PA and dementia

[Casey6017]

Hi everyone ☺ I was diagnosed 40+ yrs ago with definite PA / carcinoid syndrome. So far so good. I have a strong family history of PA, Parkinson's, dementia etc. I've been blessed with the same PCP and gastro Dr's for most of those years. I trust them 100%. Apparently they have picked up on a few mild signs of possible dementia so Dr is sending me to neurology for testing. My question is, have you heard how common it is to develop cognitive impairment from P/A? I've been watching documentaries about Alzheimer's and I will not go through it or put my family through that.

I know I'm putting the cart before the horse but always good to read and be prepared just in case.

Thank you friends for letting me ramble.

[wedgewood]

If you have a strong family history of PA , and you say that you have a diagnosis of P.A., and you don’t get adequate treatment for it(i.e. enough B12 injections ) then the cognitive impairment that you refer to could be a symptom of PA. Cognitive impairment is certainly a symptom of P.A. You can read that in any medical literature about P.A. How common that is , we know not . There is very little research done into PA . It’s not an interesting condition - there are no Big Bucks in it ( no patents on vitamins )

Adequate treatment should keep cognitive impairment at bay .

[clivealive Forum Support]

Hi Casey6017 you probably well know that "dementia" is on the list as one of the symptoms related to a Vitamin B12 deficiency but as a P.A. patient you will be receiving cobamalin injections so hypothetically you aren't likely to be deficient.

What frequency of injections are you on?

Do you know what your Folate level is?

Maybe it's a case that we are just getting old...

I am not a medically trained person but I've had P.A. (a form of B12 deficiency) for more than 45 years.

I wish you well

.