injections of B12, I asked my Dr about my folate levels and he says they are ok as the number is 5, would It help the B12...

Hi, I have just started my loading injections of B12, I asked my Dr about my fol...

Julie07

•6 years ago

3 Replies

B12 is just a vitamin...

This is what the nurse said to me today when I was a bit upset at being told I couldn't have my jab because apparently the dr hasn't put an explicit note...

This is what the nurse said to me today when I was a bit upset at being told I c...

Clare184

•6 years ago

12 Replies

Storing B12 ampoules

Hello I have just purchased B12 ampoules. Please could anyone advise on storage. Do I need to keep them in the fridge.

Hello I have just purchased B12 ampoules. Please could anyone advise on storage....

mocr

•6 years ago

16 Replies

Which cobalamin should I buy??

I see there are three different cobalamin, but which would be best for me? At the moment I am taking sublingual methylcobalamin but though my level of serum...

I see there are three different cobalamin, but which would be best for me? At th...

jointpain

•6 years ago

12 Replies

Better Late than never

On 3rd April 1959 I underwent gastric surgery for a perforated peptic ulcer and had two thirds of my stomach removed which eventually led to a diagnosis of...

On 3rd April 1959 I underwent gastric surgery for a perforated peptic ulcer and ...

clivealive

Forum Support•6 years ago

8 Replies

Still struggling..

Hi everyone, 27old me, have tested with b12 deficiency (227 score) July last year, had 8 injections and then 2 months of sublingual. Have had 3 MRI includes...

Hi everyone, 27old me, have tested with b12 deficiency (227 score) July last ye...

Rat007

•6 years ago

5 Replies

Explaining the exhaustion to other people?

Hi any ideas how to explain just how all consuming the exhaustion gets on a bad day? I'm going for my next jab tomorrow and just have nothing left would like...

Hi any ideas how to explain just how all consuming the exhaustion gets on a bad ...

Clare184

•6 years ago

22 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2018

Latest news

B12 Deficiency Injections

More tests

Blood test results first

Tablets or Injections for B12

19 years old, wanting to self inject B12??? - long post!

Should I ask to see a neurologist?

Newbie

Nothing is working

Medical scandal

Do symptoms get worse before healing?

High b12

Does PA occur more frequently in the British Isles?

Sweating in day and at night

Do I have enough evidence of PA?

Hot flushes

Help - suddenly feeling awful (after major stress)

Doctors have stopped my b12

Viapath Nutris B12 Test Results- Can anyone assist me in interpreting them?

B12 blood results low

Need help

Recovery, and feeling lonely. Anyone else felt this way?

Can’t take this b12 induced acne any longer!

Folate levels on loading dose injection advice please?

B12 is just a vitamin...

Storing B12 ampoules

Which cobalamin should I buy??

Better Late than never

Still struggling..

Explaining the exhaustion to other people?

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How Often do you feel you actually need your B12 injection?

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