Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for April 2018

This is what they did yesterday

Plus a parietal antibody test also. Asked about active b12. No answer came the stern reply..

Plus a parietal antibody test also. Asked about active b12. No answer came the s...

Hercules1969

•6 years ago

9 Replies

How long does it take to see an improvement

Hello My name is Jade I started hydroxocobalamin on the NHS 18 months ago 1 monthly for few months and was then only getting them every 2-3 months. As this...

Hello My name is Jade I started hydroxocobalamin on the NHS 18 months ago 1 mont...

Jadeo0909

•6 years ago

17 Replies

Parietal blood test

Hiya. Apart from malabsorbtion can anyone tell me exactly what this blood test will reveal. My doctor is now doubting that my symptoms are b12 related and I...

Hiya. Apart from malabsorbtion can anyone tell me exactly what this blood test w...

Hercules1969

•6 years ago

3 Replies

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Not really feeling any better

So, after doing a self injection on Sat I am not really feeling any better. How long does it normally take to work? Should I do another as when I have 1 at the...

So, after doing a self injection on Sat I am not really feeling any better. How ...

alison687

•6 years ago

23 Replies

B12 testing even though you are taking B12

Morning all, I have been taking Jarrow formula B12 5,000iu 5 days a week for 3 to 4 years now and all has been fine but recently I have started to have falls...

Morning all, I have been taking Jarrow formula B12 5,000iu 5 days a week for 3 t...

Moggie

•6 years ago

4 Replies

B12 injections side effects:dry skin, acne, prickly/itchy/tingling feeling

hi I have was diagnosed with b12 defiency in January just after my 40th birthday. Great present not! I was told to have 6 loading doses over 2 wks then 1...

hi I have was diagnosed with b12 defiency in January just after my 40th birthda...

Hidden

•6 years ago

4 Replies

Still feeling awful

I’ve just had my blood test back for b12 and receptionist said it was within normal range. I asked for exact amount and was told it was over 500. I had 1 b12...

I’ve just had my blood test back for b12 and receptionist said it was within nor...

Tebejay

•6 years ago

5 Replies

Crazy on b12?

Did anyone turn into an emotional mess upon starting b12? After taking HydroxyB12 2000mcg sublingual lozenges for two days, my potassium tanked and I ended up...

Did anyone turn into an emotional mess upon starting b12? After taking HydroxyB1...

Mcpowell

•6 years ago

6 Replies

As I suspected...

Went to doctor with weakness and tremors - check Ended up on beta blockers for anxiety - check...

Went to doctor with weakness and tremors - check Ended up on beta blockers for a...

Hercules1969

•6 years ago

18 Replies

PA since 2001.

I have balance problems due to PA.

Coletony

•6 years ago

3 Replies

Widening my search: a possible link between B12 deficiency and SIBO ?

Cherylclaire

Forum Support•6 years ago

8 Replies

Pa

I have been to doctors to have bloods done now they are telling me I should only have my b12 injection every 4 months now

I have been to doctors to have bloods done now they are telling me I should only...

Sally39

•6 years ago

12 Replies

Could these symptoms of hallucinations be B12 def?

Just caught the end of 'Meet the Author', Suzanne O' Sullivan, neurologist and author of ' Brain Storm - Detective Stories from the World of Neurology'....

Just caught the end of 'Meet the Author', Suzanne O' Sullivan, neurologist and a...

Polaris

•6 years ago

8 Replies

Could it be B9?!

Sitting here with pins & needles gradually spreading all over my body after deciding to have a day off all meds before my first neurologist appointment first...

Sitting here with pins & needles gradually spreading all over my body after deci...

Hidden

•6 years ago

34 Replies

Symptoms returning?

Can someone please explain to me why my b12 level is 1400, SI 3x per week, iron is 12 range (11-34) and folate is >2500 normal is >1100. Symptoms were all...

Can someone please explain to me why my b12 level is 1400, SI 3x per week, iron ...

Plucky1976

•6 years ago

6 Replies

What brand and strength b12

Hi everyone. Can someone tell me the brand name of the b12 injection ampules that they use and buy from the German online pharmacy versandapoapp.de. Many...

Hi everyone. Can someone tell me the brand name of the b12 injection ampules tha...

Themabinogion

•6 years ago

6 Replies

Help with Blood test result please

I am going to the GP as I have not been feeling well since the new year. The blood tests results are all marked as "No action required" but I don't feel OK. I...

I am going to the GP as I have not been feeling well since the new year. The bl...

carer999

•6 years ago

1 Reply

Vitamin b12 queries!!!

Any updated information regarding b12 treatment? Which one is best-- methylcobalamin/hydroxocobalamin/cyanocobalamin??

Any updated information regarding b12 treatment? Which one is best-- methylcobal...

Riyad55

•6 years ago

2 Replies

Mixing it ?

The kind gentlemen at my local surgery have reduced my monthly hydroxocobalamin shots from 4 weekly to 8 weekly this was after they tried to change it to 12...

The kind gentlemen at my local surgery have reduced my monthly hydroxocobalamin ...

foskid

•6 years ago

2 Replies

Restore Gut Health

someone has recommended that I consider taking a product called Restore -...

jacjc

•6 years ago

6 Replies

Visual changes with B12 deficiencies

Hi there I am having real visual blurring with spots before my eyes. I really think it is from B12 deficits. I have had three stomach surgeries and was on...

Hi there I am having real visual blurring with spots before my eyes. I really t...

Sita505USA

•6 years ago

3 Replies

New to this forum

Hi, I was diagnosed with PA almost 8 years ago. My doctor was really good to start with. She started me on folate for a week while they waited for my final...

Hi, I was diagnosed with PA almost 8 years ago. My doctor was really good to sta...

Meisor

•6 years ago

21 Replies

I'm back ;) Advice re mother & functional B12 deficiency

Hiya! So it's been a while since I've visited these forums! I was diagnosed B12 deficient last July then when had SACD symptoms & NHS wouldn't treat me...

Hiya! So it's been a while since I've visited these forums! I was diagnosed B12 ...

Hidden

•6 years ago

16 Replies

Still not lifting

Well I had my last loading dose on Wednesday. If anything a feel weaker and my tremors are throughout my body. Constant headaches and ear/sinus trouble....

Well I had my last loading dose on Wednesday. If anything a feel weaker and my t...

Hercules1969

•6 years ago

9 Replies

Is this Pernicious Anaemia?

My god-daughter has B12, folate and iron deficiencies. She has tested positive for Hashmimoto's and for perietal cell antibodies, but not for Intrinsic Factor...

My god-daughter has B12, folate and iron deficiencies. She has tested positive f...

njames50

•6 years ago

5 Replies

Injected myself this morning for 1st time.

So I finally received my b12 and have done a shot this morning. The trickiest bit was getting a clean break on the ampoules. I have a slight injection Mark,...

So I finally received my b12 and have done a shot this morning. The trickiest bi...

alison687

•6 years ago

17 Replies

Testing for PA after starting B12 treatment

Are there any test that you can do to explain why you might be B12 deficient after you've been self-injecting for some time? My GP has finally accepted that my...

Are there any test that you can do to explain why you might be B12 deficient aft...

Dizzinessloaded

•6 years ago

6 Replies

Why not use fine needles like 27G or 25G as a starting point?

The general advice is to use a broader needle (such as a green 21G) to draw up the B12 and then a slightly narrower one to inject (such as a blue 23G for the...

The general advice is to use a broader needle (such as a green 21G) to draw up t...

Cetus

•6 years ago

7 Replies

Painful ribs and spine

Often have a lot of pain in my ribs, spine, shoulder blades and sometime tops of shoulders. Yesterday and today worst it's been for a while. Do any others...

Often have a lot of pain in my ribs, spine, shoulder blades and sometime tops of...

Margaret-S

•6 years ago

8 Replies

Is it normal for B12 to drop quickly?

I have not been diagnosed with PA but was tested for B12 in January and it was quite high 2304ng/l, I attributed this to injection b12 therapy I had the year...

I have not been diagnosed with PA but was tested for B12 in January and it was q...

Hashi-Monster

•6 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2018

This is what they did yesterday

How long does it take to see an improvement

Parietal blood test

Not really feeling any better

B12 testing even though you are taking B12

B12 injections side effects:dry skin, acne, prickly/itchy/tingling feeling

Still feeling awful

Crazy on b12?

As I suspected...

PA since 2001.

Widening my search: a possible link between B12 deficiency and SIBO ?

Pa

Could these symptoms of hallucinations be B12 def?

Could it be B9?!

Symptoms returning?

What brand and strength b12

Help with Blood test result please

Vitamin b12 queries!!!

Mixing it ?

Restore Gut Health

Visual changes with B12 deficiencies

New to this forum

I'm back ;) Advice re mother & functional B12 deficiency

Still not lifting

Is this Pernicious Anaemia?

Injected myself this morning for 1st time.

Testing for PA after starting B12 treatment

Why not use fine needles like 27G or 25G as a starting point?

Painful ribs and spine

Is it normal for B12 to drop quickly?

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