Anyone know a b12 specialist in Notti... - Pernicious Anaemi...

Pernicious Anaemia Society

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Anyone know a b12 specialist in Nottinghamshire, Mansfield or Derbyshire area?

Clare184 profile image
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Hi really need someone who understands b12 in the area to help, happy to pay private if it means I can get sorted! Seen gp today because she says she never agreed to 8 weekly jabs and she won't approve them because my b12 tested at 2000 before Christmas. I explained that my symptoms return after 7 weeks and I don't want to spend 5 weeks out of every 12 feeling like an 80 year old but she won't veer from the guidelines because she says I don't need it. I said surely it shows that I do need it if I feel well for 7 weeks after and then get worse and she started saying maybe its not b12 at all then and we need to look at other things. I asked how then I felt better straight away for 7 weeks it is obviously helping and explained that I don't enjoy having jabs but b12 is non-toxic, water soluble and you cannot over dose so why can I not be given a frequency of treatment that makes me feel well she just said shes not wrong and I can go to a private dr if I want but I'd have to pay and she couldn't help me find anyone who knows this area. She has agreed to refer it back to a haemotologist but last time they didn't speak to me at all just email between them.and dr. I feel so frustrated, I really don't want to self inject but shouldn't have to fight like this, sat in the car park crying like an idiot right now knowing I'll feel awful in 4 weeks time when I'm due again. Sorry for such a long post just needed to get it all out!

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