Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for April 2018

Where in UK do I get Methylmalonic Acid urine test please?

I ordered from medichecks but its a 24 hr urine test and therefore quite impractical around work etc. I swapped to medichecks blood test but my veins are tiny...

I ordered from medichecks but its a 24 hr urine test and therefore quite impract...

tiredBFmum

•6 years ago

1 Reply

DAILY VITAMIN B12 ORAL SPRAY

Hi there I am new here. I have been recently diagnosed as being deficient in Folate and have been prescribed a 3 month course of folic acid. My blood results...

Hi there I am new here. I have been recently diagnosed as being deficient in Fol...

jacjc

•6 years ago

12 Replies

Oops ordered wrong b12!

I think in my b12 haggled brain I've ordered the incorrect b12. I'm so stupid! I think I have ordered the cyanocobalamin instead of the hydroxocobalamin! I...

I think in my b12 haggled brain I've ordered the incorrect b12. I'm so stupid! I...

alison687

•6 years ago

10 Replies

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Hello

Just diagnosed and on my 4th loading shot and starting to feel I’ve more energy. I also have fibromyalgia, chronic fatigue and hemiplegic migraine, plus in an...

Just diagnosed and on my 4th loading shot and starting to feel I’ve more energy....

TheWhyGirl

•6 years ago

2 Replies

Chloramphenicol

My diagnosis is a b12 metabolism disorder although my Nan did have a definite pernicious anaemia diagnosis. I have been self injecting alt days methylcobalamin...

My diagnosis is a b12 metabolism disorder although my Nan did have a definite pe...

Rebecca85

•6 years ago

6 Replies

Need b12 injections every 10 days

I was diagnosed with pernicious anemia over 5 years ago, now age 65. Was put on monthly B12 injections but my level still measured a little low. For the last...

I was diagnosed with pernicious anemia over 5 years ago, now age 65. Was put on ...

lsharp

•6 years ago

2 Replies

B12 Def caused with Nitrous Oxide dental procedures?

I was diagnosed with B12 def at ER at levels that are undetectable. Was given a shot every month for 4 months and my levels after 4 months were at 380. Based...

I was diagnosed with B12 def at ER at levels that are undetectable. Was given a ...

Dvpk24

•6 years ago

16 Replies

Intrinsic factor

If one doesn't have an intrinsic factor, will vitamin B 12 tablets be absorbed by the stomach?

If one doesn't have an intrinsic factor, will vitamin B 12 tablets be absorbed b...

Jcilom

•6 years ago

10 Replies

Neurological symptoms and b12

Hi, last b12 blood test reading back in Dec was 174. Doctor said it wouldn't account for my numb toes. Saw a neurologist in Feb who diagnosed poly neuropathy....

Hi, last b12 blood test reading back in Dec was 174. Doctor said it wouldn't acc...

ABC852031

•6 years ago

47 Replies

B12 slow release tablets and Fluid intake

Hi everyone! Another question has popped up, they seem to come to me in the middle of the night. Just wondering if there is any point in taking slow release...

Hi everyone! Another question has popped up, they seem to come to me in the midd...

Sophieelizabeth

•6 years ago

10 Replies

B12 tablets, itch skin ?

Hi Guys, I was on a strict veg diet for the last 10-15 years, and started to develop the typical symptoms of B12 deficiency over the past 5/6 years. I have...

Hi Guys, I was on a strict veg diet for the last 10-15 years, and started to dev...

bunnymoney

•6 years ago

6 Replies

Im confused! B12 still causing awful acne 6 months after loading dose. Do I need more or less frequent injections?

Hi all, I was diagnosed in sept 2017 with a b12 reading of 137. I had 6 injections over 2 weeks and have since been having an injection every 10-12 weeks....

Hi all, I was diagnosed in sept 2017 with a b12 reading of 137. I had 6 inject...

Luzzell30

•6 years ago

4 Replies

B12 patches

Hi everyone. I haven't been on for a while so hope you are all getting on better. I would like to ask if anyone knows what percentage of the B12 goes into our...

Hi everyone. I haven't been on for a while so hope you are all getting on better...

Margaret-S

•6 years ago

16 Replies

Very new to this any help please

So very very new to this. I don’t think I have PA but I do have low B12. I have been feeling low for some time but I put that down to age, work and personal...

So very very new to this. I don’t think I have PA but I do have low B12. I have ...

007carra

•6 years ago

5 Replies

Is my B12 level ok

It's 375ng/l (181-910) doc has prescribed me folic acid as its below range, is it ok

It's 375ng/l (181-910) doc has prescribed me folic acid as its below range, is i...

Joanneconnor

•6 years ago

6 Replies

Internal Medicine Specialist appt

Hi there - early in my journey with this (discovered in Nov 2017 I am low b12/low ferritin). (I am in Canada) My GP has not been interested in discussing my...

Hi there - early in my journey with this (discovered in Nov 2017 I am low b12/lo...

Llawry

•6 years ago

11 Replies

Sublingual B12 Tablets

I have been hospitalized due to a B12 level that was so low it couldn't be measured. For the past year I've been on injections, 1000mcg, every 3 weeks. My...

I have been hospitalized due to a B12 level that was so low it couldn't be measu...

Maxparis

•6 years ago

8 Replies

Going forward with B12 deficiency

Hi everyone! I’m so glad I have found this community, it’s easy to feel alone with this condition. I’ve had a bad couple of days with symptoms returning again,...

Hi everyone! I’m so glad I have found this community, it’s easy to feel alone wi...

Sophieelizabeth

•6 years ago

4 Replies

Still looking for answers and a diagnosis after 3 years - losing heart. Any ideas ?

Foolishly perhaps, I had pinned all my hopes on 2nd visit to Gastroenterologist yesterday. Not sure where to go or what to do now : I do NOT have Coeliac...

Foolishly perhaps, I had pinned all my hopes on 2nd visit to Gastroenterologist ...

Cherylclaire

Forum Support•6 years ago

36 Replies

B12 supplements

Which is a supplement is better for neurological systoms methylcobalamin or cobalamin? Also how much mcg should i take per day?

Which is a supplement is better for neurological systoms methylcobalamin or coba...

Edwards2017

•6 years ago

6 Replies

Folic acid and cll

Can you take folic acid and vitamin d if you have cll

Laine01902

•6 years ago

2 Replies

Homocysteine and MMA - an point after first injection?

Does anyone know if it’s worth me doing the homocysteine and MMA tests? I have already had one B12 injection. So is it now too late to do such a test? I am...

Does anyone know if it’s worth me doing the homocysteine and MMA tests? I have...

Ilala

•6 years ago

7 Replies

Palpitations

Hi all. I was diagnosed with Vasculitis in July last year. Whilst they were running tests they also discovered I have pernicious anaemia. I had the loading...

Hi all. I was diagnosed with Vasculitis in July last year. Whilst they were runn...

HFox

•6 years ago

2 Replies

Help GP won't give loading dose on a Saturday with very high resting heart rate

Just been diagnosed with pernicious anaemia b12 and folic acid. I'm am having my loading doses now, the consultant wants me to have these every second day and...

Just been diagnosed with pernicious anaemia b12 and folic acid. I'm am having my...

area16rep

•6 years ago

5 Replies

Got my b12 results...

Hi last year my b12 was so low but no anemia and i hot 4 hydroxo injections 5ml each once a week for 4 weeks, after a month i started to feel weak again so i...

Hi last year my b12 was so low but no anemia and i hot 4 hydroxo injections 5ml...

Themost1ted

•6 years ago

8 Replies

Help!!!

Okay so I’m really confused what is happening. Ima 21 year old female. The last year or so I have been diagnosed with a b12 deficiency requiring the...

Okay so I’m really confused what is happening. Ima 21 year old female. The last...

hannal0u

•6 years ago

1 Reply

Three months after starting treatment and still experiencing neurological symptoms

Hi everyone, this is my first post. It took more than 3 months after first going to my GP for the practice to agree to a longer course of B12 injections (my...

Hi everyone, this is my first post. It took more than 3 months after first going...

drvicclarke

•6 years ago

2 Replies

9 weeks into treatment, so many symptoms still

Hi Everyone, I have been getting injections for 9 weeks now (3x weekly) but am still struggling with the following: - head pressure - body feels like it’s...

Hi Everyone, I have been getting injections for 9 weeks now (3x weekly) but am ...

ChitN

•6 years ago

7 Replies

Confused is it B12 deficiency or not?

Hello, One month back i was feeling spins in my head and after two days i thought o consult doctor. Doctor gave me multivitamin and spinfree tablet. I was...

Hello, One month back i was feeling spins in my head and after two days i though...

harrry0489

•6 years ago

19 Replies

B12 def and IBS symptoms

Lovely knowledgeable people - I have IBS as well as B12 deficiency. It's never great, but for the last few months it's been horrible. I'm not particularly...

Lovely knowledgeable people - I have IBS as well as B12 deficiency. It's never...

spacey1

•6 years ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2018

Where in UK do I get Methylmalonic Acid urine test please?

DAILY VITAMIN B12 ORAL SPRAY

Oops ordered wrong b12!

Hello

Chloramphenicol

Need b12 injections every 10 days

B12 Def caused with Nitrous Oxide dental procedures?

Intrinsic factor

Neurological symptoms and b12

B12 slow release tablets and Fluid intake

B12 tablets, itch skin ?

Im confused! B12 still causing awful acne 6 months after loading dose. Do I need more or less frequent injections?

B12 patches

Very new to this any help please

Is my B12 level ok

Internal Medicine Specialist appt

Sublingual B12 Tablets

Going forward with B12 deficiency

Still looking for answers and a diagnosis after 3 years - losing heart. Any ideas ?

B12 supplements

Folic acid and cll

Homocysteine and MMA - an point after first injection?

Palpitations

Help GP won't give loading dose on a Saturday with very high resting heart rate

Got my b12 results...

Help!!!

Three months after starting treatment and still experiencing neurological symptoms

9 weeks into treatment, so many symptoms still

Confused is it B12 deficiency or not?

B12 def and IBS symptoms

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