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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for April 2018

New here - Help with results please.

Hi, I'm hoping to get some advice on my latest test results. My backround is that I have been having symptoms exhaustion and tingling/numbness in my hands,...

Hi, I'm hoping to get some advice on my latest test results. My backround is th...

cj-79

•6 years ago

4 Replies

Advice please

My father is having b12 injections he has had a course of 5 and he is complaining about his arm hurting ,is there anything I can do

My father is having b12 injections he has had a course of 5 and he is complainin...

Sonnyb12

•6 years ago

19 Replies

My b1 and b12 story

Aged 43 male. Below are blood results: Vitamin B12 898 pg/mL >211 pg/mL Folate 17.5 ng/mL >2.8 ng/mL Thyroid-Stimulating Hormone (TSH),...

Aged 43 male. Below are blood results: Vitamin B12 898 pg/mL >211 pg/mL F...

Herbert123

•6 years ago

2 Replies

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Doctors appointment update

Hey all, last week I posted on here for the first time. I said I would keep in touch after my doctor's visit today. (See my previous post) I seen my doctor in...

Hey all, last week I posted on here for the first time. I said I would keep in t...

Kay3710

•6 years ago

2 Replies

Multiple Sclerosis HOT MESS

Hello everyone! I am new here and not really sure what I am doing here, besides this is where Google brought me :) I have MS and have had it for 15 years. I...

Hello everyone! I am new here and not really sure what I am doing here, besides ...

pumpkintoes

•6 years ago

2 Replies

Blood Results - To Self Inject or Not...?

Hi super supportive community! I would really, really appreciate your insight please? I'll try and be brief. I've been tired pretty much all my life - even as...

Hi super supportive community! I would really, really appreciate your insight pl...

DogInTheDisco

•6 years ago

8 Replies

could it be b12 deficiency and blood test results

I'm new here, sorry if I do anything wrong! My symptoms started with numbness/tingling/crawling sensation, which developed to breathlessness, heart...

I'm new here, sorry if I do anything wrong! My symptoms started with numbness/ti...

Hidden

•6 years ago

3 Replies

VITAMIN B12 DEFICIENCY

Hello I am 39 and have been told for the past 20 plus years that I'm anemic which I on and off take ferrous fumarate for. I also have Rheumatoid Arthritis, I...

Hello I am 39 and have been told for the past 20 plus years that I'm anemic whic...

Kerry-78

•6 years ago

6 Replies

tingle

I have PA for 25 years had peripheral neuropathy (ataxia ) prior to treatment..get very tired have B12 3 monthly My GP is doing a blood test 2 weeks...

I have PA for 25 years had peripheral neuropathy (ataxia ) prior to treatme...

asker2

•6 years ago

2 Replies

How often please?

Hi, I have done every other day B12 injections (self injecting) & have now done 7. My pins & needles have gone, my aching small joints have gone, I have more...

Hi, I have done every other day B12 injections (self injecting) & have now done ...

Kateefc

•6 years ago

2 Replies

Question about b12 deficiency

Hello Just looking for some advice. My husband was diagnosed with very low b12 about a year or so ago. Took ages to get GP to agree to even test him. He was...

Hello Just looking for some advice. My husband was diagnosed with very low b12 a...

Hidden

•6 years ago

2 Replies

Ordering B12 online in Thailand

Hi everyone! I'm brand new to this and am still in the stages of going back and forth with my GP. Lot's to figure out still, but I'm big on planning. Next...

Hi everyone! I'm brand new to this and am still in the stages of going back and ...

DogInTheDisco

•6 years ago

7 Replies

6 Months on since SI

I'm pleased to say that since my first SI which was pretty daunting it has become a routine matter now. I haven't bothered to tell the gp's about it, I just go...

I'm pleased to say that since my first SI which was pretty daunting it has becom...

Cali25

•6 years ago

6 Replies

Understanding Myself is the 1st step to helping my Doctors help me.

I have Ehlers Danlos,Gastroparisis, and Glaucoma. I deal with numbness in feet legs and my hands. Double Vision, with my vision fluctuations through out the...

I have Ehlers Danlos,Gastroparisis, and Glaucoma. I deal with numbness in feet l...

Jninearty

•6 years ago

6 Replies

Help with jabs being reduced

Hi I have posted some of this elsewhere but could really do with any advice. I am not diagnosed with pa if came back negative but definitely cannot absorb...

Hi I have posted some of this elsewhere but could really do with any advice. I ...

Clare184

•6 years ago

6 Replies

Unusual sensation, low haemoglobin.

I usually post in the Thyroid forum, but wondered if anyone on here might have some insight into my symptoms. I've been experiencing an unusual sensation in my...

I usually post in the Thyroid forum, but wondered if anyone on here might have s...

Jackiez

•6 years ago

6 Replies

Need pointing in the right direction please

Morning all, I am going to see my GP soon regarding my symptoms returning, even though I am taking 5,000iu supplements daily, and would like it if someone...

Morning all, I am going to see my GP soon regarding my symptoms returning, even ...

Moggie

•6 years ago

10 Replies

Anesthesia used for endoscopy

I was diagnosed with PA when I was 19 yrs old. My hemoglobin was 6 and nearly died. All tests, Schilling, bone marrow etc. verified this. I am 63 years old...

I was diagnosed with PA when I was 19 yrs old. My hemoglobin was 6 and nearly di...

Casey6017

•6 years ago

2 Replies

New Here. Seeking Advice or Insight.

Hi. I'm Meg. Recently had blood tests done and was told that I was "borderline" deficient in B12. Results were: Homocysteine 9.9 (range <10.4) serum B12...

Hi. I'm Meg. Recently had blood tests done and was told that I was "borderline...

meghoboken

•6 years ago

8 Replies

After my 7 page letter

So, I spoke with the practice manager this morning following on from my 7 page letter. She has booked me in for a review with senior doctor next weds for half...

So, I spoke with the practice manager this morning following on from my 7 page l...

alison687

•6 years ago

16 Replies

Leicestershire PAS Support Group Meeting: Thursday 26 April, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Hi All The Pernicious Anaemia Society and our joint hosts, the Shuttlewood-Clark Foundation, are holding the next PAS support group meeting, as above. The...

Hi All The Pernicious Anaemia Society and our joint hosts, the Shuttlewood-Clark...

Foggyme

Administrator•6 years ago

Be the first to reply

Are you a, or do you know of a, GP Doctor that reads this forum?

I wonder sometimes what is going on in Doctors surgeries up and down the country. When there are so many people who are either B12 deficient or suffering with...

I wonder sometimes what is going on in Doctors surgeries up and down the country...

jointpain

•6 years ago

15 Replies

Anyone know a b12 specialist in Nottinghamshire, Mansfield or Derbyshire area?

Hi really need someone who understands b12 in the area to help, happy to pay private if it means I can get sorted! Seen gp today because she says she never...

Hi really need someone who understands b12 in the area to help, happy to pay pri...

Clare184

•6 years ago

Be the first to reply

B12 and iron issues

Hi all! I had my 6 week check up with my internal medicine doc and my concern this week was that my iron was borderline (12, range is 11-34). I take 28mg...

Hi all! I had my 6 week check up with my internal medicine doc and my concern th...

Plucky1976

•6 years ago

12 Replies

Struggling to understand the possibilities

Hi there, I hope you guys can help. I have been having steadily worsening symptoms for about four years which include: numbness in feet, tingling in feet,...

Hi there, I hope you guys can help. I have been having steadily worsening sym...

Hidden

•6 years ago

13 Replies

B12 low, again...

Pardon my rambling, Brain Fog... I was diagnosed with T2 Diabetes about 10 years ago, so I have bloods taken frequently. A few years ago (5, maybe?) I was...

Pardon my rambling, Brain Fog... I was diagnosed with T2 Diabetes about 10 year...

Saoirse2016

•6 years ago

16 Replies

B12 deficiency

Hi I am a vegetarian verging on vegan and was put on omaprezole by my various doctors to counter acid reflux. I had a 10 mg tablet every day for quite a few...

Hi I am a vegetarian verging on vegan and was put on omaprezole by my various do...

Alfabeta

•6 years ago

15 Replies

Get to know me (pernicious anemia)

Hey all! My name is Kay I'm 27, married and a mommy of 2. This is my first time posting. I was diagnosed with pernicious anemia August 2017. I am currently...

Hey all! My name is Kay I'm 27, married and a mommy of 2. This is my first time ...

Kay3710

•6 years ago

7 Replies

Sub acute degeneration of the spinal cord.

Has anyone here successfully managed to persuade their GP to give this diagnosis without referral to nuero? Also has anyone ever had an mri prove that they...

Has anyone here successfully managed to persuade their GP to give this diagnosis...

Ilala

•6 years ago

19 Replies

I feel I may not belong in this group but thank you.

More than a week after my loading doses I feel I have gone backwards. I am chronically fatigued and pained. Particularly in the limbs. Tinnitus constant....

More than a week after my loading doses I feel I have gone backwards. I am chron...

Hercules1969

•6 years ago

9 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2018

New here - Help with results please.

Advice please

My b1 and b12 story

Doctors appointment update

Multiple Sclerosis HOT MESS

Blood Results - To Self Inject or Not...?

could it be b12 deficiency and blood test results

VITAMIN B12 DEFICIENCY

tingle

How often please?

Question about b12 deficiency

Ordering B12 online in Thailand

6 Months on since SI

Understanding Myself is the 1st step to helping my Doctors help me.

Help with jabs being reduced

Unusual sensation, low haemoglobin.

Need pointing in the right direction please

Anesthesia used for endoscopy

New Here. Seeking Advice or Insight.

After my 7 page letter

Leicestershire PAS Support Group Meeting: Thursday 26 April, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Are you a, or do you know of a, GP Doctor that reads this forum?

Anyone know a b12 specialist in Nottinghamshire, Mansfield or Derbyshire area?

B12 and iron issues

Struggling to understand the possibilities

B12 low, again...

B12 deficiency

Get to know me (pernicious anemia)

Sub acute degeneration of the spinal cord.

I feel I may not belong in this group but thank you.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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