Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for April 2018

PA n high Anti GPC

I hv PA n autoimmune gastrititis. The Antibody GPC(Gastric Parietal Cells) is always high i.e between 1/1280 n 1/2560 inspite of continous monthly B12...

I hv PA n autoimmune gastrititis. The Antibody GPC(Gastric Parietal Cells) is al...

tnkarthik28

•6 years ago

6 Replies

Progress of Peripheral Neuropathy

Hello, I’m new to PA and all the information on this group has been incredibly helpful. I have a question about the progress of peripheral neuropathy - can the...

Hello, I’m new to PA and all the information on this group has been incredibly h...

blood_orange

•6 years ago

12 Replies

High B12

I’m new ... I just need to know how you feel if you have high B12. It was over 2000 and I am to cut back on my b12 supplements. But I need to know if how I am...

I’m new ... I just need to know how you feel if you have high B12. It was over 2...

PrettyM

•6 years ago

5 Replies

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Will homocysteine blood test be accurate after stopping B12 supplements for only a week?

Hi Everyone! I'm new to the group. I'm in the midst of trying to convince my doctor that I have a B12 deficiency. My B12 blood serum level was in the...

Hi Everyone! I'm new to the group. I'm in the midst of trying to convince my do...

energy0

•6 years ago

4 Replies

New to site, not new to PA

Hello, I have PA, inject myself every two weeks, and it still isn't enough. My history is convoluted and probably pretty typical for people in the USA. I...

Hello, I have PA, inject myself every two weeks, and it still isn't enough. My...

Linda730

•6 years ago

11 Replies

Active B12 10 to 30%

I am supplementing Jarrows B12 5000 mcg, 3 x a day for 5 months. My B12 blood test from the doctors has come back as 2000 high. I still have numb feet,...

I am supplementing Jarrows B12 5000 mcg, 3 x a day for 5 months. My B12 blood t...

Katherine1234

•6 years ago

10 Replies

Drinkable B12

I want to try my husband on B12 just to see if it helps his constant tiredness - he's been prescribed iron tablets but they seem to be increasing his iron...

I want to try my husband on B12 just to see if it helps his constant tiredness -...

Tricot

•6 years ago

8 Replies

Continue B12 injections?

I have finally finished my B12 replacement therapy . I have checked that my B12 active level is where it should be and have been advised by a very clever...

I have finally finished my B12 replacement therapy . I have checked that my B12 ...

toph

•6 years ago

2 Replies

Sick and scared after taking b12

Newbie her and I feel so lost! My gp diagnosed me with pa earlier this week.(220 was my level) She said I needed the shots, which I refused, bc years ago when...

Newbie her and I feel so lost! My gp diagnosed me with pa earlier this week.(220...

Mcpowell

•6 years ago

17 Replies

B12/Folate results-advice please

Iam a member of the Thyroid UK site and would appreciate advice on the following results. My mother had PA and I am concerned that I may be heading in that...

Iam a member of the Thyroid UK site and would appreciate advice on the following...

Mrs964

•6 years ago

5 Replies

Pernicious Anaemia (?)

Late 2016 early 2017 I was absolutely wiped. I visited the GP who told me to join a mindjog website and told me i may have been depressed. I argued and...

Late 2016 early 2017 I was absolutely wiped. I visited the GP who told me to joi...

Kellz2018

•6 years ago

4 Replies

Pernicious anemia

I got diagnosed with pernicious anemia in 2015 the GP start me of with b12 injections and folic acid tablets however since September last year they stopped all...

I got diagnosed with pernicious anemia in 2015 the GP start me of with b12 injec...

Demij

•6 years ago

12 Replies

Radio 4 Programme on the Microbiome

A really interesting programme on the microbiome and how important an influence it has on our brain and the development of chronic disease: "Recent DNA...

A really interesting programme on the microbiome and how important an influence ...

Polaris

•6 years ago

1 Reply

Folic acid with B12 injections?

My god-daughter started loading doses of B12 this week, and she has low folate (239: normal range 285-1475). She did not take a folic acid supplement after...

My god-daughter started loading doses of B12 this week, and she has low folate (...

njames50

•6 years ago

2 Replies

B12 injections

Hi every1 I need your help. I have b12 injections every 3 months. I had a baby in December 1016 (I had gas and air) only to find out it depleats b12 and that...

Hi every1 I need your help. I have b12 injections every 3 months. I had a baby i...

katiel86

•6 years ago

6 Replies

Well now I'm confused...

I have just had my last loading dose. Still getting thoroughgoing vibrations/tremors. I saw my gastro guy today who airily said "oh 192 is borderline I...

I have just had my last loading dose. Still getting thoroughgoing vibrations/tre...

Hercules1969

•6 years ago

9 Replies

B12 dropped to 538 two weeks after my last injection

I had loading doses approx 2 years ago, and have been having 12 weekly injections ever since. Around Christmas, I noticed that the ringing in my ears was...

I had loading doses approx 2 years ago, and have been having 12 weekly injection...

petal02

•6 years ago

6 Replies

Advice Please

Hi, So I’ve been having trouble with my health for a while, my TSH until this test taken on Monday has been 4.30 for about 5 months. I’ve been feeling...

Hi, So I’ve been having trouble with my health for a while, my TSH until this te...

bubblesmcgee

•6 years ago

2 Replies

Why Am I Deficient

Hello I am still getting 12 weekly B12 injections but not really getting answers from my doctor. I feel I am more and more being clumsy - I've tripped 3 times...

Hello I am still getting 12 weekly B12 injections but not really getting answers...

Weecee45

•6 years ago

2 Replies

Increasing my the frequency of my maintenance injections.

Good morning. I am new here. While I have been a member of this forum for a little while, it is the first time I am posting. Everyone seems so knowledgeable...

Good morning. I am new here. While I have been a member of this forum for a litt...

Beautyaddict16

•6 years ago

6 Replies

b12 balancing problems

hi every one, I had treated with b12 deficiency 5 months back 200(232-910).the balancing problem and pain in the lower feet is not going away and done with...

hi every one, I had treated with b12 deficiency 5 months back 200(232-910).the ...

RaJender9666

•6 years ago

2 Replies

I want to self inject.

Hello everyone, I’m very new to the sight and have had PA for just over 3 years. I bought myself a gastric band and although losing 8 stone I have...

Hello everyone, I’m very new to the sight and have had PA for just over 3 years....

Kerlou

•6 years ago

4 Replies

High cholesterol

My blood was tested this past Friday and the results came back today. I don’t have a copy but everything was “normal” except I now have high cholesterol. I’ve...

My blood was tested this past Friday and the results came back today. I don’t h...

pvanderaa

•6 years ago

4 Replies

Which test for active b12 - venous or spot test?

Hi i'm new here, been having symptoms of b12 deficiency for a long time now maybe a year. I have been brestfeeding my 2 daughters and just ignored the...

Hi i'm new here, been having symptoms of b12 deficiency for a long time now mayb...

cj-79

•6 years ago

2 Replies

2ml instead of 1

Hi, I self injected for the first time this evening (my...it took me hours to actually put the needle in! 😁 & if I showed you the video you’d wee yourselves...

Hi, I self injected for the first time this evening (my...it took me hours to ac...

Kateefc

•6 years ago

15 Replies

Link between B12 PA and high incidence of leukemia

I haven't posted in quite a while but have been getting cautioned by my oncologist regarding a high incidence of leukemia developing in PA patients with. Has...

I haven't posted in quite a while but have been getting cautioned by my oncologi...

CH52

•6 years ago

10 Replies

I hadn't seen this new service for testing....

This may be of interest to you if you want to check your B12 properly, at a cellular level. It appears this has only been up and running since earlier this...

This may be of interest to you if you want to check your B12 properly, at a cell...

Bluedragon

•6 years ago

5 Replies

Should I be getting more B12 injections?

I have just been diagnosed with B12 deficiency. My readings were B12 85 and Folate 3.4. GP stated Folate was ok. IF was negative. Have received 6 loading...

I have just been diagnosed with B12 deficiency. My readings were B12 85 and Fola...

celialockyer

•6 years ago

11 Replies

New Member - Query re. B12 Injections Stopping B12 Getting To Cells Unless Serum B12 High

Hello, I'd be grateful if someone could help me with this query. I read in a recent post that B12 shots could cause problems with B12 getting into cells...

Hello, I'd be grateful if someone could help me with this query. I read in a re...

Canta

•6 years ago

4 Replies

Confused

Hi everyone There are so many well informed people on this forum. I do hope you can guide me. Four years ago my blood test showed B12- 300. Intrinsic factor...

Hi everyone There are so many well informed people on this forum. I do hope you...

mocr

•6 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2018

PA n high Anti GPC

Progress of Peripheral Neuropathy

High B12

Will homocysteine blood test be accurate after stopping B12 supplements for only a week?

New to site, not new to PA

Active B12 10 to 30%

Drinkable B12

Continue B12 injections?

Sick and scared after taking b12

B12/Folate results-advice please

Pernicious Anaemia (?)

Pernicious anemia

Radio 4 Programme on the Microbiome

Folic acid with B12 injections?

B12 injections

Well now I'm confused...

B12 dropped to 538 two weeks after my last injection

Advice Please

Why Am I Deficient

Increasing my the frequency of my maintenance injections.

b12 balancing problems

I want to self inject.

High cholesterol

Which test for active b12 - venous or spot test?

2ml instead of 1

Link between B12 PA and high incidence of leukemia

I hadn't seen this new service for testing....

Should I be getting more B12 injections?

New Member - Query re. B12 Injections Stopping B12 Getting To Cells Unless Serum B12 High

Confused

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